Adaptation of the Questionnaire of Hahn, Cella, Bode, and Hanrahan in Spanish Patients Affected by Asbestos Poisoning

2013 ◽  
Vol 16 ◽  
Author(s):  
Miguel Clemente ◽  
Adela Reig-Botella
Keyword(s):  
High Reliability ◽  
Chronically Ill ◽  
Well Being ◽  
Chronic Illnesses ◽  
Future Directions ◽  
The Social ◽  
Male Patients ◽  
Chronically Ill Patients ◽  
Social Companionship ◽  
Very High

AbstractThe purpose of this study was to assess whether or not the questionnaire developed by Hahn, Cella, Bode, and Hanharan (2010) for use with cancer patients accurately measures the social well-being of individuals suffering from chronic illnesses associated with asbestos poisoning. One hundred ten male patients with asbestos poisoning were age-matched in blocks to a comparison group of 70 “healthy” controls, all of whom were current or retired employees of the largest naval company in Spain. The results indicate very high reliability of the Hahn et al. (2010) test to assess social well-being in these chronically ill patients, and a high concurrent validity of the measured outcomes with regard to results of the SCL-90 Derogatis questionnaire, especially on the social well-being dimensions of negative emotional support, negative social companionship, and satisfaction. Limitations of the study and possible future directions are discussed.

Behavioral engagement with mHealth for improved well-being among chronically ill patients: the role of human-related and app-related factors (Preprint)

2021 ◽  
Author(s):  
Freek Van Baelen ◽  
Melissa De Regge ◽  
Bart Larivière ◽  
Katrien Verleye ◽  
Sam Schelfout ◽  
...  
Keyword(s):  
Chronic Condition ◽  
Chronically Ill ◽  
Well Being ◽  
Behavioral Engagement ◽  
Related Factors ◽  
Design Factor ◽  
Mobile Health Applications ◽  
Chronically Ill Patients ◽  
The Relationship ◽  
Mhealth Apps

BACKGROUND Last decade has shown a considerable increase in the amount of mobile health applications (mHealth apps) in everyday life. These mHealth apps have the potential to significantly improve well-being for chronically ill patients. However, behavioral engagement with mHealth apps remains low. OBJECTIVE The aim of this study is to provide insight into the behavioral engagement of adults with chronic conditions with mHealth apps by investigating (1) how it is affected by human-related factors (here, physician motivation) and app-related factors (here, app integration) and (2) how it affects their well-being. Supplementary, this study considers the moderating effect of preference for traditional visits to the physician (habit) and experience in app use (app experience) by the patients. METHODS A scenario based experiment among patients with a chronic condition (n= 521) was carried out. A Bayesian SEM model with mediation and moderation analysis was conducted in MPlus. RESULTS Both physician motivation for mHealth app use and mHealth app integration have a positive effect on the behavioral engagement of chronically ill patients towards mHealth apps. Higher behavioral engagement positively influences the hedonic and eudaimonic well-being of chronically ill patients. App experience positively moderates the relationship between app integration and behavioral engagement. A patients’ habit with receiving traditional care does not moderate the relationship between physician motivation and behavioral engagement. CONCLUSIONS The human and design factor play a key role in behavioral engagement and well-being among patients with a chronic condition. During and after the development of a mHealth app, app integration and physician motivation should be a point of attention.

scholarly journals Relationship between Spiritual Well-being and Quality of Life among Chronically Ill Individuals

2015 ◽  
Vol 2 (4) ◽  
Author(s):  
Kanwal Shahbaz ◽  
Dr. Kiran Shahbaz
Keyword(s):  
Quality Of Life ◽  
Economic Status ◽  
Chronically Ill ◽  
Well Being ◽  
Life Questionnaire ◽  
Spiritual Wellbeing ◽  
Socio Economic Status ◽  
Spiritual Well Being ◽  
Chronically Ill Patients

