MINDSET: Clinical feasibility of utilizing the revised epilepsy self-management tool for Spanish speaking patients

2018 ◽  
Vol 88 ◽  
pp. 218-226 ◽  
Author(s):  
Charles Begley ◽  
Jenny Chong ◽  
Ross Shegog ◽  
Refugio Sepulveda ◽  
Noelia Halavacs ◽  
...  
Keyword(s):  
Management Tool ◽  
Self Management ◽  
Spanish Speaking

MINDSET: Clinic-based decision support demonstrates longitudinal efficacy for increased epilepsy self-management adherence among Spanish speaking patients

2020 ◽  
Vol 113 ◽  
pp. 107552
Author(s):  
Ross Shegog ◽  
Charles Begley ◽  
Jenny Chong ◽  
Refugio Sepulveda ◽  
Robert Addy ◽  
...  
Keyword(s):  
Decision Support ◽  
Self Management ◽  
Spanish Speaking

scholarly journals Effectiveness of an eHealth self-management tool for older adults with multimorbidity (KeepWell): protocol for a hybrid effectiveness–implementation randomised controlled trial

BMJ Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. e048350
Author(s):  
Monika Kastner ◽  
Julie Makarski ◽  
Leigh Hayden ◽  
Jemila S Hamid ◽  
Jayna Holroyd-Leduc ◽  
...  
Keyword(s):  
Older Adults ◽  
Chronic Disease ◽  
Randomised Controlled Trial ◽  
Disease Management ◽  
Chronic Conditions ◽  
Controlled Trial ◽  
Management Tool ◽  
Self Management ◽  
Plain Language ◽  
Randomised Controlled

IntroductionIn response to the burden of chronic disease among older adults, different chronic disease self-management tools have been created to optimise disease management. However, these seldom consider all aspects of disease management are not usually developed specifically for seniors or created for sustained use and are primarily focused on a single disease. We created an eHealth self-management application called ‘KeepWell’ that supports seniors with complex care needs in their homes. It incorporates the care for two or more chronic conditions from among the most prevalent high-burden chronic diseases.Methods and analysisWe will evaluate the effectiveness, cost and uptake of KeepWell in a 6-month, pragmatic, hybrid effectiveness–implementation randomised controlled trial. Older adults age ≥65 years with one or more chronic conditions who are English speaking are able to consent and have access to a computer or tablet device, internet and an email address will be eligible. All consenting participants will be randomly assigned to KeepWell or control. The allocation sequence will be determined using a random number generator.Primary outcome is perceived self-efficacy at 6 months. Secondary outcomes include quality of life, health background/status, lifestyle (nutrition, physical activity, caffeine, alcohol, smoking and bladder health), social engagement and connections, eHealth literacy; all collected via a Health Risk Questionnaire embedded within KeepWell (intervention) or a survey platform (control). Implementation outcomes will include reach, effectiveness, adoption, fidelity, implementation cost and sustainability.Ethics and disseminationEthics approval has been received from the North York General Hospital Research and Ethics Board. The study is funded by the Canadian Institutes of Health Research and the Ontario Ministry of Health. We will work with our team to develop a dissemination strategy which will include publications, presentations, plain language summaries and an end-of-grant meeting.Trial registration numberNCT04437238.

Diabetes self-management among low-income spanish-speaking patients: A pilot study

2005 ◽  
Vol 29 (3) ◽  
pp. 225-235 ◽  
Author(s):  
Milagros C. Rosal ◽  
Barbara Olendzki ◽  
George W. Reed ◽  
Olga Gumieniak ◽  
Jeffrey Scavron ◽  
...  
Keyword(s):  
Pilot Study ◽  
Low Income ◽  
Self Management ◽  
Spanish Speaking

Diabetes affects everything: Type 2 diabetes self-management among Spanish-speaking hispanic immigrants

2017 ◽  
Vol 40 (6) ◽  
pp. 541-554 ◽  
Author(s):  
Cheryl A. Smith-Miller ◽  
Diane C. Berry ◽  
Cass T. Miller
Keyword(s):  
Type 2 Diabetes ◽  
Self Management ◽  
Hispanic Immigrants ◽  
Spanish Speaking

scholarly journals Effectiveness of an online self-management tool, OPERAS (an On-demand Program to EmpoweR Active Self-management), for people with rheumatoid arthritis: a research protocol

2019 ◽  
Author(s):  
Johnathan Tam ◽  
Diane Lacaille ◽  
Teresa Liu-Ambrose ◽  
Chris D Shaw ◽  
Hui Xie ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Physical Activity ◽  
Disease Activity ◽  
Disease Status ◽  
Management Tool ◽  
Self Management ◽  
Secondary Outcome ◽  
On Demand ◽  
Management Ability ◽  
Web App

