scholarly journals 4580 Development of a play-based coaching intervention to improve quality of life and wellbeing for mothers with cancer and their young children

2020 ◽  
Vol 4 (s1) ◽  
pp. 27-27
Author(s):  
Rosa Roman-Oyola ◽  
Anita Bundy ◽  
Eida Castro ◽  
Osiris Castrillo
Keyword(s):  
Quality Of Life ◽  
Young Children ◽  
Depression Symptoms ◽  
Improve Quality ◽  
Structured Interviews ◽  
Yield Data ◽  
Implementation Phase ◽  
Coaching Intervention ◽  
Phase 1B

OBJECTIVES/GOALS: Mothers with cancer who have young children experience life disruptions when treatment procedures limit mother-child interactions. This study proposes the development of an intervention combining the Coaching approach with the Model of Playfulness to improve Quality of Life (QoL) and wellbeing of these patients and their young children. METHODS/STUDY POPULATION: This embedded mixed method study will be guided by the two initial phases of the ORBIT Model for the development of behavioral interventions for patients with chronic diseases. Participants will be mothers in the post-acute treatment stage of cancer (n = 6) and their children who are between 2 years and a half and 6 years, 11 months. Phase 1A, Definition, builds on qualitative data from a concurrent study exploring the experiences of mothers with cancer playing with their young children. As part of this phase, we will develop a play-based coaching intervention. In Phase 1B, Refinement, we will employ in-depth semi-structured interviews and standardized tools to evaluate acceptability of the intervention and preliminary outcomes. This will serve to further refine the intervention. RESULTS/ANTICIPATED RESULTS: Phase 1A will yield a plan for the intervention and data to enhance its initial implementation. Phase 1B will yield data, from the perspective of the mothers, about acceptability of the intervention procedures (e.g., delivery strategy, place for the intervention, time devoted, and outcome measures). This will enable modifications to the intervention. Additionally, Phase IB will yield preliminary data from specific QoL and wellbeing measures. For the mother, data about anxiety and depression symptoms, stress levels, and parental self-efficacy; for the child, emotional and behavioral indicators; for both: playfulness. DISCUSSION/SIGNIFICANCE OF IMPACT: This study entails the development of an intervention to enhance QoL and wellbeing of mothers with cancer and their children. Play moments as the centerpiece of the intervention, represent an innovative approach. Findings will guide the design of future feasibility studies to advance the development of this outcome driven intervention.

scholarly journals The role of the trainer in adapted physical activity for osteoporosis to improve quality of life

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
S Marini ◽  
A Masini ◽  
P Maietta Latessa ◽  
T Sanna ◽  
A Raggi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Control Group ◽  
Improve Quality ◽  
Adapted Physical Activity ◽  
Structured Interviews ◽  
Substantial Impact

Abstract Background Osteoporosis is a major health burden worldwide and require a multi-modal approach including exercise. Fractures have a substantial impact on quality of life (QoL) so exercise programs may to be conducted by trainers able to deal with this condition, because exercise alone, even if in the right dosage, seems to be not enough to improve QoL. A quasi-experimental pilot study performed to determine the feasibility and safety of an Adapted Physical Activity (APA) protocol specifically designed for osteoporotic women with vertebral fractures and its effect on QoL, with a specific focus on trainer's role. Methods The Experimental Group (EG) performed APA protocol 1hour twice a week for 6 months, while the Control Group (CG) received standard care. QoL was assessed at baseline and follow-up with ECOS-16 questionnaire and semi structured interviews to understand women perceptions regarding trainer's role. Using mixed-methods quantitative and qualitative data were analyzed using SPSS 5 and NVivo 12, respectively. Results 40 post-menopausal women (mean age: 67.6±4.6) divided in 2 groups EG = 22 and CG = 18, completed the study. At follow-up, EG improved significantly QoL (EG: -0.5±0.5 vs CG: 0.0±0.3 p = 0.02). The APA intervention had a significant effect on all the components of QoL, as measured by the disease-specific ECOS-16 questionnaire: Physical Component Summary (PCS) (EG: -0.4±0.5 vs CG: 0.0±0.4 p = 0.06) and Mental Component Summary (MCS) (EG: -0.5±0.6 vs CG: 0.1±0.5 p = 0.02). The interviews confirmed this result, emphasizing the key role of the trainer in improving their QoL. The adherence calculated as number of sessions performed compared to the sessions proposed was 75.8%. No injuries were observed. Conclusions The feasibility, the safety, and the positive effect of the proposed exercise protocol on QoL confirmed also by the interviews, show that principles of exercise education applied by trainers should be extended also to patients with other chronic condition. Key messages Trainers specifically educated, could be a means of achieving the goal improving people’s QoL, as they occupy the role of exercise experts and also an educational, relational and support role. The management of osteoporosis is multi-modal and includes exercise, often recommended as a beneficial non-pharmacological treatment to slow the rate of bone loss and improve quality of life.

