Factors associated with parental stress and satisfaction during the process of diagnosis of children with Autism Spectrum Disorders

2012 ◽  
Vol 6 (1) ◽  
pp. 293-303 ◽  
Author(s):  
Teresa Ailing Moh ◽  
Iliana Magiati
2014 ◽  
Vol 2014 ◽  
pp. 1-5 ◽  
Author(s):  
Irina Zamora ◽  
Eliza K. Harley ◽  
Shulamite A. Green ◽  
Kathryn Smith ◽  
Michele D. Kipke

Parents of children with autism spectrum disorders (ASD) experience higher levels of stress in comparison to parents of neurotypical children and consequently are more susceptible to negative health and social outcomes (Dunn et al., 2001). However, less is known about how individual child characteristics impact stress levels in parents of children with ASD. In this study, we examined the relationship between individual characteristics (i.e., sex) of children with ASD and parental stress. Access to comprehensive treatment services was also examined as a contributing factor to parental stress. Parenting stress was higher for parents of girls than for parents of boys, and for parents of girls (but not boys) fewer services predicted higher parental distress. Findings highlight the importance of providing parents of girls with ASD with more tailored support.


Reflexio ◽  
2019 ◽  
Vol 12 (2) ◽  
pp. 103-125
Author(s):  
E. A. Dorosheva

The review focuses on describing the specific role of parents in the development of children with autism spectrum disorders (ASD). The main directions of modern research in this field are allocated. Relations of attachment, components of social development in children with ASD and such chsracteristics of parents as sensitivity, responsiveness, insightfulness, synchrony are considered. Features of relationships of parents and childrens emotional regulation, parent emotional co-regulation in children as an important factor of child with ASD development are described. Factors of parental stress and its possible impact on the children development have been analysed. Ideas about the broader phenotype of ASD as a possible cause of some parent features and its impact on children with ASD are given. A conclusion about the promising directions of research in the field under consideration and their practical significance was made.


Author(s):  
Lurike Fourie ◽  
Carla Kotzé ◽  
Deborah Van der Westhuizen

Introduction: The sexual behaviour and development of children with autism spectrum disorders (ASDs) have been mostly overlooked in research and practice. This study aimed to determine the association between certain clinical and demographic factors found in a sample of children with ASDs, and their reported sexual behaviour (RSB).Methods: The study was conducted at a school in Gauteng, South Africa, for learners with ASDs. Two questionnaires completed by caregivers/parents enquired about family stability, clinical profile and RSB (if any) in their child. RSB was analysed via three domains: self-care, socio-sexual skills and actual RSB, with additional information from school records.Results: Of the 107 questionnaires distributed, only 31 parents responded and 24 agreed to participate. The 24 (100%) children included 10 pubertal and 14 pre-pubertal children, of which 18 (n = 18) had more stable primary caregiver statuses as well as more stable socioeconomic and family environments. Two of the 14 pre-pubertal children had abnormal self-care, whereas none of the 10 pubertal children had any abnormal self-care. Eight of the 18 children from more stable environments displayed abnormal sexual behaviours. Of the 6 children from less stable environments, two displayed more abnormal socio-sexual skills, whereas 9 of the 18 children from more stable environments displayed more abnormal sexual behaviour. In contrast with the postulated hypothesis that children from less stable socioeconomic and family environments would exhibit more abnormal sexual behaviours, this study did not find any evidence of such a relationship or association.Conclusion: ASDs are characterised by deficits in communication and social skills. These may lead to an affected individual struggling to develop appropriate sexual behaviour. If specific risk factors that contribute to the development of abnormal sexual behaviour can be identified, one can try to modify/prevent these where some degree of prevention or alleviation may be possible.


2018 ◽  
Vol 57 (14) ◽  
pp. 1642-1655 ◽  
Author(s):  
John W. Harrington ◽  
Leonard Emuren ◽  
Kathryn Restaino ◽  
Samantha Schrier Vergano

The purpose of this study was to determine the factors associated with genetic testing in children with autism spectrum disorders (ASDs) and understand parental involvement in the decision to test using survey data of parents of children with ASD. Evaluation by a geneticist was associated with genetic testing by more than 39 times compared to evaluation by a nongeneticist (95% CI = 9.15-168.81). Those offered testing by the physicians were more than 6 times more likely to be tested than those not offered testing (95% CI = 1.66-24.61). Financial concerns, not being offered testing, and lack of awareness were the most consistent reasons for not testing given by participants. A physician’s recommendation for testing and an evaluation by a geneticist were the most important factors associated with genetic testing in children with ASD. Educating primary care physicians and nongenetic specialists can potentially improve genetic testing among children with ASD.


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