Abstract Background. Active self-management is a process where patients are fully engaged in managing their health in daily life by having access to contextualized health data and tailored guidance to support a healthy lifestyle. The current study aims to determine whether an e-health intervention which incorporates symptom/disease activity monitoring and physical activity counselling can improve self-management ability in patients with rheumatoid arthritis (RA). Methods. The Empowering active self-management of arthritis: Raising the bar with OPERAS (an On-demand Program to EmpoweR Active Self-management) project is a randomized controlled trial which uses a delayed control design. 134 participants with RA will be randomized to either start the intervention immediately (Immediate Group) or start 6 months later (Delayed Group). The intervention involves: 1) use of a Fitbit-compatible web app to record and monitor their RA disease activity, symptoms and time spent on physical activity and a Fitbit; 2) group education and individual counselling by a physiotherapist (PT), and 3) 6 phone calls with a PT. The primary outcome measure is self-management ability measured by the Patient Activation Measure. Secondary outcome measures include disease status, fatigue, pain, depressive symptoms, and characteristics of habitual behavior. In addition, time spent in physical activity and sedentary activity with a wearable multi-sensor device (SenseWear Mini). Following the 6-month intervention, we will interview a sample of participants to examine their experiences with the intervention. Discussion. The results of this study will help to determine whether this technology-enhanced self-management intervention improves self-management ability and their health outcomes for people living with RA. A limitation of this study is that participants will need to self-report their symptoms, disease status, and treatment use through questionnaires on the OPERAS web app. The user-friendly interface, reminder emails from the research staff, and tailored guidance from PTs will encourage participants to actively engage with the app. Trial Registration. Date of last update in ClinicalTrials.gov: January 2, 2019 ClinicalTrials.gov Identifier: NCT03404245

WED 066 Web-based media as a self-management tool for people with epilepsy

2018 ◽  
Vol 89 (10) ◽  
pp. A8.1-A8
Author(s):  
McKinlay Alison ◽  
Ridsdale Leone
Keyword(s):  
Social Networking Sites ◽  
Service Providers ◽  
Management Tool ◽  
Self Management ◽  
Online Information ◽  
Web Based ◽  
Related Information ◽  
Health Service Providers ◽  
Potential Benefits ◽  
Age Range

BackgroundThere is little evidence on how people with epilepsy (PWE) use web-based media in self-management of their condition. This study focused on the benefits/risks for PWE using social networking sites and web-based media.MethodsWe recruited 14 PWE who had volunteered after seeing information provided by Epilepsy Action, UK. We asked open-ended questions about online media use. Interviews lasted 60–90 min. Sessions were recorded, transcribed, and thematically analysed using Nvivo.ResultsSeven men and seven women participated, age range: 33–73, average diagnosis length was 25 years. Twelve participants used web-based media to gather information about their epilepsy. Seven used apps to manage their epilepsy by logging seizures or medication reminders. Six participants were hesitant to use web-based media due to privacy concerns. Four participants felt that epilepsy was underrepresented or misrepresented online. Three participants preferred traditional sources of epilepsy-related information.DiscussionResults show the value of web-based media in providing information and support to PWE, with the caveat that concerns around privacy and disclosure can undermine potential benefits. Health service providers and advocacy groups can assist by ensuring online information is accurate and up-to-date. Further research may help in developing understanding and future services.

Defining user needs for an electronic tool to improve chemotherapy-related toxicity management.

2016 ◽  
Vol 34 (7_suppl) ◽  
pp. 157-157 ◽  
Author(s):  
Rebecca M. Prince ◽  
Laura Parente ◽  
Anthony Soung Yee ◽  
Melanie Powis ◽  
Katherine Enright ◽  
...  
Keyword(s):  
Focus Groups ◽  
Field Study ◽  
Current System ◽  
Primary Care Providers ◽  
Management Tool ◽  
Self Management ◽  
User Needs ◽  
Care Providers ◽  
Electronic Tool ◽  
Management Advice

157 Background: Cancer drugs are associated with toxicities which can negatively impact patients’ (pts) quality of life, outcomes and increase acute care use (ACU). There is increasing interest in leveraging technology to solve clinical problems in healthcare. We hypothesized that an electronic tool (toxicity module) targeting management of chemotherapy toxicities could decrease ACU by facilitating more effective symptom management. Methods: Participatory design methodology consisting of end user needs assessment through ethnographic field study (shadowing and in-depth interviews) and focus groups was used to inform design of an interactive prototype toxicity module. Oncology pts and their caregivers, and health care providers (HCPs) including oncologists, oncology nurses and primary care providers were included in all stages of development. Contemporaneous notes were taken during ethnography while focus groups were also audio recorded. Thematic analysis through ideation sessions and time-of-day exercises allowed identification of overarching issues. Results: Eight pts and 8 HCPs participated in the ethnographic field study. Two focus groups, one with 7 pts, one with 4 HCPs were held. Most themes were common to both pts and HCPs; gaps and barriers in the current system, need for decision aids, improved HCP communication and options in care delivery, and access to credible information delivered in a timely, secure manner and integrated into existing systems. Additionally, pts further identified missed opportunities, care not meeting their needs, feeling overwhelmed and anxious and wanting to be more empowered; HCPs identified accountability as an issue. These themes informed development of a prototype for a web-based toxicity management tool, which has served the purpose of defining user needs for symptom tracking, self-management advice, and timely communication with an oncology provider. Iterative evaluation over 2 rounds of usability testing is currently underway. Conclusions: An electronic tool that integrates just-in-time self-management advice and oncology provider support into routine care may address some of the gaps identified in the current system for managing chemotherapy toxicity.

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