Coping Strategies of Disabled People in Residential Environments after Injury Events

2018 ◽  
Vol 24 (2) ◽  
pp. 88-102 ◽  
Author(s):  
Jörgen Lundälv

The study explored the lived experiences of people with injury events in their residential environment. Participants were 65 people with disabilities and chronic diseases in Sweden with residential living injuries (females = 40 (61.5%), men = 25 (38.5%), age range 20–90 year old). They completed qualitative interviews on their experiences of injury events in their residential environment. Thematic analysis of the data yielded evidence to suggest the following issues: (1) individual coping resource preferences; (2) support services; and (3) family engagement needs. Participants coped utilizing positive reframing of their living with injury and the incidents they experienced. Social support functions were important for safety in the housing environment. Rather disconcerting is the fact that participants would not always tell their social network about the risks and injuries they experienced.

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Geoff Bardwell ◽  
Taylor Fleming ◽  
Ryan McNeil ◽  
Jade Boyd

Abstract Background North America is amidst an opioid overdose epidemic. In many settings, particularly Canada, the majority of overdose deaths occur indoors and impact structurally vulnerable people who use drugs alone, making targeted housing-based interventions a priority. Mobile applications have been developed that allow individuals to solicit help to prevent overdose death. We examine the experiences of women residents utilizing an overdose response button technology within a supportive housing environment. Methods In October 2019, we conducted semi-structured qualitative interviews with 14 residents of a women-only supportive housing building in an urban setting where the overdose response button technology was installed. Data was analyzed thematically and framed by theories of structural vulnerability. Results While participants described the utility and disadvantages of the technology for overdose response, most participants, unexpectedly described alternate adoptions of the technology. Participants used the technology for other emergency situations (e.g., gender-based violence), rather than its intended purpose of overdose response. Conclusions Our findings highlight the limitations of current technologies while also demonstrating the clear need for housing-based emergency response interventions that address not just overdose risk but also gender-based violence. These need to be implemented alongside larger strategies to address structural vulnerabilities and provide greater agency to marginalized women who use drugs.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 616-617
Author(s):  
Corinna Tanner ◽  
Michael Caserta ◽  
Jia-Wen Guo ◽  
Margaret Clayton ◽  
Paul Bernstein ◽  
...  

Abstract This mixed method study describes posttraumatic growth (PTG) accruing form experience with vision loss caused by severe age related macular degeneration (AMD) and explores relationships between depression, social support, and cognitive processing, on the path to PTG. Research describing the psychological and social issues surrounding AMD has focused on negative outcomes. However, learning from highly challenging experiences, such as vision loss, can offer benefits. In this study, these included an increased sense of personal strength, increased spirituality, and empathy for others (all domains of PTG). 89 participants with severe vision loss (mean age = 85.3 years, age range = 74–98 years) completed the interviewer-administered composite questionnaire, which identified elements of Tedeschi and Calhoun’s model of PTG. Relationships between variables were examined using path analysis. Findings were contextualized with data from 15 qualitative interviews. Findings underscored the importance of supportive others and deliberate cognitive processing in the path to PTG.


2018 ◽  
Vol 16 (1) ◽  
pp. 32-45
Author(s):  
Andina Syafrina ◽  
◽  
Angela Christysonia Tampubolon ◽  
Suhendri Suhendri ◽  
Nunik Hasriyanti ◽  
...  

Housing development needs to be supported by particular guidelines issued by authorized institute for the achievement of development feasibility. Community participation as the main actors and users also took an important part for housing development to fit the target. Community disappointment is often caused by results that do not match the desires or not according to standards. The aim of this study was to find the preferences of the community related to the housing environment to be occupied, so it can open the new possibility in planning and designing the housing environment. This research uses exploratory qualitative and grounded theory method. Data collection is done through an open-ended online questionnaire and shared freely (non-random sampling). The collected data was analyzed qualitatively using the content analysis methods. The result showed that the five aspects that become the preference of residential environment (5 PRE) namely: environmental comfort, environmental facilities, environmental infrastructure, location and accessibility, building and residential environment design.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 345-345
Author(s):  
Anna Beeber ◽  
Ruth Anderson ◽  
Lindsay Schwartz