scholarly journals Estudio cualitativo sobre discapacidad intelectual y trabajo protegido. La orientación como herramienta para mejorar la calidad de vida/Qualitative study of intellectual disability and sheltered work. Vocational guidance as a tool to improve quality of life

2018 ◽  
Vol 28 (3) ◽  
pp. 82
Author(s):  
Cristina Laborda Molla ◽  
Henar González Fernández
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
Intellectual Disability ◽  
Social Inclusion ◽  
Well Being ◽  
Improve Quality ◽  
Structured Interviews ◽  
Calidad De Vida ◽  
Discapacidad Intelectual

RESUMEN Introducción: El empleo es una herramienta clave para optimizar la inserción social y mejorar la calidad de vida (CV) de las personas con discapacidad intelectual (DI). Esta investigación estudia la calidad del empleo de personas con DI en Centros Especiales de Empleo (CEE) y en Centros Ocupacionales (CO). Método: Se desarrollaron 186 entrevistas semiestructuradas; 157 a empleados y 32 a empleadores de las dos tipologías de centros. Se recogió información referente a la naturaleza del centro, su organización, posibilidades de promoción y el nivel de bienestar de los trabajadores. Resultados: Los primeros datos muestran que existen tres elementos que determinan las posibilidades de desarrollo profesional de personas con DI y el nivel en la calidad de su empleo: la orientación profesional, la formación a lo largo de la vida y la intervención en procesos participativos. En función de ello se ha detectado que carecen de oportunidades para implicarse en los procesos de decisión de su vida sociolaboral, no tienen acceso generalizado a estudios postobligatorios reglados o de formación permanente y no existe el apoyo natural como elemento normalizador, entre otras. Conclusiones: La mejor ocupabilidad del colectivo depende de un proceso de orientación vital que abarque no sólo períodos de toma de decisiones y transición al mundo laboral, sino que se extienda a lo largo de toda su vida profesional. La finalidad es la mejora laboral para avanzar hacia la optimización de la calidad de vida.ABSTRACTIntroduction: Employment is a key tool to optimize social inclusion and improve quality of life (QoL) of people with Intellectual Disability (ID). This study explores the employment’s quality of workplace of people with ID in Special Employment Centers and Occupational Centers. Method: 186 semi-structured interviews were developed; 157 to employees and 32 to employers of the two types of centers. Information was collected regarding the nature of the center, its organization, possibilities for promotion and the level of workers well-being. Results: First data shows that there are three elements that determine the possibilities of professional development of people with ID and the level of quality of their employment: professional guidance, lifelong learning and intervention in participatory processes. As a result, they have been found to lack opportunities to become involved in the decision-making processes of their socio-labor life; they do not have widespread access to regulated post-compulsory studies or permanent training and there is no natural support as a normalizing element, among others. Conclusions: The better job placement of the collective depends on a process of vital orientation that includes not only periods of decision making and transition to work, but also extends throughout their professional life. The aim is to improve their work situation to advance towards the optimization of the quality of life.

Widening the horizons: Information space of the library for the blind as the resource to improve quality of life of visually impaired people

2020 ◽  
Author(s):  
Olga Novikova ◽  
Keyword(s):  
Quality Of Life ◽  
Continuing Education ◽  
Visually Impaired ◽  
Information Space ◽  
Advanced Training ◽  
Improve Quality ◽  
Visually Impaired People ◽  
Impaired People ◽  
Special Library

The special library acts as the cultural and educational center for visually impaired people, and as the center for continuing education. The multifunctional performance of the library is substantiated. The joint projects accomplished in cooperation with theatres and museums and aimed at integrating the visually impaired people into the society are described. Advanced training projects for the library professionals accomplished in 2018 are discussed.

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