Malaysian Twin Registry

2012 ◽  
Vol 16 (1) ◽  
pp. 246-247 ◽  
Author(s):  
Shayesteh Jahanfar ◽  
Sharifah Halimah Jaffar

The National Malaysian Twin Registry was established in Royal College of Medicine, Perak, University Kuala Lumpur (UniKL) in June 2008 through a grant provided by UniKL. The general objective is to facilitate scientific research involving participation of twins and their family members in order to answer questions of health and wellbeing relevant to Malaysians. Recruitment is done via mass media, poster, and pamphlets. We now have 266 adult and 204 children twins registered. Several research projects including reproductive health study of twins and the role of co-bedding on growth and development of children are carried out. Registry holds annual activities for twins and seeks to provide health-related information for twins. We seek international collaboration.

2021 ◽  
Vol 14 (1) ◽  
pp. 47
Author(s):  
Heike Marquart ◽  
Julia Schuppan

Promoting cycling and walking in cities improves individual health and wellbeing and, together with public transport, promotes societal sustainability patterns. Recently, smartphone apps informing and motivating sustainable mobility usage have increased. Current research has applied and investigated these apps; however, none have specifically considered mobility-related health components within mobility apps. The aim of this study is to examine the (potential) role of health-related information provided in mobility apps to influence mobility behavior. Following a systematic literature review of empirical studies applying mobility apps, this paper (1) investigates the studies and mobility apps regarding communicated information, strategies, and effects on mobility behavior and (2) explores how, and to what extent, health and its components are addressed. The reviewed studies focus on environmental information, especially CO2-emissions. Health is represented by physical activity or calories burned. The self-exposure to air pollution, noise, heat, traffic injuries or green spaces is rarely addressed. We propose a conceptual framework based on protection motivation theory to include health in mobility apps for sustainable mobility behavior change. Addressing people’s self-protective motivation could empower mobility app users. It might be a possible trigger for behavior change, leading towards healthy and sustainable mobility and thus, have individual and societal benefits.


2021 ◽  
Vol 20 (03) ◽  
pp. A08
Author(s):  
Sonia Brondi ◽  
Giuseppe Pellegrini ◽  
Peter Guran ◽  
Martin Fero ◽  
Andrea Rubin

This paper investigates the dimensions of trust and the role of information sources and channels in developing differentiated forms of science communication. The discussions from two public consultations carried out in Italy and Slovakia about controversial science-related topics were quali-quantitatively content analysed. The results show that scientific knowledge pervades diverse communication spheres, producing differentiated paths of trust in science. Each path is determined by topics (environment or health-related), information sources and channels preferred, and specific features of the multifaceted notion of trust. The contribution discusses cross-national commonalities and specificities and proposes implications for science communication.


2013 ◽  
Vol 411-414 ◽  
pp. 110-114 ◽  
Author(s):  
Dan Dumbrell ◽  
Robert Steele

Traditional forms of health information dissemination have previously involved a few key organizations originating health-related information and disseminating this to clinicians and the community. This information was typically disseminated via private, formalized and non-digital interactions between health information sources (HIS) and clinicians and consumers. With the introduction of the Internet, Web-based health information dissemination led to some changes with greater availability of online health information. However the recent adoption and uptake of social media has led to many more parties, both organizations of varying types, and individuals, participating in public health information dissemination; and this has also led to new forms of sharing health-related information, particularly involving a greater role for individuals. In this paper we introduce empirical findings in relation to how organizations and individuals are now using social media for sharing health information, and from this suggest themes to describe the changes from traditional to contemporary health information dissemination, as well as the new emerging roles and forms of interaction for health information dissemination.


2020 ◽  
Author(s):  
Ilija Moric ◽  
Sanja Pekovic ◽  
Jelena Jovanovic

Abstract Background : The present study extends understanding of digital health literacy by exploring issues that clarify how and when sport-physical activities enhance digital health literacy measured by four types of health-related information searched on the Internet i.e., general health information, information on a specific injury or condition, specific information on a medical treatment or procedure and information regarding second opinion after visiting a doctor. Methods: We employ Tobit model on the large European data (N=5,318). Results: We find support for direct relation between sport-physical activities and digital health literacy. In addition, we find that the effect of sport-physical activities on digital health literacy is reversed when interacted with age. Conclusion: This evidence is consistent with the view that sport-physical activities can be considered as an important tool for digital health literacy improvement but only under certain socio-demographic characteristics.


Author(s):  
Al Lauzon

This chapter examines how technology is supporting the health and health care system for rural/remote people, specifically telehealth and the Internet, with a focus on the Canadian context. I will begin by outlining the opportunities and the challenges that technology presents to rural people and communities. This is followed by highlighting the divide between rural and urban in the Canadian context, with a focus on inequities related to health. This is followed by exploring the role of ICTs in health and health care with a focus on changes in the Canadian healthcare system, telehealth and the Internet as a source of health related information. These issues are then examined through a rural lens, asking the question what, if any are the implications for rural people and communities. I end with a section of reflections followed by the conclusion that ICTs present new opportunities for rural people and communities, but if they are to be able to take advantage of these opportunities they must learn to develop the necessary capacities, both as individuals and as a community. Their challenge is a learning challenge.


