Mothers and fathers of young Dutch adolescents with Down syndrome: Health related quality of life and family functioning

2016 ◽  
Vol 59 ◽  
pp. 359-369 ◽  
Author(s):  
Jan Pieter Marchal ◽  
Heleen Maurice-Stam ◽  
A.S. Paul van Trotsenburg ◽  
Martha A. Grootenhuis
Keyword(s):  
Quality Of Life ◽  
Down Syndrome ◽  
Family Functioning ◽  
Health Related Quality ◽  
Mothers And Fathers ◽  
Related Quality ◽  
Health Related

scholarly journals Religiousness and health-related quality of life of older adults

2015 ◽  
Vol 49 (0) ◽  
Author(s):  
Gina Andrade Abdala ◽  
Miako Kimura ◽  
Yeda Aparecida de Oliveira Duarte ◽  
Maria Lúcia Lebrão ◽  
Bernardo dos Santos
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Family Functioning ◽  
Equation Modeling ◽  
Health Related Quality ◽  
Intrinsic Religiousness ◽  
Related Quality ◽  
Health Related ◽  
The Relationship

OBJECTIVE To examine whether religiousness mediates the relationship between sociodemographic factors, multimorbidity and health-related quality of life of older adults. METHODS This population-based cross-sectional study is part of the Survey on Health, Well-Being, and Aging (SABE). The sample was composed by 911 older adults from Sao Paulo, SP, Southeastern Brazil. Structural equation modeling was performed to assess the mediator effect of religiousness on the relationship between selected variables and health-related quality of life of older adults, with models for men and women. The independent variables were: age, education, family functioning and multimorbidity. The outcome variable was health-related quality of life of older adults, measured by SF-12 (physical and mental components). The mediator variables were organizational, non-organizational and intrinsic religiousness. Cronbach’s alpha values were: physical component = 0.85; mental component = 0.80; intrinsic religiousness = 0.89 and family APGAR (Adaptability, Partnership, Growth, Affection, and Resolve) = 0.91. RESULTS Higher levels of organizational and intrinsic religiousness were associated with better physical and mental components. Higher education, better family functioning and fewer diseases contributed directly to improved performance in physical and mental components, regardless of religiousness. For women, organizational religiousness mediated the relationship between age and physical (β = 2.401, p < 0.01) and mental (β = 1.663, p < 0.01) components. For men, intrinsic religiousness mediated the relationship between education and mental component (β = 7.158, p < 0.01). CONCLUSIONS Organizational and intrinsic religiousness had a beneficial effect on the relationship between age, education and health-related quality of life of these older adults.

Adaptive behavior of adults with Down syndrome and their health-related quality of life

2019 ◽  
Vol 4 (1) ◽  
pp. 27-35
Author(s):  
Rebecca J. Graves ◽  
Kim Zlomke ◽  
J. Carolyn Graff ◽  
Heather R. Hall
Keyword(s):  
Quality Of Life ◽  
Down Syndrome ◽  
Adaptive Behavior ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Influencing of Family Management in Families with Thalassemic Children on Health Related Quality of Life and Family Functioning: SEM approach

2017 ◽  
Vol 16 (1) ◽  
pp. 27-38 ◽  
Author(s):  
Orranuch CHUSRI ◽  
Wannee DEOISRES ◽  
Marcia van RIPER
Keyword(s):  
Quality Of Life ◽  
Family Functioning ◽  
Family Life ◽  
Daily Life ◽  
Negative Influence ◽  
Health Related Quality ◽  
Management Ability ◽  
Related Quality ◽  
Health Related

Purpose: To predicate the way in which families incorporate the work of managing a child with thalassemia within family life and its outcomes. Methods: A correlational design with a structural equation modeling (SEM) approach was used. A total of 309 parents of children with thalassemia from 4 tertiary care hospitals in Thailand completed our questionnaires. Results: Family life difficulties had a negative influence on the child’s health-related quality of life (HRQOL) (b = -2.23, p < 0.05) and family functioning (b = -0.27, p < 0.05), whereas the child’s daily life (b = 5.06, p < 0.05) and condition management ability (b = -1.86, p < 0.05) had a negative influence on the child’s HRQOL. In the final model, 3 variables including the child’s daily life, condition management ability, and family life difficulty could explain 33 % of variance in the child’s HRQOL (R2 = 0.33). This model showed that only family life difficulty could explain 2 % of variance of family functioning (R2 = 0.02). Conclusions: The study suggests that nurses should design interventions to support families in managing their child’s conditions in order to achieve a good child and family outcomes.

scholarly journals Health-related Quality of Life in Children with Autism Spectrum Disorder and Children with Down Syndrome

2020 ◽  
Vol 32 (2) ◽  
pp. 93
Author(s):  
Aikaterini Katsiana ◽  
Nikolaos Strimpakos ◽  
Ventoulis Ioannis ◽  
Eleni Sofologi ◽  
Eleni Bonti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Down Syndrome ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Health Related Quality ◽  
Children With Down Syndrome ◽  
Related Quality ◽  
Health Related
Sign in / Sign up

Export Citation Format

Share Document