The impact of a peer support group for children with rheumatic heart disease in Uganda

2018 ◽  
Vol 101 (1) ◽  
pp. 119-123 ◽  
Author(s):  
Amy Scheel ◽  
Andrea Beaton ◽  
Emmy Okello ◽  
Chris T. Longenecker ◽  
Isaac Omara Otim ◽  
...  
Keyword(s):  
Heart Disease ◽  
Rheumatic Heart Disease ◽  
Peer Support ◽  
Support Group ◽  
Peer Support Group ◽  
The Impact ◽  
Rheumatic Heart

The Impact of Echocardiographic Screening for Rheumatic Heart Disease on Patient Quality of Life

2016 ◽  
Vol 175 ◽  
pp. 123-129 ◽  
Author(s):  
Tyler Bradley-Hewitt ◽  
Andrea Dantin ◽  
Michelle Ploutz ◽  
Twalib Aliku ◽  
Peter Lwabi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Heart Disease ◽  
Rheumatic Heart Disease ◽  
The Impact ◽  
Rheumatic Heart

765 The Impact of Peer Support Group Programs on Psychosocial Outcomes for Burn Survivors & Caregivers: A Review of the Literature

2020 ◽  
Vol 41 (Supplement_1) ◽  
pp. S216-S217
Author(s):  
Mariel S Bello ◽  
Sarah A Stoycos ◽  
Brenda T Carrera ◽  
Dawn Kurakazu ◽  
John Briere ◽  
...  
Keyword(s):  
Peer Support ◽  
Support Group ◽  
Psychosocial Outcomes ◽  
Review Of The Literature ◽  
Inclusion Criteria ◽  
Peer Support Group ◽  
Outpatient Group ◽  
Burn Survivors ◽  
The Impact ◽  
Group Programs

Abstract Introduction Providing peer support group programs for burn survivors and their caregivers is an integral part of facilitating short- and long-term psychosocial recovery. Despite this, there is a lack of availability and standardization of these groups, which is partly due to a paucity of literature on this subject. The purpose of this study is to review the literature of the various types of peer support groups programs and their subsequent impact on psychosocial outcomes for burn survivors and their families. Methods A systematic review of the literature utilizing PubMed, PsycINFO, and Medline, was conducted for articles published between 1990 and 2018. Searches used the AND function to identify articles that crossed both a burn term (burn patient OR burn survivor OR burn care OR burn recovery) and a support group-related term (support, peer participation, aftercare, burn camp, outpatient group, inpatient group, group training). Inclusion criteria were studies in English, human subjects, peer support group programs, and studies that assessed psychosocial outcomes. Results Twenty articles met our inclusion criteria (7 for outpatient groups, 3 for inpatient groups, 2 for combined inpatient/outpatient groups, and 8 for burn camps). For outpatient peer support programs, all articles (n=7) demonstrated improvements in psychosocial outcomes including life satisfaction, acceptance of self, and reduced levels of isolation. For inpatient programs, all articles (n=3) reported improvements in emotional processing, concerns from caregivers, and coping strategies. The 2 articles that examined combined inpatient/outpatient programs reported substantial declines in post-traumatic stress, depression, and anxiety. Interestingly, findings were inconsistent for burn camps, 5 articles reported improvements in self-esteem, social integration, and reduced anxiety and depression while 3 articles demonstrated no significant changes. Conclusions Peer support group programs in various settings improve psychosocial well-being for both patients and caregivers. Inpatient/outpatient regimens were consistently beneficial while burn camps had inconsistent findings. Applicability of Research to Practice Peer support group programs are necessary for effective burn survivor and caregiver healing, regardless of format. Our ABA-verified burn center is currently working on a study to determine optimal inpatient/outpatient regimens of peer support.

PT296 Screening for Rheumatic Heart Disease and the Impact of Borderline RHD

Global Heart ◽  
2016 ◽  
Vol 11 (2) ◽  
pp. e176
Author(s):  
G.P. Maguire ◽  
D. Atkinson ◽  
A. White ◽  
J. Carapetis ◽  
M. Remond
Keyword(s):  
Heart Disease ◽  
Rheumatic Heart Disease ◽  
The Impact ◽  
Rheumatic Heart

The Impact of Peer Support Group Programs on Psychosocial Outcomes for Burn Survivors and Caregivers: A Review of the Literature

2021 ◽  
Author(s):  
Paul Won ◽  
Mariel S Bello ◽  
Sarah A Stoycos ◽  
Brenda T Carrera ◽  
Dawn M Kurakazu ◽  
...  
Keyword(s):  
Peer Support ◽  
Support Group ◽  
Psychosocial Outcomes ◽  
Review Of The Literature ◽  
Post Traumatic Stress ◽  
Group Program ◽  
Peer Support Group ◽  
Burn Survivors ◽  
The Impact ◽  
Group Programs