The study was aimed to find the relationship between Spiritual Wellbeing and Quality of Life among chronically ill individuals. Likewise, relationship between demographic variables with Quality of Life and Spiritual Wellbeing were also reconnoitered. Non probability purposive sampling technique was used with chronically ill patients of 15yrs to 80yrs. For measuring spiritual wellbeing Urdu version of “Spiritual Wellness Inventory” (SWI-URDU) (Hanif, 2010) was used. Alternatively, for the measurement of Quality of life WHO Quality of Life Questionnaire (WHO-QOL-BREF) was used. A sample of 200 chronically ill patients were taken from four different hospitals of Rawalpindi and Islamabad. Reliabilities of both the instruments were computed as 0.90 for SWI and 0.74 for WHO-QOL-BREF. Findings show that quality of life and Spiritual wellbeing is positively related among chronically ill individuals. Males found to score high on spiritual wellbeing than females. Individuals with less education are more spiritually inclined as compared to individuals with high education. Quality of life was scored high by individuals with higher education as compared to less education. Married individuals were having better quality of life than unmarried, separated widow and divorced. Patients with middle socio-economic status were having better quality of life than higher and lower. Quality of life was high among individuals with better monthly income than those who have low and middle monthly incomes. Spiritual well being is higher in middle adolescents (15-17) than in late (18-20) adolescents. The current research can be implemented in designing the intervention plans for the betterment of chronically ill patients. It may also help us to develop an insight that each patient with same disease but in different age group and socio-economic status has different needs and plans of treatment and care.

scholarly journals Chronic patient care at North West Province clinics

2009 ◽  
Vol 1 (1) ◽  
Author(s):  
Claire Van Deventer ◽  
Ian Couper ◽  
Nontsikelelo Sondzaba
Keyword(s):  
Patient Care ◽  
Chronically Ill ◽  
Chronic Illnesses ◽  
Chronic Patient ◽  
Flow Measurements ◽  
North West ◽  
The North ◽  
Southern District ◽  
North West Province ◽  
Chronically Ill Patients

Background: Chronic illnesses are a significant burden to the health services in South Africa. There is a specific national health plan whereby chronically ill patients who are acceptably controlled should be managed at clinic level. The perception has emerged that the management of primary care has not been optimal in the Southern District of the North West Province. This provided the motivation to initiate this research, namely consideration of chronic patient care at clinics in the North West Province of South Africa.Method: A cross-sectional descriptive study was carried out at four randomly selected clinics covering four sub-districts in the Southern District (North West Province). This was done using charts and registers at the clinics. Inclusion criteria were patients older than 18, and presenting with the following chronic illnesses: asthma/chronic obstructive airways disease (COAD), hypertension, diabetes and epilepsy. The major focus areas were the regular assessment of the patients, the level of control of the illness and the use of the Essential Drugs List and Standard Treatment Guidelines (EDL/STG).Results: In the cases of all the chronic illnesses it was found that regular assessments were poorly done, with asthma (peak flow measurements) being the most poorly done. Control was generally less than 50% for all the illnesses, although the EDL was followed fairly well by the personnel at the clinics.Conclusion: In the light of the burden of chronic illness the results give cause for great concern about the quality of care for chronically ill patients, and reasons were sought for some of the poor results. A subsequent decision was taken to carry out comprehensive quality improvement projects on each of the illnesses over the following five years.

Positive Processes in Close Relationships

2019 ◽  
Author(s):  
Shelly L. Gable ◽  
Natalya C. Maisel
Keyword(s):  
Intimate Relationships ◽  
Positive Emotions ◽  
Human Life ◽  
Well Being ◽  
Self Concept ◽  
Positive Events ◽  
Future Directions ◽  
The Social ◽  
Close Relationship ◽  
Health And Well Being

