An evaluation of the facilitator training to implement ‘Taking charge of my life and health’, a peer-led group program to promote self-care and patient empowerment in Veteran participants

2020 ◽  
Vol 103 (12) ◽  
pp. 2489-2498
Author(s):  
Melissa H. Abadi ◽  
Connor Drake ◽  
Bonnie O. Richard ◽  
April Schweinhart ◽  
David Rychener ◽  
...  
Keyword(s):  
Patient Empowerment ◽  
Self Care ◽  
Group Program ◽  
Facilitator Training ◽  
Taking Charge

scholarly journals Non-health outcomes affecting self-care behaviors and medical decision-making preference in patients with type 2 diabetes: a cross-sectional study

2020 ◽  
Author(s):  
Ming-Jye Wang ◽  
Hung-Ming Lin ◽  
Li-Chen Hung ◽  
Yi-Ting Lo
Keyword(s):  
Type 2 Diabetes ◽  
Decision Making ◽  
Health Literacy ◽  
Self Efficacy ◽  
Patient Empowerment ◽  
Self Care ◽  
Cross Sectional Study ◽  
Medical Decision ◽  
Cross Sectional

Abstract Background: The effects of patient sustained self-care behaviors on glycemic control are even greater than the effects of medical treatment, indicating the value of identifying the factors that influence self-care behaviors. To date, these factors have not been placed in a single model to clarify the critical path affecting self-care behaviors. The aims of this study were to explore the relationships of these factors and the differences in patient preference for medical decision-making.Methods: A cross-sectional study was conducted among outpatients with type 2 diabetes at a regional teaching hospital. Purposive sampling was adopted to recruit 316 eligible patients via self-administered questionnaires. Partial least squares structural equation modeling was used for analysis.Results: Significant direct pathways were identified from health literacy to self-efficacy, patient empowerment, and self-care behaviors; from self-efficacy to self-care behaviors; and from patient empowerment to self-care behaviors. Indirect pathways were from health literacy to self-care behaviors via self-efficacy or patient empowerment. The pathway from health literacy to self-efficacy was significantly stronger in those preferring shared decision-making than in those who preferred physician decision-making. Conclusions: Health literacy is a critical factor in improving self-care behaviors in patients with type 2 diabetes, and the effect of health literacy on self-efficacy was more significant in the shared decision-making than in the physician decision-making. Therefore, developing an effective health strategy to strengthen health literacy awareness and designing friendly, diverse health literacy materials, and application tools is the most important factor to facilitate self-care behaviors in this population.

Teaching Self-Care: Taking Charge of Your Health

EXPLORE ◽  
2009 ◽  
Vol 5 (4) ◽  
pp. 252-254 ◽  
Author(s):  
Mary Jo Kreitzer ◽  
Victor Sierpina ◽  
Louise Delagran
Keyword(s):  
Self Care ◽  
Taking Charge

scholarly journals A Study on Sustainability of Knowledge, Self Care Behavior, and Self-efficacy after Self-help Group Program for Hypertension and Diabetes

2017 ◽  
Vol 42 (3) ◽  
pp. 276-284 ◽  
Author(s):  
Jung Hee Kim ◽  
Keon Yeop Kim ◽  
Su Jin Lee ◽  
Sang Geun Bae ◽  
Dong Hee Ryu ◽  
...  
Keyword(s):  
Self Efficacy ◽  
Self Care ◽  
Group Program ◽  
Self Help ◽  
Self Help Group ◽  
Care Behavior

scholarly journals The Quebec Diabetes Empowerment Group Program: Program Description and Considerations Regarding Feasibility and Acceptability of Implementation in Primary Health Care Settings

2021 ◽  
Vol 8 ◽  
Author(s):  
Fanny Hersson-Edery ◽  
Jennifer Reoch ◽  
Justin Gagnon
Keyword(s):  
Self Care ◽  
Care Group ◽  
Medical Visit ◽  
Group Program ◽  
Structured Interviews ◽  
Patient Centered ◽  
Behavioral Skills ◽  
Effective Interventions ◽  
Program Description ◽  
Diabetes Empowerment

