scholarly journals Opportunities and limitations of shared decision making in multidisciplinary tumor conferences with patient participation – A qualitative interview study with providers

2020 ◽  
Author(s):  
Barbara Bohmeier ◽  
Barbara Schellenberger ◽  
Annika Diekmann ◽  
Nicole Ernstmann ◽  
Lena Ansmann ◽  
...  
Keyword(s):  
Decision Making ◽  
Shared Decision Making ◽  
Patient Participation ◽  
Qualitative Interview ◽  
Interview Study ◽  
Shared Decision ◽  
Qualitative Interview Study

scholarly journals The role of hospital nurses in shared decision‐making about life‐prolonging treatment: A qualitative interview study

2020 ◽  
Vol 77 (1) ◽  
pp. 296-307
Author(s):  
Danique W. Bos‐van den Hoek ◽  
Maureen Thodé ◽  
Irene P. Jongerden ◽  
Hanneke W. M. Van Laarhoven ◽  
Ellen M. A. Smets ◽  
...  
Keyword(s):  
Decision Making ◽  
Shared Decision Making ◽  
Qualitative Interview ◽  
Interview Study ◽  
Hospital Nurses ◽  
Shared Decision ◽  
Qualitative Interview Study

scholarly journals Integrating patient perspectives in medical decision-making: a qualitative interview study examining potentials within the rare disease information exchange process in practice

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Ana Babac ◽  
Verena von Friedrichs ◽  
Svenja Litzkendorf ◽  
Jan Zeidler ◽  
Kathrin Damm ◽  
...  
Keyword(s):  
Decision Making ◽  
Rare Disease ◽  
Shared Decision Making ◽  
Health Professionals ◽  
Qualitative Interview ◽  
Healthcare Systems ◽  
Interview Study ◽  
Medical Decision ◽  
Shared Decision ◽  
Qualitative Interview Study

Abstract Background Many European countries have recently implemented national rare disease plans. Although the network is strengthening, especially on the macro and meso levels, patients still go a long way through healthcare systems, with many health professionals involved and scarce evidence to gather. Specifically, patient involvement in the form of shared decision-making can offer further potential to increase healthcare systems’ efficiency on a micro level. Therefore, we examine the implementation of the shared decision-making concept thus far, and explore whether efficiency potentials exist—which are particularly relevant within the rare disease field—and how they can be triggered. Methods Our empirical evidence comes from 101 interviews conducted from March to September 2014 in Germany; 55 patients, 13 family members, and 33 health professionals participated in a qualitative interview study. Transcripts were analyzed using a directed qualitative content analysis. Results The interviews indicate that the decision-making process is increasingly relevant in practice. In comparison, however, the shared decision-making agreement itself was rarely reported. A majority of interactions are dominated by individual, informed decision-making, followed by paternalistic approaches. The patient-physician relationship was characterized by a distorted trust-building process, which is affected by not only dependencies due to the diseases’ severity and chronic course, but an often-reported stigmatization of patients as stimulants. Moreover, participation was high due to a pronounced engagement of those affected, diminishing as patients’ strength vanish during their odyssey through health care systems. The particular roles of “expert patients” or “lay experts” in the rare disease field were revealed, with further potential in integrating the gathered information. Conclusions The study reveals the named efficiency potentials, which are unique for rare diseases and make the further integration of shared decision-making very attractive, facilitating diagnostics and disease management. It is noteworthy that integrating shared decision-making in the rare disease field does not only require strengthening the position of patients but also that of physicians. Efforts can be made to further integrate the concept within political frameworks to trigger the identified potential and assess the health-economic impact.

scholarly journals Parents and GPs’ understandings and beliefs about food allergy testing in children with eczema: qualitative interview study within the Trial of Eczema allergy Screening Tests (TEST) feasibility trial

BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e041229
Author(s):  
Clare Clement ◽  
Matthew J Ridd ◽  
Kirsty Roberts ◽  
Miriam Santer ◽  
Robert Boyle ◽  
...  
Keyword(s):  
Decision Making ◽  
Food Allergy ◽  
Qualitative Interview ◽  
Interview Study ◽  
Screening Tests ◽  
Feasibility Trial ◽  
Structured Interviews ◽  
Allergy Testing ◽  
Qualitative Interview Study ◽  
Severe Eczema

AimTo explore parent and general practitioner (GP) understanding and beliefs about food allergy testing for children with eczema.Design and settingQualitative interview study in UK primary care within the Trial of Eczema allergy Screening Tests feasibility trial.ParticipantsSemi-structured interviews with parents of children with eczema taking part in the feasibility study and GPs at practices hosting the study.Results21 parents and 11 GPs were interviewed. Parents discussed a range of potential causes for eczema, including a role for food allergy. They believed allergy testing to be beneficial as it could potentially identify a cure or help reduce symptoms and they found negative tests reassuring, suggesting to them that no dietary changes were needed. GPs reported limited experience and uncertainty regarding food allergy in children with eczema. While some GPs believed referral for allergy testing could be appropriate, most were unclear about its utility. They thought it should be reserved for children with severe eczema or complex problems but wanted more information to advise parents and help guide decision making.ConclusionsParents’ motivations for allergy testing are driven by the desire to improve their child’s condition and exclude food allergy as a possible cause of symptoms. GPs are uncertain about the role of allergy testing and want more information about its usefulness to support parents and help inform decision making.Trial registration numberISRCTN15397185.

Patient participation and shared decision making in Germany – history, agents and current transfer to practice

2011 ◽  
Vol 105 (4) ◽  
pp. 263-270 ◽  
Author(s):  
Martin Härter ◽  
Hardy Müller ◽  
Jörg Dirmaier ◽  
Norbert Donner-Banzhoff ◽  
Christiane Bieber ◽  
...  
Keyword(s):  
Decision Making ◽  
Shared Decision Making ◽  
Patient Participation ◽  
Current Transfer ◽  
Shared Decision
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