Author(s):  
Seetesh Ghose ◽  
Lopamudra B. John

A pregnancy can take place at any time before or after puberty. Adolescent pregnancy is defined as pregnancy under the age of 20 years. It is a problem in both developed and developing country. It raises various human right issues i.e. an adolescent pregnant girl is forced to leave school, depriving her right to education; she is prevented from using any contraception or reproductive health related information, so she is also denied her right to health. As many adolescents are neither physically nor psychologically ready for pregnancy or childbirth, this reproductive event makes them more vulnerable to complications resulting in devastating health consequences for them. Early drop out from the school and health problem jeopardize their income-earning potential.


2017 ◽  
Vol 42 (4) ◽  
Author(s):  
Lars Guenther ◽  
Sabrina H. Kessler

AbstractIn (in)formal learning scenarios, individuals should develop epistemological beliefs (i.e., individual conceptions about the nature of knowledge and knowing) that are advantageous for understanding everyday science- and health-related information. To date, researchers measuring how to foster students’ discipline-specific epistemological beliefs have often tested researcher-designed texts in short-term interventions. Applying this logic to audio-visual stimuli, television clips might also affect (e.g., change) the epistemological beliefs of students. To test this assumption, three different television stimuli on the subject of Alzheimer’s disease with varying levels depicting the presented knowledge (as more advantageous, moderate, or less advantageous) were therefore selected by means of a content analysis, and their effects tested on a sample of 72 students using a pre-/post-test questionnaire. The results showed some partial support for the assumption that the epistemological beliefs of participants could become less advantageous when they are exposed to television clips depicting knowledge as moderate or less advantageous.


2021 ◽  
Vol 28 (3) ◽  
pp. 118-128
Author(s):  
Siti Zuhaida Hussein ◽  
Chung Hong Chuo ◽  
Fawwaz Mohd Said ◽  
Khairunnisa Tumingan ◽  
Nurshalin Sahar Shah ◽  
...  

Background: Diabetes mellitus has become a major public health problem globally. Social media could be useful in assisting clinical practice and sharing health-related information to improve self-management and to promote a positive behavioural change. This study aims to develop a guide on the best online tools by determining the media preference reflected by health- related information received from social media amongst diabetic patients in Hospital Canselor Tuanku Muhriz (HCTM), Universiti Kebangsaan Malaysia, Kuala Lumpur. Methods: This study was conducted cross-sectional on 174 respondents, who were selected by using a simple random sampling method. Socio-demographic data and the use of the internet and media for health-related information were obtained via questionnaires. Results: The most preferred social media used for searching and sharing health-related information was WhatsApp (73.6%), followed by Facebook (67.8%), Instagram (18.4%) and Twitter (17.2%). The social media preference related to socio-demographic data of age was statistically significant (P < 0.002), which had a medium effect. Furthermore, the media preference was not significantly related to health-related information searched or shared on social media and the frequency of usage. Conclusion: Indeed, the social media have been an essential media platform to enhance public awareness concerning public health. This calls for evolution to further enhance the use of social media amongst healthcare practitioners to emphasise health promotion and empower the patients to play an active role in their healthcare. This study provides a guideline for the medical researchers, practitioners or healthcare providers in choosing WhatsApp as an online medium to communicate with diabetic patients in the future, specifically in Malaysia.


2020 ◽  
Author(s):  
Elisa Oreglia ◽  
Sokhey Ly ◽  
Camille Tijamo ◽  
Amra Ou ◽  
Caroline Free ◽  
...  

BACKGROUND In Cambodia, abortion has been legally permitted on request during the first trimester of pregnancy since 1997. However, although there has been an increase in the percentage of women having induced abortion and medical abortion, there has also been a decrease in the percentage of women who say they received help from a health worker with their abortion. These data point toward the <i>demedicalization</i> of abortion, and although medical abortion has been shown to be safe, there are concerns about safety, given the variety of available products and counseling provided. These concerns are particularly relevant for female factory workers, who typically come from rural areas where access to good health care and information about reproductive health care is limited. OBJECTIVE This study aims to understand the reproductive health needs of female Cambodian garment factory workers after medical abortion from a multidisciplinary and mixed-methods perspective, focusing on how they seek and share medical abortion- and health-related information; how they use their mobile phones for this and other purposes; what cultural challenges exist around reproductive health; and how they might be magnified or mitigated by mobile phones, linguistic challenges around health care, and mobile phone use. The main purpose of this study is to combine multidisciplinary methods, theories, and expertise to gain new, culturally grounded insights into family planning and medical abortion in Cambodia, but the findings could help inform the development of a relevant intervention to support comprehensive postabortion care. METHODS The methods proposed are interviews and participant observation among factory workers, health providers, and mobile phone providers; a linguistic analysis of relevant data (interview transcripts, web-based sources, and other fieldwork materials); and digital methods to understand what kind of information about medical abortion exists on the web in Cambodia and how it is accessed by the targeted population. RESULTS The data collection part of the project will end on December 31, 2020. The team conducted 67 semistructured interviews with female factory workers, women who sought a medical abortion, health providers, and mobile phone providers; participant observation with factory workers and health providers; and an analysis of YouTube and Facebook to understand what kind of information is available, who creates it, and how it is used. The team is currently performing data analysis, and the findings are clustered around (1) the use of mobile phones and digital resources for health-related and medical abortion-related information, (2) the experience of medical abortion care, and (3) the development of an intervention through edutainment videos. CONCLUSIONS The project highlights both the widely untapped potential of using digital platforms (especially YouTube and Facebook) to distribute accurate information on medical abortion and the challenges in providing individual information via mobile phones while respecting individuals’ privacy. INTERNATIONAL REGISTERED REPORT DERR1-10.2196/17779


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