scholarly journals 2315

2017 ◽  
Vol 1 (S1) ◽  
pp. 47-48
Author(s):  
Amy LeClair ◽  
Carolyn Rubin ◽  
Keyword(s):  
Local Community ◽  
Medical Center ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Community Organizations ◽  
Lessons Learned ◽  
Community Research ◽  
Community Based ◽  
Academic Researchers ◽  
The Impact

OBJECTIVES/SPECIFIC AIMS: Addressing Disparities in Asian Populations through Translation research (ADAPT) is a community-research partnership funded by the Tufts Clinical Translational Sciences Institute (CTSI). Founded in 2011, this collaborative brings together 7 Chinatown-serving community-based organizations and academic researchers with the goal of improving health for the local Chinatown community and beyond. The goal of this research project was to document the best practices, lessons learned, and process through which ADAPT has developed and grown. The aim of this project is to disseminate the model to other CTSAs who are currently engaged in METHODS/STUDY POPULATION: We used a combination of qualitative interviews and content analysis to gather data on the evolution of ADAPT over the last 5 years. Current members from both community organizations and the university/medical center were interviewed about their experiences participating in ADAPT. When possible, interviews were recorded and transcribed verbatim. Deidentified transcripts and administrative documents including meeting minutes, conference summaries, bylaws, and mission statements were coded using Dedoose analytic software. RESULTS/ANTICIPATED RESULTS: Established community-based participatory research (CBPR) principles, including mutual respect, transparency, and commitment, are viewed as necessary, but not sufficient. Patience—both with other members and with the group as a work in progress—is highlighted as being a necessary characteristic of participants. Time and funding are 2 of the most important resources, and the majority of members agree that there is no substitute for “skin in the game.” Attempts at last minute, opportunistic engagement were provided as examples of what had not worked. One ongoing tension is the balance between process and product. Individual members are beholden to organizations to different degrees, and the need to produce something in the form of publications or grant money can limit the amount of time members can commit to the collaborative. At the same time, these products are unlikely to materialize if members are not invested in the process of growing and sustaining the collective. DISCUSSION/SIGNIFICANCE OF IMPACT: Out of the 7 community organizations who currently participate in ADAPT, only 1 is explicitly focused on health in the traditional sense. The others are primary service organizations, but because they understand the impact of the social determinants of health on the local community—including housing, employment, education, nutrition, among other factors—the research collaborative is able to leverage the knowledge and expertise of the academic researchers and the community partners to focus on health topics most salient to the local Chinatown community.

scholarly journals Lessons learned from developing and sustaining a community-research collaborative through translational research

2018 ◽  
Vol 2 (2) ◽  
pp. 79-85 ◽  
Author(s):  
Amy LeClair ◽  
Jean J. Lim ◽  
Carolyn Rubin
Keyword(s):  
Translational Research ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Community Research ◽  
Structured Interviews ◽  
Community Based ◽  
Spheres Of Influence ◽  
Asian Populations ◽  
Current State

IntroductionThe goal of this project was to document the current state of a community-academic partnership, identifying early successes and lessons learned.MethodsWe employed qualitative methods, semi-structured interviews and document analysis, from 2 data sources to (1) show how the principles of community-based participatory research are enacted through the activities of Addressing Disparities in Asian Populations through Translational Research (ADAPT) and (2) elucidate the barriers and facilitators to adhering to those principles from the perspectives of the members themselves.ResultsIn addition to established community-based participatory research values, understanding individuals’ motivations for participation, the challenges aligning the priorities of community organizations and academic partners, and definitions of success are themes that emerged as key to the process of maintaining this partnership.ConclusionAs the emphasis on community-academic partnerships grows, there is potential for clinical and translational science awards to use community engagement to facilitate translational research beyond the traditional medical spheres of influence and to forge relationships with affected communities.