Abstract Peer support group programs are often recommended for burn survivors as a way to facilitate their psychosocial recovery and reintegration into the community. Such programs provide opportunities for burn patients and their caretakers to access emotional and informational support from healthcare providers and other survivors in inpatient or outpatient settings. Despite their popularity, however, there is little information currently available on the efficacy of these groups. In response, we reviewed the existing literature on peer support group programs and their impacts on psychosocial outcomes for burn survivors and their caregivers. A systematic review of the literature utilizing PubMed, PsycINFO, and Medline databases was conducted for articles published between 1990 and 2018. Twenty-five articles including inpatient, outpatient, integrative peer support groups, and burn camps met our inclusion criteria. All inpatient peer support group program articles (n = 4) reported associations with psychosocial improvements. Integrative peer support group program articles (n = 2) reported associations with social integration and reduction in post-traumatic stress and anxiety. All outpatient peer support group program articles (n = 8) demonstrated associations with psychosocial outcomes involving life satisfaction, acceptance of self, and reduced levels of isolation. Findings were less consistent for burn camps: eight articles suggested improvements in psychological outcomes while three articles reported no significant psychosocial effects. Although these results are encouraging, further study is indicated both to replicate these findings, and to determine the optimal implementation of inpatient and outpatient peer support programs.

scholarly journals Health related quality of life among Rheumatic Fever and Rheumatic Heart Disease patients in India

PLoS ONE ◽  
2021 ◽  
Vol 16 (10) ◽  
pp. e0259340
Author(s):  
Jyoti Dixit ◽  
Gaurav Jyani ◽  
Shankar Prinja ◽  
Yashpaul Sharma
Keyword(s):  
Quality Of Life ◽  
Heart Disease ◽  
Rheumatic Fever ◽  
Rheumatic Heart Disease ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact ◽  
Rheumatic Heart

Background Measurement of health-related quality of life (HRQOL) of people with chronic illnesses has become extremely important as the mortality rates associated with such illnesses have decreased and survival rates have increased. Thereby, such measurements not only provide insights into physical, mental and social dimensions of patient’s health, but also allow monitoring of the results of interventions, complementing the traditional methods based on morbidity and mortality. Objective The present study was conducted to describe the HRQOL of patients suffering from Rheumatic Fever (RF) and Rheumatic Heart Disease (RHD), and to identify socio-demographic and clinical factors as predictors of HRQOL. Methodology A cross-sectional study was conducted to assess the HRQOL among 702 RF and RHD patients using EuroQol 5-dimensions 5-levels instrument (EQ-5D-5L), EuroQol Visual Analogue Scale and Time Trade off method. Mean EQ-5D-5L quality of life scores were calculated using EQ5D index value calculator across different stages of RF and RHD. Proportions of patients reporting problems in different attributes of EQ-5D-5L were calculated. The impact of socio-economic determinants on HRQOL was assessed. Results The mean EQ-5D-5L utility scores among RF, RHD and RHD with Congestive heart failure patients (CHF) were estimated as 0.952 [95% Confidence Interval (CI): 0.929–0.975], 0.820 [95% CI: 0.799–0.842] and 0.800 [95% CI: 0.772–0.829] respectively. The most frequently reported problem among RF/RHD patients was pain/discomfort (33.8%) followed by difficulty in performing usual activities (23.9%) patients, mobility (22.7%) and anxiety/depression (22%). Patients with an annual income of less than 50,000 Indian National Rupees (INR) reported the highest EQ-5D-5L score of 0.872, followed by those in the income group of more than INR 200,000 (0.835), INR 50,000–100,000 (0.832) and INR 100,000–200,000 (0.828). Better HRQOL was reported by RHD patients (including RHD with CHF) who underwent balloon valvotomy (0.806) as compared to valve replacement surgery (0.645). Conclusion RF and RHD significantly impact the HRQOL of patients. Interventions aiming to improve HRQOL of RF/RHD patients should focus upon ameliorating pain and implementation of secondary prevention strategies for reducing the progression from ARF to RHD and prevention of RHD-related complications.

Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa

2019 ◽  
Vol 243 ◽  
pp. 112619 ◽  
Author(s):  
Marlyn C. Faure ◽  
Olivia P. Matshabane ◽  
Patricia Marshall ◽  
Paul S. Appelbaum ◽  
Dan J. Stein ◽  
...  
Keyword(s):  
South Africa ◽  
Heart Disease ◽  
Rheumatic Heart Disease ◽  
Western Cape ◽  
Related Stigma ◽  
The Impact ◽  
Rheumatic Heart
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