Acceptability and willingness to participate in the Tailored Activity Program: perceptions of people living with dementia, their care partners and health professionals

2020 ◽  
Vol 21 (3) ◽  
pp. 259-273
Author(s):  
Sally Bennett ◽  
Catherine Travers ◽  
Jacki Liddle ◽  
Sandra Smith ◽  
Lindy Clemson ◽  
...  

AbstractObjectives:The Tailored Activity Program (TAP) is an evidence-based occupational therapist-led intervention for people living with dementia and their care partners at home, developed in the USA. This study sought to understand its acceptability to people living with dementia, their care partners, and health professionals, and factors that might influence willingness to participate prior to its implementation in Australia.Methods:This study used qualitative descriptive methods. Semi-structured interviews were conducted with people living with dementia in the community (n = 4), their care partners (n = 13), and health professionals (n = 12). People living with dementia were asked about health professionals coming to their home to help them engage in activities they enjoy, whereas care partners’ and health professionals’ perspectives of TAP were sought, after it was described to them. Interviews were conducted face-to-face or via telephone. All interviews were recorded and transcribed. Framework analysis was used to identify key themes.Results:Analysis identified four key themes labelled: (i) TAP sounds like a good idea; (ii) the importance of enjoyable activities; (iii) benefits for care partners; and (iv) weighing things up. Findings suggest the broad, conditional acceptability of TAP from care partners and health professionals, who also recognised challenges to its use. People living with dementia expressed willingness to receive help to continue engaging in enjoyable activities, if offered.Discussion:While TAP appeared generally acceptable, a number of barriers were identified that must be considered prior to, and during its implementation. This study may inform implementation of non-pharmacological interventions more broadly.

2021 ◽  
Vol 18 ◽  
Author(s):  
Andrew William Makkink ◽  
Christopher Owen Alexander Stein ◽  
Stevan Raynier Bruijns

Background Emergency centre handover usually takes place between the pre-hospital emergency care personnel who deliver the handover and the emergency centre personnel who receive the handover. Handover that is not effective may present risks to patient safety. One factor that may affect handover delivery is the process of handover within a busy emergency centre. Methods The data reported on in this study formed the qualitative component of a sequential explanatory mixed methods study. It used face-to-face, semi-structured interviews to gather data. Fifteen interviews were conducted with pre-hospital emergency care personnel from a range of qualification and scopes in South Africa. Interviews were transcribed verbatim and imported into Atlas.ti® for coding and analysis using a qualitative descriptive methodology. Results Pre-hospital emergency care participants identified a lack of emergency centre staff available to receive handover as a barrier to effective handover and attributed this to emergency centres being overworked and understaffed. This potentiated interruptions to handover and having to deliver multiple handovers for the same patient. Pre-hospital emergency care participants indicated a preference for handing over directly to a doctor. Conclusion Several potential process barriers to effective emergency centre handover were identified, including lack of personnel to receive handover, interruptions and the need to perform multiple handovers for the same patient. Generally, these barriers were attributed to the busy understaffed and overworked nature of emergency centres. We would encourage future research in emergency centre handover, specifically from the perspective of the personnel who receive handovers.


2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1297.2-1297
Author(s):  
J. Protudjer ◽  
C. Billedeau ◽  
C. Stavropoulou ◽  
A. Cholakis ◽  
R. Schroth ◽  
...  

Background:Rates of periodontal disease and tooth loss are increased in rheumatoid arthritis (RA). Periodontal disease may exacerbate RA inflammation and complicate RA care. Understanding factors that contribute to the increased burden of periodontal disease in RA is critical to improving oral health and possibly arthritis outcomes. People with RA may have unique needs and/or barriers to maintain oral health.Objectives:To determine from people with RA what are their experiences and perceptions about their oral health, their most important questions relating to oral health, and how they wish to receive oral health information.Methods:Semi-structured interviews were conducted with RA patients. Recorded interview transcripts underwent iterative content analysis. Transcripts were initially reviewed to develop a coding guide. Latent content, or larger themes, were then applied to the transcripts. Constructs were considered saturated when no new themes were identified with subsequent interviews. We report identified themes with representative quotes.Results:Interviews with 11 RA (10[91%] female; all on RA medication) averaged 19 minutes (range 8-31 minutes) and were mostly conducted face-to-face. Many believed RA medication contributed to dry mouth. Most participants had not previously considered other links between oral health and RA. Themes identified included the need for complicated oral health routines, barriers of cost and access to dental care, and shame relating to oral health (Table 1). Participants preferred to receive oral health education from their rheumatologists or dentists over printed or online resources.Conclusion:RA patients have unique needs relating to oral health and report poor oral quality of life. Strategies to optimize oral health in RA may include educational tools for optimizing oral self-care appropriate for RA, and improved access to oral care professionals who are aware of the needs of arthritis patients.Disclosure of Interests:Jennifer Protudjer: None declared, Corrie Billedeau: None declared, Chrysi Stavropoulou: None declared, Anastasia Cholakis: None declared, Robert Schroth: None declared, Carol Hitchon Grant/research support from: UCB Canada; Pfizer Canada