Innovating for Transformation in First Nations Health Using Community-Based Participatory Research

2018 ◽  
Vol 28 (7) ◽  
pp. 1036-1049 ◽  
Author(s):  
Grace Kyoon-Achan ◽  
Josée Lavoie ◽  
Kathi Avery Kinew ◽  
Wanda Phillips-Beck ◽  
Naser Ibrahim ◽  
...  
Keyword(s):  
First Nations ◽  
Participatory Research ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Study Data ◽  
Lessons Learned ◽  
Research Approach ◽  
Sustainable Change ◽  
Community Based ◽  
Participatory Research Approach

Community-based participatory research (CBPR) provides the opportunity to engage communities for sustainable change. We share a journey to transformation in our work with eight Manitoba First Nations seeking to improve the health of their communities and discuss lessons learned. The study used community-based participatory research approach for the conceptualization of the study, data collection, analysis, and knowledge translation. It was accomplished through a variety of methods, including qualitative interviews, administrative health data analyses, surveys, and case studies. Research relationships built on strong ethics and protocols to enhance mutual commitment to support community-driven transformation. Collaborative and respectful relationships are platforms for defining and strengthening community health care priorities. We further discuss how partnerships were forged to own and sustain innovations. This article contributes a blueprint for respectful CBPR. The outcome is a community-owned, widely recognized process that is sustainable while fulfilling researcher and funding obligations.

scholarly journals Building a Population Representative Pediatric Biobank: Lessons Learned From the Greater Cincinnati Childhood Cohort

2021 ◽  
Vol 8 ◽  
Author(s):  
Lisa J. Martin ◽  
Liza Bronner Murrison ◽  
Melinda Butsch Kovacic
Keyword(s):  
Medical Center ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Metropolitan Region ◽  
Sample Collection ◽  
Community Based ◽  
Hair Samples ◽  
Quality Of Research ◽  
Hispanic White

Background: Biobanks can accelerate research by providing researchers with samples and data. However, hospital-based recruitment as a source for controls may create bias as who comes to the hospital may be different from the broader population.Methods: In an effort to broadly improve the quality of research studies and reduce costs and challenges associated with recruitment and sample collection, a group of diverse researchers at Cincinnati Children's Hospital Medical Center led an institution-supported initiative to create a population representative pediatric “Greater Cincinnati Childhood Cohort (GCC).” Participants completed a detailed survey, underwent a brief physician-led physical exam, and provided blood, urine, and hair samples. DNA underwent high-throughput genotyping.Results: In total, 1,020 children ages 3–18 years living in the 7 county Greater Cincinnati Metropolitan region were recruited. Racial composition of the cohort was 84% non-Hispanic white, 15% non-Hispanic black, and 2% other race or Hispanic. Participants exhibited marked demographic and disease burden differences by race. Overall, the cohort was broadly used resulting in publications, grants and patents; yet, it did not meet the needs of all potential researchers.Conclusions: Learning from both the strengths and weaknesses, we propose leveraging a community-based participatory research framework for future broad use biobanking efforts.

scholarly journals Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine

2020 ◽  
Author(s):  
Dana M Carroll ◽  
Carol Hernandez ◽  
Greg Braaten ◽  
Ellen Meier ◽  
Pamala Jacobson ◽  
...  
Keyword(s):  
Health Disparities ◽  
Personalized Medicine ◽  
American Indian ◽  
Alaska Native ◽  
Genetic Research ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Community Based ◽  
Academic Researchers ◽  
And Personalized Medicine

Increasing American Indian/Alaska Native (AI/AN) representation in genetic research is critical to ensuring that personalized medicine discoveries do not widen AI/AN health disparities by only benefiting well-represented populations. One reason for the under-representation of AIs/ANs in research is warranted research distrust due to abuse of some AI/AN communities in research. An approach to easing the tension between protecting AI/AN communities and increasing the representation of AI/AN persons in genetic research is community-based participatory research. This approach was used in a collaboration between a tribe and academic researchers in efforts to increase AI/AN participation in genetic research. From the lessons learned, the authors propose recommendations to researchers that may aid in conducting collaborative and respectful research with AI/AN tribes/communities and ultimately assist in increasing representation of AIs/ANs in personalized medicine discoveries.

scholarly journals Case Study in Chamorro Community and Academic Engagement for a Community-Partnered Research Approach

2010 ◽  
Vol 8 (SI) ◽  
pp. 39-51 ◽  
Author(s):  
Diana M. Tisnado ◽  
Lola Sablan-Santos ◽  
Linda Guevara ◽  
Lourdes Quitugua ◽  
Keith Castro ◽  
...  
Keyword(s):  
Research University ◽  
Local Community ◽  
Academic Research ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Lessons Learned ◽  
Relationship Building ◽  
Research Approach ◽  
Community Based ◽  
High Quality Research

