Parent experiences and information needs related to bronchiolitis: A mixed studies systematic review

2019 ◽  
Vol 102 (5) ◽  
pp. 864-878 ◽  
Author(s):  
Michelle Gates ◽  
Jocelyn Shulhan-Kilroy ◽  
Robin Featherstone ◽  
Tara MacGregor ◽  
Shannon D. Scott ◽  
...  
Keyword(s):  
Systematic Review ◽  
Information Needs ◽  
Parent Experiences

scholarly journals Parent experiences and information needs relating to procedural pain in children: a systematic review protocol

2017 ◽  
Vol 6 (1) ◽  
Author(s):  
Allison Gates ◽  
Kassi Shave ◽  
Robin Featherstone ◽  
Kelli Buckreus ◽  
Samina Ali ◽  
...  
Keyword(s):  
Systematic Review ◽  
Information Needs ◽  
Procedural Pain ◽  
Systematic Review Protocol ◽  
Parent Experiences ◽  
Review Protocol

scholarly journals Understanding the Needs of Australian Carers of Adults Receiving Palliative Care in the Home: A Systematic Review of the Literature

2021 ◽  
Vol 7 ◽  
pp. 237796082098568
Author(s):  
Elizabeth M. Miller ◽  
Joanne E. Porter
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
Information Needs ◽  
Hospital Admissions ◽  
Positive Outcomes ◽  
Review Of The Literature ◽  
Data Set ◽  
Final Data ◽  
Perceived Impact ◽  
Meta Analyses

Introduction Caring for someone at home requiring palliative care is an ominous task. Unless the current support systems are better utilised and improved to meet the needs of those carers, the demand for acute hospital admissions will increase as the Australian population ages. The aim of this review was to examine the needs of unpaid carers who were caring for adults receiving palliative care in their home in Australia. Methods: A systematic review of the literature was conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) Guidelines between 2008–2020. Results: Only Australian papers were selected due to the intent to understand carers’ needs in the Australian context and 17 papers made up the final data set. Four themes emerged: 1) Perceived factors influencing caregiving; 2) Perceived impact and responses to caregiving; 3) Communication and information needs; and 4) Perceptions of current palliative support services and barriers to uptake. Conclusion: Carers reported satisfaction and positive outcomes and also expressed feeling unprepared, unrecognised, stressed and exhausted.

94 Short-term use of therapeutic opioids for children and future opioid use disorders: A systematic review and qualitative study of decision-maker information needs

2021 ◽  
Vol 26 (Supplement_1) ◽  
pp. e68-e68
Author(s):  
Malema Ahrari ◽  
Samina Ali ◽  
Michele Dyson ◽  
Lisa Hartling
Keyword(s):  
Systematic Review ◽  
Qualitative Study ◽  
Information Needs ◽  
Policy Decision ◽  
Decision Makers ◽  
Snowball Sampling ◽  
Opioid Use ◽  
Short Term ◽  
Short Term Exposure ◽  
Evidence Summary

Abstract Primary Subject area Emergency Medicine - Paediatric Background Healthcare visits, hospitalizations, and deaths due to opioid-related harms continue to rise for children, despite an overall decline in opioid prescriptions. Decision-makers (including patients and families, clinicians, and policy-makers) require high quality syntheses to inform decisions regarding opioid use. Previous research has found that how systematic review (SR) results are presented may influence uptake by decision-makers. Evidence summaries are appealing to decision-makers as they provide key messages in a succinct manner. Objectives 1) To conduct an SR examining the association between short-term therapeutic exposure to opioids in children and development of opioid use disorder, and 2) To gain perspectives from policy decision-makers on the usability and presentation of results through the form of an evidence summary. Design/Methods We conducted an SR following methods recommended by Cochrane. A medical librarian conducted a comprehensive search and two authors were involved in study selection, data extraction and quality assessment. Studies were eligible if they reported primary research in English or French, and study participants had therapeutic exposure to opioids before age 18 years. Results were described narratively. Decision makers were recruited through purposive and snowball sampling methods, and they participated in interviews to discuss an evidence summary based on the SR. Interviews were transcribed and data were analyzed using content analysis. Ethics approval was obtained for the qualitative study. Results Nineteen American studies involving 47,191,990 participants were included. One study demonstrated that short-term therapeutic exposure may be associated with opioid abuse. Four others showed an association without specifying duration of exposure. Fourteen studies provided information on prevalence or incidence of opioid misuse following therapeutic exposure, median 27.8% [interquartile range 21.4% – 30.7%]; notably, 12 of them did not specify duration of therapeutic exposure. Identified risk factors were contradictory and remain unclear. Decision makers had mixed preferences for the presentation of evidence, depending on their degree of involvement in research versus practice. A majority preferred having methods and key characteristics of studies included in the first page of the evidence summary. They noted that the summary should not be text-heavy and details should be appended. Conclusion A number of studies suggest there is an association between lifetime therapeutic opioid use (unknown duration) and future nonmedical opioid use; however, there is limited evidence to determine whether short-term exposure is specifically associated with these outcomes. Policy and decision-makers prefer a succinct evidence summary for this SR, with study-specific details provided as an appendix. PROSPERO Registration: 122681.