Introduction: Diabetes is a highly prevalent chronic disease that frequently coexists with other medical conditions and implies a high burden for patients and the healthcare system. Clinicians currently are challenged to provide effective interventions that are both multidisciplinary and empower patient self-care. The Diabetes Empowerment Group Program (DEGP) was developed with the aims of fostering patient engagement in diabetes self-care through the lens of empowerment and to support the empowerment of patients with diabetes by providing multidisciplinary group-based care. This research's objectives were to: (1) develop a comprehensive description of the DEGP for potential adopters, and (2) explore the factors influencing the feasibility and acceptability of implementing it in other healthcare settings in Montreal.Methods: A qualitative descriptive study was conducted, following a participatory approach. Data were obtained from: (1) semi-structured interviews with 14 patients who participated in the pilot program; (2) from semi-structured group interviews with patient partners, healthcare professionals, and other stakeholders from 4 Montreal family medicine groups, and (3) discussions among the participatory research team during various knowledge translation activities. Inductive content analysis of the data was performed.Results: The DEGP identified seven key elements: medical visit, continuity of care, group-based dynamics, multi-disciplinarity, clinician facilitation, patient-centered agenda, and a theoretical framework of empowerment. The content and organization of the group visits were conceived to address each of these four domains. The empowerment framework comprises four domains of self-care: emotional (attitude), cognitive (knowledge), behavioral (skills), and relational (relatedness). Factors impacting the feasibility and acceptability of implementing the DEGP in other primary care settings were identified.Discussion: The DEGP fits within the discourse around the need for more patient-centered programs for people living with diabetes, following a more comprehensive empowerment model. This research could facilitate the development or adaptation of similar programs in other settings.

scholarly journals Organ Transplant Recipients’ Experiences of Physical Activity: Health, Self-Care, and Transliminality

2020 ◽  
Vol 31 (2) ◽  
pp. 385-398 ◽  
Author(s):  
Gareth Wiltshire ◽  
Nicola J. Clarke ◽  
Cassandra Phoenix ◽  
Carl Bescoby
Keyword(s):  
Physical Activity ◽  
Health Management ◽  
Patient Empowerment ◽  
Organ Transplant ◽  
Self Care ◽  
Organ Transplant Recipient ◽  
Transplant Recipients ◽  
Patient Journey ◽  
Organ Transplant Recipients

Physical activity (PA) is an important lifestyle component of long-term health management for organ transplant recipients, yet little is known about recipients’ experiences of PA. The purpose of this study was to shed light on this experience and to investigate the possible implications of PA in the context of what is a complex patient journey. Phenomenological analysis was used to examine interviews with 13 organ transplant recipients who had taken part in sporting opportunities posttransplantation. Findings illuminate how participants’ experiences of PA were commonly shaped by the transliminal nature of being an organ transplant recipient as well as a sense of duty to enact health, self-care, and donor-directed gratitude. This analysis underlines the potential role of PA in supporting organ transplant recipients’ attempts to live well following transplantation and makes novel connections between PA and our existing knowledge about challenges related to identity, survivorship, obligation, and patient empowerment.

The Web-Enabled Patient

2011 ◽  
pp. 222-238
Author(s):  
Michele Lemaire
Keyword(s):  
Patient Empowerment ◽  
Self Care ◽  
Unintended Consequences ◽  
Cost Of Care ◽  
Self Monitoring ◽  
Health Maintenance ◽  
Self Confidence ◽  
Health And Disease ◽  
Care Health ◽  
Systematic Education