Objective: We describe the development of a community and academic research partnership, share reflections on processes for collaborations, and identify key factors for establishing strong and effective relationships to foster high-quality research. Background: A community-based participatory research (CBPR) effort evaluating a community-based patient navigation program assisting Chamorro women to access breast cancer services in Southern California served as the foundation for the development of the community-academic partnership. Methods: Using a CBPR approach focusing on active involvement of community members, organizational representatives, and academic researchers in all aspects of research process, faculty from a research university and a local community-based organization were brought together to build a partnership. Community and academic partners engaged in a series of meetings where dialogue focused on developing and nurturing trust and shared values, respect for community knowledge, and establishing community-defined and prioritized needs and goals. Partners have also focused on defining and developing explicit structures and policies to implement an equal partnership. Results: Experiences and lessons learned are shared, reflecting the processes of relationship building, and planning and implementing preliminary research steps. Lessons Learned: Adequate time for relationship-building, open and honest communication, flexibility, and ongoing examination of assumptions are keys to developing successful CBPR partnerships.

scholarly journals Community-Based Participatory Research with Invisible, Geographically-Dispersed Communities: Partnering with Lesbian, Gay, Bisexual, Transgender and Queer Communities on the California Central Coast

2019 ◽  
Vol 11 (1) ◽  
pp. 14-32 ◽  
Author(s):  
Laury Oaks ◽  
Tania Israel ◽  
Kristin J. Conover ◽  
Alise Cogger ◽  
Todd Raymond Avellar
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Community Action ◽  
Lessons Learned ◽  
Community Research ◽  
Collaborative Partnerships ◽  
Community Members ◽  
Community Based ◽  
Central Coast ◽  
University Partnerships

This article reports on the community-based participatory research (CBPR) process of a 3.5-year studydocumenting lesbian, gay, bisexual, transgender, and queer (LGBTQ) community members’ perceptions oflocal LGBTQ communities on the Central Coast of California. This three-phase study consisted of online andpaper-and-pen surveys to analyze community strengths, challenges, priorities, and feelings of connection;collaborative interpretation of survey results through community forums; and a regional “LGBTQ Summit” toenvision and initiate data-based actions to address community priorities. The focus throughout the project wason establishing collaborative partnerships to plan and guide the project, cultivating community participationin interpreting and disseminating findings, and honoring diverse LGBTQ community members’ voicesthrough data-driven community action. This article documents lessons learned about building and facilitatingcommunity-university partnerships, organizing and maintaining a sustained community research collaborative,engaging community participation, and ultimately, creating lasting, community-driven interventions.

Enhancing racial equity in LIS research by increasing representation of BIPOC

2021 ◽  
Vol 37 (2) ◽  
pp. 247-256
Author(s):  
Charles R. Senteio ◽  
Kaitlin E. Montague ◽  
Bettina Campbell ◽  
Terrance R. Campbell ◽  
Samantha Seigerman
Keyword(s):  
Social Justice ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Health Inequity ◽  
Lessons Learned ◽  
Social Injustice ◽  
Racial Equity ◽  
Community Based ◽  
Community Partners ◽  
Racial Injustice

The escalation of discourse on racial injustice prompts novel ideas to address the persistent lack of racial equity in LIS research. The underrepresentation of BIPOC perspectives contributes to the inequity. Applying the Community Based Participatory Research (CBPR) approach meaningfully engages BIPOC to help guide LIS investigations that identify evolving needs and concerns, such as how systematic racism may contribute to social justice issues like environmental and health inequity. Engaging with BIPOC, using the CBPR approach, can help address racial equity in LIS because it will result in increased racial representation which enables incorporation of the perspectives and priorities of BIPOC. This shift to greater engagement is imperative to respond to escalating attention to social injustice and ensure that these central issues are adequately reflected in LIS research. The discipline is positioned to help detail the drivers and implications of inequity and develop ways to address them. We underscore the importance of working across research disciplines by describing our CBPR experience engaging with BIPOC in LIS research. We highlight the perspectives of community partners who have over two decades of experience with community-based LIS research. We offer lessons learned to LIS researchers by describing the factors that make these initiatives successful and those which contribute to setbacks.