2021 ◽  
Vol 12 ◽  
Author(s):  
Anouk S. Schuit ◽  
Karen Holtmaat ◽  
Valesca van Zwieten ◽  
Eline J. Aukema ◽  
Lotte Gransier ◽  
...  

BackgroundCancer patients often suffer from psychological distress during or after cancer treatment, but the use of psycho-oncological care among cancer patients is limited. One of the reasons might be that the way psycho-oncological care is organized, does not fit patients’ preferences. This study aimed to obtain detailed insight into cancer patients’ preferences regarding the organization of psycho-oncological care.Methods18 semi-structured interviews were conducted among cancer patients. Patients completed psycho-oncological treatment between 2015 and 2020 at the psychology department in a general hospital or a center specialized in psychological cancer care in the Netherlands. The interview comprised questions related to preferences regarding the institute where to receive treatment, the psychologist who provides treatment, and the type of treatment, as well as questions related to experienced barriers and facilitators to receive psycho-oncological care. Interviews were digitally recorded and transcribed verbatim. Data were analyzed individually by two coders into key issues and themes.ResultsRegarding the institute, easy accessibility and prompt availability of psychol-oncological care were considered important. Regarding the psychologist, most participants had a strong preference to be treated by a psychologist specialized in cancer or other somatic diseases. Individual face-to-face therapy was preferred above other types of treatment. Several barriers were mentioned to receive psycho-oncological treatment, among which poor accessibility to psycho-oncological care, lack of knowledge on the possibilities for psycho-oncological treatment, and stigma. Most frequently mentioned facilitators were being assertive to ask for help, having a good relationship with the healthcare professional, and the integration of psycho-oncological support within medical cancer care.ConclusionFrom the patient’s perspective, the organization of psycho-oncological care for cancer patients should focus on easy accessibility and availability, delivered by specialized psychologists, and integration in medical cancer care. Online and group therapy are acceptable, but individual face-to-face therapy is preferred. It is warranted to increase awareness on psycho-oncological care targeting both patients and healthcare providers.


2019 ◽  
Vol 28 (11) ◽  
pp. 738-756
Author(s):  
Christine J. Moffatt ◽  
Susie Murray ◽  
Aimee Aubeeluck ◽  
Isabelle Quere

Objective: The purpose of this study was to explore the challenges of communication between patients and health professionals, and patient adherence to treatment for hard-to-heal wounds when using negative wound pressure therapy (NPWT). Methods: Face-to-face, semi-structured interviews were conducted with patients undergoing NPWT. Specific features of the NPWT device were the priority for discussion although other factors central to communication and adherence were also explored. Results: A total of 24 patients took part in the study. Data saturation was achieved during the analysis. Patients required ongoing support to understand complex and often protracted treatment and this was particularly important when specialist technology was used. A distinction was highlighted between those who decided not to adhere with therapy and those who did so unintentionally. Participants faced difficulties in their communications with health professionals and in ensuring their needs were listened to and addressed. Conclusion: Further research is needed to achieve a better understanding of this distinction and to evaluate interventions which can sustain adherence behaviours. Further exploration of how to establish concordant patient/health professional communications is warranted.