scholarly journals The Online Health Information Needs of Family Physicians: Systematic Review of Qualitative and Quantitative Studies (Preprint)

2020 ◽  
Author(s):  
Piet van der Keylen ◽  
Johanna Tomandl ◽  
Katharina Wollmann ◽  
Ralph Möhler ◽  
Mario Sofroniou ◽  
...  
Keyword(s):  
Systematic Review ◽  
Information Retrieval ◽  
Health Information ◽  
Full Text ◽  
Information Needs ◽  
Family Physicians ◽  
Online Health Information ◽  
Online Information ◽  
Qualitative And Quantitative ◽  
Quantitative Studies

BACKGROUND Digitalization and the increasing availability of online information have changed the way in which information is searched for and retrieved by the public and by health professionals. The technical developments in the last two decades have transformed the methods of information retrieval. Although systematic evidence exists on the general information needs of specialists, and in particular, family physicians (FPs), there have been no recent systematic reviews to specifically address the needs of FPs and any barriers that may exist to accessing online health information. OBJECTIVE This review aims to provide an up-to-date perspective on the needs of FPs in searching, retrieving, and using online information. METHODS This systematic review of qualitative and quantitative studies searched a multitude of databases spanning the years 2000 to 2020 (search date January 2020). Studies that analyzed the online information needs of FPs, any barriers to the accessibility of information, and their information-seeking behaviors were included. Two researchers independently scrutinized titles and abstracts, analyzing full-text papers for their eligibility, the studies therein, and the data obtained from them. RESULTS The initial search yielded 4541 studies for initial title and abstract screening. Of the 144 studies that were found to be eligible for full-text screening, 41 were finally included. A total of 20 themes were developed and summarized into 5 main categories: <i>individual needs</i> of FPs before the search; <i>access needs</i>, including factors that would facilitate or hinder information retrieval; <i>quality needs</i> of the information to hand; <i>utilization needs</i> of the information available; and <i>implication needs</i> for everyday practice. CONCLUSIONS This review suggests that searching, accessing, and using online information, as well as any pre-existing needs, barriers, or demands, should not be perceived as separate entities but rather be regarded as a sequential process. Apart from accessing information and evaluating its quality, FPs expressed concerns regarding the applicability of this information to their everyday practice and its subsequent relevance to patient care. Future online information resources should cater to the needs of the primary care setting and seek to address the way in which such resources may be adapted to these specific requirements.

scholarly journals Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide

BMC Neurology ◽  
2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Remko M. van Eenennaam ◽  
Willeke J. Kruithof ◽  
Michael A. van Es ◽  
Esther T. Kruitwagen-van Reenen ◽  
Henk-Jan Westeneng ◽  
...  
Keyword(s):  
Systematic Review ◽  
Amyotrophic Lateral Sclerosis ◽  
Information Needs ◽  
Time Range ◽  
Advisory Panel ◽  
Survival Prediction ◽  
Decisional Capacity ◽  
Individual Needs ◽  
The Impact ◽  
Lateral Sclerosis