Abstract Assisted living (AL), is a long-term care service that provides housing and care for over 800,000 older adults in 30,000 residences. AL culture and operations have been transforming to enhance resident personhood and increase autonomy, however, these practices are balanced with the need to minimize safety issues (e.g., medication errors, infections, falls, and in cases of dementia, elopement and injuries). In this stakeholder-based study, we are translating existing strategies for improving patient safety to AL residences and developing an evidence-based tool for implementing these engagement strategies in AL. This symposium presents the methods and findings from a federally-funded mixed methods study including qualitative interviews with 105 AL residents, staff and family caregivers, and a series of focus groups with an AL stakeholder group to develop a toolkit to improve resident and family engagement in AL safety. The first paper outlines our methodological approach, including our efforts to work with stakeholders throughout the research process. The second paper reports findings from a scoping review of existing tools to support resident and family engagement in the safety of AL. The third paper presents the findings from our interviews with AL residents, families and staff exploring their safety priorities, and how they differ across stakeholder groups. The fourth paper presents the findings from our qualitative interviews exploring the challenges and promising practice to resident and family engagement in AL safety during the COVID-19 pandemic. All four presentations in this symposium illustrate important issues for future practice, policy, and research.


2018 ◽  
Vol 6 (1) ◽  
pp. 1-8 ◽  
Author(s):  
Laufey Löve ◽  
Rannveig Traustadóttir ◽  
James Gordon Rice

Achieving disability equality calls for transformative changes to society’s structures and norms. Recognizing the central role of disabled people and their organizations in this restructuring, and the call of the Convention on the Rights of Persons with Disabilities (CRPD) for their full inclusion in all legal and policy decisions relating to their rights, this article focuses on how disability groups and organizations regard their ability to effect changes in line with the CRPD. The article draws on qualitative interviews with leaders of disability organizations and activist groups in Iceland in 2016 and 2017. The findings reflect frustration among the leaders with what they perceive to be a lack of sustained progress in the decade since the country signed the CRPD. In their view, this period has been characterized by a lack of meaningful involvement of disabled people in policymaking, and a lack of political will and interest in disability affairs, which has resulted in stagnation. As a result, leaders of disabled people’s organizations have begun to change their strategies and are taking steps to redefine their approaches, and reframe the issues and dialogue with authorities in a more progressive manner, demanding to have more say in the process of change.


2021 ◽  
Author(s):  
Sarah Egan ◽  
Clare Rees ◽  
Joanna Delalande ◽  
Danyelle Greene ◽  
Grace Fitzallen ◽  
...  

Previous meta-analyses have found higher self-compassion is associated with lower anxiety and depression. The aim of this study was to investigate the efficacy of self-compassion as an active ingredient in the treatment and prevention of anxiety and depression in youth. This was conducted through (i) a systematic review of the literature and (ii) qualitative consultation with young people and researchers in self-compassion. 50 studies met our inclusion criteria. Eight studies evaluated self-compassion interventions among youth aged 14-24, and the remaining studies measured the association between self-compassion and anxiety, and/or depression among this age group. Qualitative interviews were conducted with four self-compassion researchers. Interviews were also conducted in two rounds of consultation with 20 young people (M age = 18.85 years, age range 14-24 years). Higher self-compassion was related to lower symptoms of anxiety, r = -0.49, 95% CI (-0.57, -0.42), and depression, r = -.50, 95% CI (-.53, -.47). There was evidence for self-compassion interventions in decreasing anxiety and depression in young people. Consultation with young people indicated they were interested in self-compassion interventions; however, treatment should be available in a range of formats and tailored to address diversity. Self-compassion experts emphasised the importance of decreasing self-criticism as a reason why self-compassion interventions work. The importance of targeting self-criticism is supported by the preferences of young people who said they would be more likely to engage in a treatment reducing self-criticism than increasing self-kindness. Future research is required to add to the emerging evidence for self-compassion interventions decreasing symptoms of anxiety and depression in young people.