2006 ◽  
Vol 20 (3) ◽  
pp. 171-175 ◽  
Author(s):  
Bee L Wee ◽  
PG Coleman ◽  
R Hillier ◽  
SH Holgate

Background: Death rattle is the noisy, rattling breathing that occurs in many dying patients. Health professionals intervene because the sound is said to distress attendant relatives. We found no formal study to confirm or refute relatives’ distress, so we decided to ask the relatives. Method: Face-to-face semi-structured interviews with 27 bereaved relatives to investigate their experience of terminal care and what their response had been to the sound of death rattle if this had occurred. Interview transcripts were subjected to thematic content analysis. Results: We found that almost half of the 12 relatives who had heard the sound of death rattle had been distressed by it. The others were either neutral about the sound or found it a helpful signal of impending death. Conclusion: We confirmed that some relatives do find it distressing to hear the sound of death rattle. However, our expectation that relatives are universally disturbed by this sound was unfounded. There is no justification for a ‘blanket’ approach to therapeutic intervention when death rattle occurs. A better understanding is required of how relatives make sense of the sound of death rattle.


2021 ◽  
Vol 8 (2) ◽  
pp. 193-205
Author(s):  
Kartono Kartono

The Covid-19 pandemic that hit Indonesia had a direct impact on learning activities in elementary schools, including science learning, so that face-to-face learning was shifted to online learning. This study aims to analyze online learning activities, supporting factors, obstacles faced, and the effectiveness of online learning during the Covid-19 pandemic. This research was conducted an elementary school of Pontianak Kota Regency, Pontianak City from March to April 2021. This study used a qualitative descriptive method to provide an overview of online learning an elementary school of Pontianak Kota Regency. This study uses data from semi-structured interviews given to classroom teachers, students, and parents. Data analysis used the analysis technique of Miles & Huberman through four stages, namely data collecting, data reduction, data presentation, and conclusion drawing/verification. The results of this study show that the Covid-19 pandemic has an impact on learning activities. Online learning is carried out using Google Meet and WhatsApp media. Supporting factors and obstacles in online learning, namely communication tools, internet networks, student motivation, and support from parents. Online learning is felt to be less effective because the material is not fully conveyed to students. Most of the activities are carried out only by giving material briefly and assigning assignments and collecting assignments. Thus, there is a need for breakthrough steps that teachers need to take so that learning is not monotonous and can be meaningful for students even in a state of online learning. Abstrak   Adanya pandemi Covid-19 yang melanda Indonesia secara langsung sangat berdampak pada kegiatan pembelajaran di sekolah dasar, termasuk pembelajaran IPA sehingga pembelajaran tatapp muka dialihkan ke pembelajaran online. Penelitian ini bertujuan untuk menganalisis secara daring kegiatan pembelajaran, faktor pendukung, kendala yang dihadapi, dan keefektifan pembelajaran daring selama Pandemi Covid-19. Penelitian ini dilaksanakan di sekolah dasar Kecamatan Pontianak Kota dari bulan Maret sampai April 2021. Ini Penelitian ini menggunakan metode deskriptif kualitatif untuk memberikan gambaran pembelajaran online di sekolah dasar Kecamatan Pontianak Kota. Penelitian ini menggunakan data dari wawancara semi terstruktur yang diberikan kepada guru kelas, siswa, dan orang tua siswa. Analisis data menggunakan teknik analisis Miles & Huberman melalui empat tahap, yaitu pengumpulan data, reduksi data, penyajian data, dan penarikan kesimpulan/verifikasi. Hasil dari penelitian ini menunjukkan pandemi Covid-19 berdampak pada kegiatan pembelajaran. Pembelajaran secara daring dilakukan dengan menggunakan media Google Meet dan WhatsApp. Factor pendukung dan yang menjadi hambatan dalam pembelajaran online, yaitu alat komunikasi, jaringan internet, motivasi siswa, dan dukungan dari orang tua. Pembelajaran daring dirasakan kurang efektif karena materi tidak tersampaikan seluruhnya kepada siswa. Sebagian besar kegiatan dilakukan hanya dengan memberikan materi secara singkat dan pemberian tugas serta mengumpulkan tugas. Dengan demikian perlu adanya langkah terobosan yang perlu dilakukan guru agar pembelajaran tidak monoton dan bisa bermakna bagi siswa meskipun dalam keadaan pembelajaran daring. Kata Kunci:  pembelajaran daring, IPA, pandemi, sekolah dasar


2018 ◽  
Vol 24 (6) ◽  
pp. 496
Author(s):  
Hannah Xu ◽  
Christina Geros ◽  
Emma Turner ◽  
Mikaela Egan ◽  
Kristie Cocotis ◽  
...  

