scholarly journals 4545 Identifying Symptom Pattern Trajectories among Heart Failure Patients in a Palliative Care Trial: A Work In Progress

2020 ◽  
Vol 4 (s1) ◽  
pp. 135-135
Author(s):  
Macy Lynn Stockdill ◽  
Christopher Lee ◽  
J. Nicholas Dionne-Odom ◽  
Bradley Aouizerat ◽  
Raegan Durant ◽  
...  
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
African American ◽  
Family Caregivers ◽  
Older Adult ◽  
Growth Mixture Modeling ◽  
Work In Progress ◽  
Symptom Trajectories ◽  
Symptom Pattern ◽  
Southeastern Us

OBJECTIVES/GOALS: This work-in-progress aims to: 1) identify and differentiate symptom pattern trajectories in a sample of older adult heart failure (HF) patients over 24 weeks, and 2) examine associations between sociodemographic/clinical/physiological characteristics, dyadic health, and symptom trajectories. METHODS/STUDY POPULATION: ENABLE CHF-PC, a palliative care RCT (NCT02505425), was conducted at a Southeastern US medical center. Between 2016-2018, 415 older adult HF patients and 159 family caregivers were randomized to receive a psychoeducational intervention or usual care. Baseline sociodemographic information (age, gender, rurality, etc.) were collected. Outcome variables of interest include symptoms (Kansas City Cardiomyopathy Questionnaire (KCCQ), Functional Assessment of Chronic Illness Therapy-Palliative 14, Hospital Anxiety and Depression Scale (HADS)) and dyadic health (PROMIS-SF Global Health). We have calculated baseline descriptive statistics. Future work includes latent growth mixture modeling to identify distinct symptom trajectories and univariate associations with patient level factors. RESULTS/ANTICIPATED RESULTS: Of 415 patient participants, mean age was 64, 53% were male; 55% were African American; 26% were rural dwellers; 46% had +15.8) and low anxiety (6.7+3.6) and depressive symptoms (5.7+4.3) on the HADS. Of 159 family caregivers participants, the mean age was 57.9, 85.4% were female, 51.9% were African-American, and 65.2% were the patient’s spouse/partner. DISCUSSION/SIGNIFICANCE OF IMPACT: Limited data describes HF symptom pattern trajectories.How co-occurring symptoms affect quality of life or are affected by personal or situational factors are not well-understood. This study will help to identify factors and symptom phenotypes that may serve as targets for future interventions.

scholarly journals Giving Voice to Patients' and Family Caregivers' Needs in Chronic Heart Failure: Implications for Palliative Care Programs

2011 ◽  
Vol 14 (12) ◽  
pp. 1317-1324 ◽  
Author(s):  
David B. Bekelman ◽  
Carolyn T. Nowels ◽  
Jessica H. Retrum ◽  
Larry A. Allen ◽  
Simon Shakar ◽  
...  
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
Chronic Heart Failure ◽  
Family Caregivers

scholarly journals Translating and Testing the ENABLE: CHF-PC Concurrent Palliative Care Model for Older Adults with Heart Failure and Their Family Caregivers

2014 ◽  
Vol 17 (9) ◽  
pp. 995-1004 ◽  
Author(s):  
J. Nicholas Dionne-Odom ◽  
Alan Kono ◽  
Jennifer Frost ◽  
Lisa Jackson ◽  
Daphne Ellis ◽  
...  
Keyword(s):  
Heart Failure ◽  
Older Adults ◽  
Palliative Care ◽  
Family Caregivers ◽  
Care Model

scholarly journals Study protocol of coaching end-of-life palliative care for advanced heart failure patients and their family caregivers in rural appalachia: a randomized controlled trial

2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Ubolrat Piamjariyakul ◽  
Trisha Petitte ◽  
Angel Smothers ◽  
Sijin Wen ◽  
Elizabeth Morrissey ◽  
...  
Keyword(s):  
Heart Failure ◽  
Clinical Trial ◽  
Palliative Care ◽  
Randomized Controlled Trial ◽  
Home Care ◽  
End Of Life ◽  
Family Caregivers ◽  
Standard Care ◽  
Controlled Trial ◽  
Randomized Controlled

Abstract Background Heart failure (HF) afflicts 6.5 million Americans with devastating consequences to patients and their family caregivers. Families are rarely prepared for worsening HF and are not informed about end-of-life and palliative care (EOLPC) conservative comfort options especially during the end stage. West Virginia (WV) has the highest rate of HF deaths in the U.S. where 14% of the population over 65 years have HF. Thus, there is a need to investigate a new family EOLPC intervention (FamPALcare), where nurses coach family-managed advanced HF care at home. Methods This study uses a randomized controlled trial (RCT) design stratified by gender to determine any differences in the FamPALcare HF patients and their family caregiver outcomes versus standard care group outcomes (N = 72). Aim 1 is to test the FamPALcare nursing care intervention with patients and family members managing home supportive EOLPC for advanced HF. Aim 2 is to assess implementation of the FamPALcare intervention and research procedures for subsequent clinical trials. Intervention group will receive routine standard care, plus 5-weekly FamPALcare intervention delivered by community-based nurses. The intervention sessions involve coaching patients and family caregivers in advanced HF home care and supporting EOLPC discussions based on patients’ preferences. Data are collected at baseline, 3, and 6 months. Recruitment is from sites affiliated with a large regional hospital in WV and community centers across the state. Discussion The outcomes of this clinical trial will result in new knowledge on coaching techniques for EOLPC and approaches to palliative and end-of-life rural home care. The HF population in WV will benefit from a reduction in suffering from the most common advanced HF symptoms, selecting their preferred EOLPC care options, determining their advance directives, and increasing skills and resources for advanced HF home care. The study will provide a long-term collaboration with rural community leaders, and collection of data on the implementation and research procedures for a subsequent large multi-site clinical trial of the FamPALcare intervention. Multidisciplinary students have opportunity to engage in the research process. Trial registration ClinicalTrials.gov NCT04153890, Registered on 4 November 2019

scholarly journals Recruitment Outcomes Among African-American and Rural Populations with Heart Failure to an Early Palliative Care Clinical Trial (S871)

2019 ◽  
Vol 57 (2) ◽  
pp. 519-520
Author(s):  
Macy Stockdill ◽  
Rachel Wells ◽  
James Dionne-Odom ◽  
Andres Azuero ◽  
Deborah Ejem ◽  
...  
Keyword(s):  
Heart Failure ◽  
Clinical Trial ◽  
Palliative Care ◽  
African American ◽  
Rural Populations ◽  
Early Palliative Care

scholarly journals Effects of a Telehealth Early Palliative Care Intervention for Family Caregivers of Persons With Advanced Heart Failure

2020 ◽  
Vol 3 (4) ◽  
pp. e202583 ◽  
Author(s):  
J. Nicholas Dionne-Odom ◽  
Deborah B. Ejem ◽  
Rachel Wells ◽  
Andres Azuero ◽  
Macy L. Stockdill ◽  
...  
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
Family Caregivers ◽  
Advanced Heart Failure ◽  
Early Palliative Care ◽  
Care Intervention

A work in progress—after 35 years of nursing

2021 ◽  
pp. 1-2
Author(s):  
Yvonne Millerick
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
British Society ◽  
Work In Progress ◽  
Nursing Career

As a nominee for the new 2020 British Society for Heart Failure Lynda Blue Award, Yvonne Millerick sheds some light on her nursing career and her work in cardiac palliative care in our 2021 Spotlight on Nurses series.

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