Abstract Background Personalized ENCALS survival prediction model reliably estimates the personalized prognosis of patients with amyotrophic lateral sclerosis. Concerns were raised on discussing personalized prognosis without causing anxiety and destroying hope. Tailoring communication to patient readiness and patient needs mediates the impact of prognostic disclosure. We developed a communication guide to support physicians in discussing personalized prognosis tailored to individual needs and preferences of people with ALS and their families. Methods A multidisciplinary working group of neurologists, rehabilitation physicians, and healthcare researchers A) identified relevant topics for guidance, B) conducted a systematic review on needs of patients regarding prognostic discussion in life-limiting disease, C) drafted recommendations based on evidence and expert opinion, and refined and finalized these recommendations in consensus rounds, based on feedback of an expert advisory panel (patients, family member, ethicist, and spiritual counsellor). Results A) Topics identified for guidance were 1) filling in the ENCALS survival model, and interpreting outcomes and uncertainty, and 2) tailoring discussion to individual needs and preferences of patients (information needs, role and needs of family, severe cognitive impairment or frontotemporal dementia, and non-western patients). B) 17 studies were included in the systematic review. C) Consensus procedures on drafted recommendations focused on selection of outcomes, uncertainty about estimated survival, culturally sensitive communication, and lack of decisional capacity. Recommendations for discussing the prognosis include the following: discuss prognosis based on the prognostic groups and their median survival, or, if more precise information is desired, on the interquartile range of the survival probability. Investigate needs and preferences of the patients and their families for prognostic disclosure, regardless of cultural background. If the patient does not want to know their prognosis, with patient permission discuss the prognosis with their family. If the patient is judged to lack decisional capacity, ask the family if they want to discuss the prognosis. Tailor prognostic disclosure step by step, discuss it in terms of time range, and emphasize uncertainty of individual survival time. Conclusion This communication guide supports physicians in tailoring discussion of personalized prognosis to the individual needs and preferences of people with ALS and their families.

scholarly journals Expressed information needs of patients with osteoporosis and/or fragility fractures: a systematic review

2018 ◽  
Vol 13 (1) ◽  
Author(s):  
Grace Raybould ◽  
Opeyemi Babatunde ◽  
Amy L. Evans ◽  
Joanne L. Jordan ◽  
Zoe Paskins
Keyword(s):  
Systematic Review ◽  
Information Needs ◽  
Fragility Fractures

scholarly journals Patient and public perspectives on cell and gene therapies: a systematic review

2020 ◽  
Vol 11 (1) ◽  
Author(s):  
Olalekan Lee Aiyegbusi ◽  
Karen Macpherson ◽  
Lauren Elston ◽  
Susan Myles ◽  
Jennifer Washington ◽  
...  
Keyword(s):  
Systematic Review ◽  
Information Needs ◽  
Current Evidence ◽  
Future Research ◽  
Sources Of Information ◽  
Social Challenges ◽  
Research Education ◽  
Gene Therapies ◽  
Education And Awareness ◽  
Cell And Gene Therapy

AbstractCell and gene therapies offer opportunities for treating disease with potential to restore function, and cure disease. However, they are not without risk and pose complex logistical, economic, ethical and social challenges for health systems. Here we report our systematic review of the current evidence on patient and public knowledge and perspectives of cell and gene therapies, to inform future research, education and awareness raising activities. We screened 10,735 titles and abstracts, and evaluated the full texts of 151 publications. The final selection was 35 publications. Four themes were generated from the narrative synthesis of the study findings namely: (1) Knowledge and understanding of cell and gene therapies, (2) Acceptance of cell and gene therapies (3) Understanding of risk and benefits of therapy, and (4) Information needs and current sources of information. As potential funders or future recipients, it is important that the public and patients are aware of these therapies, understand the issues involved, and can contribute to the debate. This review highlights the need for appropriate patient and public education on the various aspects of cell and gene therapies. High quality studies exploring patient and public opinions and experiences of cell and gene therapy are required. Patient and public perceptions of these therapies, alongside evidence of clinical and cost-effectiveness, will be central to their uptake and use.

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