Diabetes contributes considerably to the health disparities in the Aboriginal population. To address the lack of Aboriginal-specific diabetes education tools, Feltman was designed for health professionals to deliver diabetes prevention and management information. This qualitative study aims to explore how this resource was used and its perceived effect on diabetes prevention and management in Victorian Aboriginal communities. Convenience sampling was used to recruit 18 participants (n=6 were Aboriginal) who had attended Feltman training between 2010 and 2016. Semi-structured interviews conducted via telephone or face-to-face were audio-recorded, transcribed and analysed via content analysis. Content analysis identified three main categories regarding Feltman: (1) utilisation in Aboriginal and mainstream health services; (2) as a comprehensive, engaging tool that supports understanding of diabetes; and (3) the barriers and challenges to Feltman’s use. Overall, Feltman was regarded as a culturally appropriate diabetes education tool that is visual, tactile, engaging, supportive of health literacy and perceived to enhance Community members’ understanding of diabetes prevention and management. This is the first study to provide insight into Feltman’s implementation; adding to the evidence-base for Aboriginal-specific diabetes education tools.


Author(s):  
María Lorena Ballesteros-Ibarra ◽  
Martín Alonso Mercado-Varela ◽  
Nancy Janett García-Vázquez

The purpose of this study was to know the perspectives that a group of teachers from the state of Sonora, Mexico, have on online training and on themassive open online courses(MOOCs)"Key Learning Collection". These MOOCs were designed to make basic education teachers aware of the approaches of the new educational model derived from the 2013 reform. The approach applied in the research was the qualitative one; the data was collected through semi-structured interviews with six primary school teachers. Teachers' perspectives regarding online training focused on the categories of analysis: online versus face-to-face in-service teacher training, participation requirements of online in-service teacher training, and challenges of online in-service teacher training; and regarding MOOCs, they were categorized into: didactic-pedagogical dimension of the courses, massiveness and absence of tutor, implemented technological infrastructure, and the role of the school authority for its implementation. The findings show an open position of teachers towards online training;,however, their willingness to participate in it is influenced by their previous experiences in this modality. Likewise, the findings highlight the need to promote a joint commitment, both of educational authorities and teachers, to successfully implement massive teacher training strategies such as MOOCs.


2020 ◽  
Author(s):  
Nader Aghakhani ◽  
Violeta Lopez ◽  
Naser Parizad ◽  
Rahim Baghaei

Abstract Background: Suicide-attempts have increased across the world and have become higher among females. There has been a high prevalence of self-immolation in Iran, mostly young married women admitted to the burn centers. This study aimed to explore the factors and experiences of self-immolation in Iranian married women to develop prevention strategies to prevent the personal, social, and economic impacts of suicide and suicide attempts. Methods: A qualitative descriptive approach using open-ended, in-depth, face-to-face interviews was conducted in a purposive sample of 16 married Iranian women aged 16 to 40 years in the burn centers in Urmia city, a place in northwest Iran. Conventional content analysis was used to analyze the data.Results: Three themes emerged from the data, including (1) antecedents of self-immolation, (2) suicidal ideation method, and (3) pathway to recovery. Each of these themes is supported by sub-themes.Conclusions: The study highlights the need for health professionals to help and support self-immolation survivors to continue their normal lives. A comprehensive supportive program based on survivors’ needs to support their pathways to recovery in all its complexities is recommended. Health professionals should also not forget that the family of the survivors also will need help to overcome this trauma. A family counseling program may also be provided.


Author(s):  
Pubali Ghosh ◽  
Mark Bray

Purpose Private supplementary tutoring is expanding fast around the world. Recognising that examination boards are major shapers of curricular load, the purpose of this paper is to identify the roles of examination boards at Grades 8, 9 and 10 in Bengaluru, India. Two boards were chosen, with one having a heavier perceived curricular load than the other. Design/methodology/approach The study used mixed methods with a questionnaire survey of 687 students in Grades 8, 9 and 10, and 51 face-to-face, semi-structured interviews. Findings Perhaps surprisingly, the findings did not reveal significant differences in tutoring demand by students. Both groups viewed the board examinations as having high stakes, and accordingly invested in extensive private tutoring. Competition emanating from credentialism was the main driver of the decision to receive tutoring among both cohorts. Originality/value Although previous studies have explored various components of demand for tutoring, to the authors’ knowledge, this is the first to explore the impact of examination boards on demand for tutoring. Since the system of schools being affiliated to examination boards is common not only in India but also in many other countries, the study has broad international relevance.


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