Although psychologists have learned a great deal about negative and harmful processes in relationships, they have focused less on understanding the positive and beneficial processes in relationships. Of course, almost every close relationship offers the promise of both meaningful rewards and substantial risks, such as support, intimacy, companionship, conflict, rejection, and criticism. In this chapter, we attempt to highlight the complexities involved in relationships and emphasize the positive processes, with the goal of creating a picture that represents the dynamic reality of the social world. We first discuss the important role that intimate relationships play in human life and their strong links with health and well-being. We then highlight research on the positive processes in relationships, such as positive emotions, intimacy, growth of the self-concept, and the benefits of sharing positive events. This work complements previous literature, which has tended to focus on the potential pitfalls in relationships. Inherent in our position is that a lack of negatives in a relationship is not equivalent to a positive relationship; just as an absence of psychopathology is not equivalent to flourishing. We end with outlining future directions in the positive psychology of relationships, such as a greater focus on biology and health and the need for examining moderating conditions.

Tele-Health Monitoring of Patient Wellness

2016 ◽  
Vol 25 (4) ◽  
pp. 515-528 ◽  
Author(s):  
Ross Stewart Sparks ◽  
Chris Okugami
Keyword(s):  
Machine Learning ◽  
Vital Sign ◽  
Vital Signs ◽  
Regression Tree ◽  
Chronically Ill ◽  
Well Being ◽  
Machine Learning Techniques ◽  
Care Plans ◽  
Tree Methods ◽  
Chronically Ill Patients

AbstractThe vital signs of chronically ill patients are monitored daily. The record flags when a specific vital sign is stable or when it trends into dangerous territory. Patients also self-assess their current state of well-being, i.e. whether they are feeling worse than usual, neither unwell nor very well compared to usual, or are feeling better than usual. This paper examines whether past vital sign data can be used to forecast how well a patient is going to feel the next day. Reliable forecasting of a chronically sick patient’s likely state of health would be useful in regulating the care provided by a community nurse, scheduling care when the patient needs it most. The hypothesis is that the vital signs indicate a trend before a person feels unwell and, therefore, are lead indicators of a patient going to feel unwell. Time series and classification or regression tree methods are used to simplify the process of observing multiple measurements such as body temperature, heart rate, etc., by selecting the vital sign measures, which best forecast well-being. We use machine learning techniques to automatically find the best combination of these vital sign measurements and their rules that forecast the wellness of individual patients. The machine learning models provide rules that can be used to monitor the future wellness of a patient and regulate their care plans.

Managing Chronic Illness

2016 ◽  
Vol 36 (4) ◽  
pp. 462-479 ◽  
Author(s):  
Mark Toles ◽  
Helene Moriarty ◽  
Ken Coburn ◽  
Sherry Marcantonio ◽  
Alexandra Hanlon ◽  
...  
Keyword(s):  
Older Adults ◽  
Care Coordination ◽  
Chronically Ill ◽  
Well Being ◽  
Models Of Care ◽  
Chronic Illnesses ◽  
Demonstration Program ◽  
Health Quality ◽  
The Impact ◽  
Improve Health

Models of care coordination can significantly improve health outcomes for older adults with chronic illnesses if they can engage participants. The purpose of this study was to examine the impact of nursing contact on the rate of participants’ voluntary disenrollment from a care coordination program. In this retrospective cohort study using administrative data for 1,524 participants in the Health Quality Partners Medicare Care Coordination Demonstration Program, the rate of voluntary disenrollment was approximately 11%. A lower risk of voluntary disenrollment was associated with a greater proportion of in-person (vs. telephonic) nursing contact (Hazard Ratio [HR] 0.137, confidence interval [CI] [0.050, 0.376]). A higher risk of voluntary disenrollment was associated with lower continuity of nurses who provided care (HR 1.964, CI [1.724, 2.238]). Findings suggest that in-person nursing contact and care continuity may enhance enrollment of chronically ill older adults and, ultimately, the overall health and well-being of this population

scholarly journals Social stigma in leprosy

2015 ◽  
Vol 5 (2) ◽  
pp. 6-10 ◽  
Author(s):  
S Marahatta ◽  
A Ghimire ◽  
N Jha ◽  
S M Pokhrel ◽  
S Rayamajhi ◽  
...  
Keyword(s):  
Community Education ◽  
Social Stigma ◽  
Family Members ◽  
Control Program ◽  
Well Being ◽  
Structured Interview ◽  
The Social ◽  
The Family ◽  
Male Patients ◽  
Leprosy Control