2014 ◽  
Vol 22 (3) ◽  
pp. 5-13
Author(s):  
Ewa Stachura ◽  
Katarzyna Binkowska

Abstract The process of transformation in Poland contributed to the dynamic development of the housing market and caused a growth of aspirations among Poles related to the housing environment. The diversity of lifestyles has brought about new, different expectations of the residential environment. Meanwhile, most surveys examining housing preferences and focused on the location of housing, services and infrastructure in housing estates, and urban and architectural standards show similar expectations of residents in regards to their housing environment. The phenomenon of the homogenization of expectations regarding the residential environment appears regardless of the household lifecycle, place of residence, or level of wealth (STACHURA 2013). Research methods testing users’ preferences allow an expected set of characteristics of the housing environment to be specified. If the respondents' aspirations regarding the housing environment are similar regardless of the segment they belong to, it may be assumed that possible differences may be revealed by a more detailed study. People perform many activities in their homes. These activities are related to everyday living, family and social life, work or hobbies. Each of them may be in assigned to one or more rooms in a dwelling. Activities may have different meanings and hold a different degree of importance to the residents. When purchasing a new dwelling, buyers prefer homes where the activities most important to them can be carried out in the most satisfactory way. The study attempts to establish the relationships between activities and sub-settings (dwelling or residential environment features) as well as between activities and their meanings. This paper presents an extended method of examining residential preferences: respondents declare, in a survey questionnaire, what activities are carried out in the dwelling, and how they attach meanings to these activities. The pilot study showed that some of the activities are strongly associated with one specific room, while others may be connected to any room. Rooms in Polish homes have many functions. Some of the functions are strictly connected with the type of room (bedroom, bathroom), but there is also a set of everyday activities that can be assigned to different rooms, selected by the resident. The present research revealed that activities can take on different meanings, which determines their level of importance to the dwelling user.


2017 ◽  
Vol 23 (1) ◽  
pp. 19-36
Author(s):  
Martin Raffaele ◽  
Elias Mpofu ◽  
Jennifer Smith-Merry ◽  
Martin Mackey

This study aimed to understand the coping strategies used by men with Adult Onset Epileptic Seizures (AOES) following elective neurosurgery, and in particular, how those adaptive skills relate to their subjective wellbeing (SWB). Open-ended qualitative interviews were conducted with five men with a history of neurosurgery for AOES (aged 34–59). The interview data was thematically analysed utilising interpretive phenomenological analysis. The findings indicated that the men experienced significant role marginalisation by family and co-workers, and also poor communication provided by health care professionals. They reported a higher sense of SWB with the use of ego-buffering strategies, such as positive reframing, threat minimisation, emotional self-acceptance and engaging in wish-fulfilling fantasies. Self-blame led to lower SWB. Findings imply that agentic behaviour is important to successful living with AOES following neurosurgery.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 346-346
Author(s):  
Victoria Bartoldus ◽  
Cloie Chiong ◽  
Tabitha Linville ◽  
Stephanie Palmertree ◽  
Anna Beeber ◽  
...  

Abstract Resident and family engagement (the desire, ability, and activation as a partner in care) is a necessary component of keeping assisted living (AL) residents safe. Barriers to engagement include differing priorities between the resident/family and staff. This presentation outlines the results of a content analysis of qualitative interviews with 105 AL staff, residents, and family members, in which we examined AL stakeholder priorities for safety. Qualitative interviews were analyzed to first identify safety priorities by stakeholder type (staff, resident, and families), and then compared across stakeholder group. Stakeholder-specific safety priorities were identified, including infection management (COVID-19 and others), medications errors, falls, elopement, lack of AL resources/staffing, conflict, adverse events, nutrition, physical hazards, building security, chemical agents, fire/natural disasters, and abuse/neglect – the importance of these priorities vary by stakeholder type. Presentation discussion will include implications for future intervention to address the top safety problems in AL.


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