A Socially Just Leadership Approach to Community-Partnered Research for Reducing Health Disparities

2017 ◽  
Vol 45 (6) ◽  
pp. 781-809 ◽  
Author(s):  
Carolyn M. Tucker ◽  
Jaime L. Williams ◽  
Julia Roncoroni ◽  
Martin Heesacker
Keyword(s):  
Health Disparities ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Research Approach ◽  
Community Based ◽  
Guiding Principles ◽  
University Partnership ◽  
Partnership Approach ◽  
Leadership Approaches ◽  
Counseling Psychologists

Significant health disparities continue to plague many groups of people who have been systematically oppressed and largely unrepresented in health research. Community-based participatory research (CBPR) is a collaborative research approach that has been shown to be effective in addressing health disparities; a community–university partnership approach can be used to conduct this research. Counseling psychologists are well suited to establish and lead CBPR partnerships, yet there is a paucity of research to guide them in utilizing effective leadership approaches when conducting CBPR for reducing health disparities. Therefore, the aims of the present study were to (a) review existing leadership models applicable to conducting CBPR; (b) identify guiding principles of socially just leadership that emerged from the aforementioned review; (c) offer an example of how the guiding principles were used in a community–university partnership, highlighting challenges, solutions, and lessons learned; and (d) discuss the benefits of socially just leadership for counseling psychologists.

Modeling the Principles of Community-Based Participatory Research in a Community Health Assessment Conducted by a Health Foundation

2009 ◽  
Vol 10 (1) ◽  
pp. 67-75 ◽  
Author(s):  
Karen Jaynes Williams ◽  
Patricia Gail Bray ◽  
Carrie K. Shapiro-Mendoza ◽  
Ilana Reisz ◽  
Jane Peranteau
Keyword(s):  
Community Health ◽  
Participatory Research ◽  
Health Assessment ◽  
Community Based Participatory Research ◽  
Local Area ◽  
Lessons Learned ◽  
Assessment Model ◽  
Community Based ◽  
Community Health Assessment ◽  
Practical Applications

The authors discuss strategies used and lessons learned by a health foundation during development of a community health assessment model incorporating community-based participatory research (CBPR) approaches. The assessment model comprises three models incorporating increasing amounts of CPBR principles. Model A combines local-area analysis of quantitative data, qualitative information (key informants, focus groups), and asset mapping. Model B, a community-based participatory model, emphasizes participatory rural appraisal approaches and quantitative assessment using rapid epidemiological assessment. Model C, a modified version of Model B, is financially more sustainable for our needs than Model B. The authors (a) describe origins of these models and illustrate practical applications and (b) explore the lessons learned in their transition from a traditional, nonparticipatory, quantitative approach to participatory approaches to community-health assessment. It is hoped that this article will contribute to the growing body of knowledge of practical aspects of incorporating CBPR approaches into community health assessments.

scholarly journals Engage for Equity: A Long-Term Study of Community-Based Participatory Research and Community-Engaged Research Practices and Outcomes

2020 ◽  
Vol 47 (3) ◽  
pp. 380-390 ◽  
Author(s):  
Nina Wallerstein ◽  
John G. Oetzel ◽  
Shannon Sanchez-Youngman ◽  
Blake Boursaw ◽  
Elizabeth Dickson ◽  
...  
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Community Support ◽  
Lessons Learned ◽  
Theory Of Change ◽  
Community Based ◽  
Community Engaged Research ◽  
The Past ◽  
Long Term Study ◽  
The University

Community-based participatory research (CBPR) and community-engaged research have been established in the past 25 years as valued research approaches within health education, public health, and other health and social sciences for their effectiveness in reducing inequities. While early literature focused on partnering principles and processes, within the past decade, individual studies, as well as systematic reviews, have increasingly documented outcomes in community support and empowerment, sustained partnerships, healthier behaviors, policy changes, and health improvements. Despite enhanced focus on research and health outcomes, the science lags behind the practice. CBPR partnering pathways that result in outcomes remain little understood, with few studies documenting best practices. Since 2006, the University of New Mexico Center for Participatory Research with the University of Washington’s Indigenous Wellness Research Institute and partners across the country has engaged in targeted investigations to fill this gap in the science. Our inquiry, spanning three stages of National Institutes of Health funding, has sought to identify which partnering practices, under which contexts and conditions, have capacity to contribute to health, research, and community outcomes. This article presents the research design of our current grant, Engage for Equity, including its history, social justice principles, theoretical bases, measures, intervention tools and resources, and preliminary findings about collective empowerment as our middle range theory of change. We end with lessons learned and recommendations for partnerships to engage in collective reflexive practice to strengthen internal power-sharing and capacity to reach health and social equity outcomes.

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