Leprosy, an infectious disease, is a highly stigmatized disease. It directly affects patients’ physical, psychological, social and economical well-being. To know the stigma faced by the patients in the family and community. The study was carried out at Netherlands Leprosy Relief, Biratnagar, Nepal. Verbal consent was taken from each patient. A total number of 34 patients who were diagnosed to have leprosy were interviewed. Data were collected using structured interview schedule that included questions seeking information about all aspects of objective. Although both men and women faced the social stigma of the disease, women suffered more rejection by the family members (50%), neighborhood (75%) and work places (62.5%) in comparison to male patients, who are affected maximum at work places (39%) and minimum in family (7.69%). Illiterate were avoided by family members (25%) and co-workers (75%) whereas literate were not. All unemployed patients were neglected in community whereas only 21.42% of employed were neglected. Leprosy is a highly stigmatized disease. Patients are neglected by their family and society. Therefore community education component of Leprosy Control Program needs to be strengthened.

scholarly journals The existential imperative in narrating experience

COMPASS ◽  
2011 ◽  
Vol 1 (1) ◽  
pp. 42-55
Author(s):  
Thea Luig
Keyword(s):  
Social Sciences ◽  
Driving Force ◽  
Cultural Context ◽  
Chronically Ill ◽  
Well Being ◽  
Sense Of Agency ◽  
Therapeutic Practice ◽  
Narrative Approaches ◽  
The Social ◽  
Long Time

The idea that the act of narrating one’s experience, in particular reorganizing disruptive experiences into a coherent story, is conducive to well-being has become popular in the social sciences and in therapeutic practice. Ways of remembering and narrating draw on templates of the larger societal, historical, and cultural context and thus situate the memory of one’s particular experience within a collectively shared world. However, other voices argue that the driving force of storytelling is less the need for coherence or continuity, but rather the reconstruction of a sense of agency in intersubjective relationships. This paper will explore the question of what is at stake, what is existentially imperative, in the human practice of narrating experience. Using a phenomenological framework that pays attention to the intersubjective space of perception and experience, I will apply narrative approaches drawing on medical anthropolog y, linguistics, and psychology to my conversations with Mary, a long-time caregiver for chronically ill family members.

Subjective Concepts of Chronically Ill Patients Using Distant Healing

2011 ◽  
Vol 22 (3) ◽  
pp. 320-331 ◽  
Author(s):  
Corina Güthlin ◽  
Andreas Anton ◽  
Jan Kruse ◽  
Harald Walach
Keyword(s):  
Controlled Trial ◽  
Belief System ◽  
Chronically Ill ◽  
Chronic Fatigue ◽  
Multiple Chemical Sensitivity ◽  
Distant Healing ◽  
Fatigue Syndrome ◽  
The Social ◽  
Health Related ◽  
Chronically Ill Patients

Distant healing procedures consist of benevolent intentions, often taking the form of prayers for a patient. Despite inconclusive evidence regarding distant healing, prayers are a widespread health-related technique. We studied subjective concepts of distant healing in 17 patients suffering from chronic fatigue syndrome and multiple chemical sensitivity who were given distant healing during a randomized controlled trial. We applied reconstructive interview analysis when analyzing the results. The overall theme was the tension between mainstream medicine and the immaterial healing procedure. Several components highlighted this tension: (a) patterns of legitimizing the use of distant healing, (b) distant healing and the social setting, (c) integrating distant healing into their belief system, and (d) reconstruction of effects by means of hindsight. The interviews showed that patients felt the need to legitimize having tried distant healing. They had to bear the full ambiguity of biomedicine being in competition with distant healing, though also experiencing distant healing as giving support.

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