The past decade has witnessed major changes in the concepts of health and disease and in the respective role and responsibility of doctors and patients in health maintenance and disease management. These changes were triggered by cost-containment imperatives. Although constraining by nature, these imperatives are also enabling. The original incentive to engage people in taking larger responsibility in their own care was economic. The strategy used to foster commitment to better health was increasing people’s health awareness and making them confident they could modify their behavior, and in so doing reduce their risk for preventable diseases such as cardiovascular diseases (primary prevention) or detect diseases at earlier stages such as cancers (secondary prevention). Only recently, the concept of encouraging people to participate in their own care has been extended to patients with chronic diseases. Here, the objective is to make the patient able to practice self-care in the management of his/her disease, and the incentive is still to reduce the demand for and cost of care. Health promotion, disease prevention and disease self-management all rest on education: systematic education about diseases and risks, practical information on how to adopt appropriate behaviors, and training in self-care skills along with the message that people have the capability to change their behavior and acquire the necessary skills. These changes brought about by economic concerns can be seen as constraining, since they require active self-monitoring and self-discipline. However, as they rely heavily on health information and the development of self-confidence, their unintended consequences, enhanced by the current technology developments, are patient empowerment and a change in the doctor-patient relationship.

scholarly journals The effect of problem-based learning after coronary heart disease – A randomised study in primary health care (COR-PRIM)

2020 ◽  
Author(s):  
Anita Kärner Köhler ◽  
Tiny Jaarsma ◽  
Pia Tingström ◽  
Staffan Nilsson
Keyword(s):  
Risk Factors ◽  
Coronary Heart Disease ◽  
Heart Disease ◽  
Patient Information ◽  
Patient Empowerment ◽  
Self Care ◽  
Problem Based Learning ◽  
Hdl Cholesterol ◽  
One Year ◽  
Experimental Group

Abstract Background Cardiac rehabilitation including patient education is effective after coronary heart disease (CHD). However, risk factors remain, and patients report fear for recurrence during recovery. Problem-based learning is a pedagogical method, where patients work self-directed in small groups with problem solving of real-life situations to manage CHD risk factors and self-care. The aim of the study was to demonstrate the better effectiveness of patient problem-based learning over home-sent patient information for evaluating long-term effects of patient empowerment and self-care in patients with CHD. The hypothesis tested was that one year of problem-based learning improves patients’ empowerment- and self-efficacy, to change self-care compared to one year of standardised home-sent patient information after CHD. Methods We randomly assigned 157 patients (78% male; age 68±8.5 years) with CHD verified by percutaneous coronary intervention (PCI) (70.1%) or coronary artery by-pass surgery (CABG) and CABG+PCI or myocardial infarction (29.9%) to problem-based learning (experimental group; n = 79) or home-sent patient information group (controls; n = 78). The problem-based learning intervention consisted of patient education in primary care by nurses tutoring groups of 6-9 patients on 13 occasions over one year. Controls received home- sent patient information on 11 occasions during the study year. Results At the one-year follow-up, the primary outcome, patient empowerment, did not significantly differ between the experimental group and controls. We found no significant differences between the groups regarding the secondary outcomes e.g. self-efficacy, although we found significant differences for body mass index (BMI) [-0.17 (SD 1.5) vs. 0.50 (SD 1.6), P=0.033 ], body weight [-0.83 (SD) 4.45 vs. 1.14 kg (SD 4.85), P=0.026 ] and HDL cholesterol [0.1 (SD 0.7) vs. 0.0 mmol/L (SD 0.3), P=0.038 ] favouring the experimental group compared to controls. Conclusions The problem-based learning- and the home-sent patient information interventions had similar results regarding patient empowerment. However, problem-based learning exhibited significant effects on weight loss, BMI, and HDL cholesterol levels, indicating that this intervention positively affected risk factors compared to the home-sent patient information intervention. Trial registration : NCT01462799 (February 2020)

scholarly journals From Precision Metapharmacology to Patient Empowerment: Delivery of Self-Care Practices for Epilepsy, Pain, Depression and Cancer Using Digital Health Technologies

2021 ◽  
Vol 12 ◽  
Author(s):  
Grzegorz Bulaj ◽  
Jacqueline Clark ◽  
Maryam Ebrahimi ◽  
Elizabeth Bald
Keyword(s):  
Chronic Diseases ◽  
Digital Health ◽  
Patient Empowerment ◽  
Self Care ◽  
Digital Technologies ◽  
Combination Therapies ◽  
Lifestyle Modifications ◽  
Pharmacological Interventions ◽  
Health Technologies ◽  
Breathing Exercises

To improve long-term outcomes of therapies for chronic diseases, health promotion and lifestyle modifications are the most promising and sustainable strategies. In addition, advances in digital technologies provide new opportunities to address limitations of drug-based treatments, such as medication non-adherence, adverse effects, toxicity, drug resistance, drug shortages, affordability, and accessibility. Pharmaceutical drugs and biologics can be combined with digital health technologies, including mobile medical apps (digital therapeutics), which offer additional clinical benefits and cost-effectiveness. Promises of drug+digital combination therapies are recognized by pharmaceutical and digital health companies, opening opportunities for integrating pharmacotherapies with non-pharmacological interventions (metapharmacology). Herein we present unique features of digital health technologies which can deliver personalized self-care modalities such as breathing exercises, mindfulness meditation, yoga, physical activity, adequate sleep, listening to preferred music, forgiveness and gratitude. Clinical studies reveal how aforementioned complimentary practices may support treatments of epilepsy, chronic pain, depression, cancer, and other chronic diseases. This article also describes how digital therapies delivering “medicinal” self-care and other non-pharmacological interventions can also be personalized by accounting for: 1) genetic risks for comorbidities, 2) adverse childhood experiences, 3) increased risks for viral infections such as seasonal influenza, or COVID-19, and 4) just-in-time stressful and traumatic circumstances. Development and implementation of personalized pharmacological-behavioral combination therapies (precision metapharmacology) require aligning priorities of key stakeholders including patients, research communities, healthcare industry, regulatory and funding agencies. In conclusion, digital technologies enable integration of pharmacotherapies with self-care, lifestyle interventions and patient empowerment, while concurrently advancing patient-centered care, integrative medicine and digital health ecosystems.

scholarly journals A prospective evaluation of telemonitoring use by seniors with chronic heart failure: Adoption, self-care, and empowerment

2018 ◽  
Vol 25 (4) ◽  
pp. 1800-1814 ◽  
Author(s):  
Mirou Jaana ◽  
Heather Sherrard ◽  
Guy Paré
Keyword(s):  
Heart Failure ◽  
Chronic Heart Failure ◽  
Management Practices ◽  
Patient Empowerment ◽  
Self Care ◽  
Care Patient ◽  
Management Approach ◽  
Adoption Factors ◽  
Longitudinal Study Design ◽  
Senior Patients

Telemonitoring leverages technology for the follow-up of patients with heart failure. Limited evidence exists on how telemonitoring influences senior patients’ attitudes and self-care practices. This study examines telemonitoring impacts on patient empowerment and self-care, and explores adoption factors among senior patients. A longitudinal study design was used, involving three surveys of elderly with chronic heart failure (n = 23) 1 week, 3 months, and 6 months after beginning telemonitoring use. Self-care, patient empowerment, and adoption factors were assessed using existing scales. The patients involved in this study perceived value of using telemonitoring, did not expect it to be difficult to use, and did not encounter adoption barriers. There was a significant improvement in patients’ confidence in their ability to evaluate their symptoms, address them, and evaluate the effectiveness of the measures taken to address these symptoms. Yet, patients performed less self-care maintenance activities, and the capability of involvement in the decision-making related to their condition decreased. Telemonitoring can improve seniors’ confidence in evaluating and addressing their symptoms in relation to heart failure. This patient management approach should be coupled with targeted education geared toward self-maintenance and self-management practices.

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