scholarly journals Do negative emotions expressed during follow-up consultations with adolescent survivors of childhood cancer reflect late effects?

2017 ◽  
Vol 100 (11) ◽  
pp. 2098-2101 ◽  
Author(s):  
Anneli V. Mellblom ◽  
Ellen Ruud ◽  
Jon Håvard Loge ◽  
Hanne C. Lie
Keyword(s):  
Childhood Cancer ◽  
Late Effects ◽  
Negative Emotions ◽  
Survivors Of Childhood Cancer

scholarly journals Late effects in adult survivors of childhood cancer: the need for life-long follow-up

2007 ◽  
Vol 18 (11) ◽  
pp. 1898-1902 ◽  
Author(s):  
R. Blaauwbroek ◽  
K.H. Groenier ◽  
W.A. Kamps ◽  
B. Meyboom-de Jong ◽  
A. Postma
Keyword(s):  
Childhood Cancer ◽  
Late Effects ◽  
Adult Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals Identifying Priorities for Harmonizing Guidelines for the Long-Term Surveillance of Childhood Cancer Survivors in the Chinese Children Cancer Group (CCCG)

2021 ◽  
pp. 261-276
Author(s):  
Yin Ting Cheung ◽  
Hui Zhang ◽  
Jiaoyang Cai ◽  
Lung Wai Phillip Au-Doung ◽  
Lok Sum Yang ◽  
...  
Keyword(s):  
Focus Group ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Late Effects ◽  
Childhood Cancer Survivors ◽  
Delphi Survey ◽  
Cancer Group ◽  
Follow Up Care ◽  
Survivors Of Childhood Cancer

PURPOSE Survivors of childhood cancer often experience treatment-related chronic health conditions. Given its vast population, China shares a large proportion of the global childhood cancer burden. Yet, screening and treatment of late effects in survivors of childhood cancer remain underaddressed in most regions of China. This study aimed to identify high-priority late effects for harmonizing screening guidelines within the Chinese Children's Cancer Group (CCCG), as well as barriers and enablers of the implementation of surveillance recommendations in local practice. METHODS To establish clinical consensus, 12 expert panelists who represent major institutions within the CCCG completed a Delphi survey and participated in a focus group discussion. The survey solicited ratings of the prevalence, severity, and priority for screening of 45 late effects. Major themes identified from the focus group were analyzed using thematic analysis. RESULTS The Delphi survey identified eight high-priority late effects for harmonization within CCCG: osteonecrosis, osteoporosis, left ventricular dysfunction, secondary brain tumors, treatment-related myeloid leukemia, gonadal dysfunction, growth hormone deficiency, and neurocognitive deficits. The common barriers to implementing survivorship programs include lack of support and resources for clinicians to provide follow-up care. Patients were also concerned about privacy issues and lacked awareness of late effects. Many institutions also lacked rehabilitation expertise and referral pathways. CONCLUSION By identifying obstacles related to the professional setting, patient behavior, and organization of care, our study identified resources and a framework for establishing collaborative strategies to facilitate follow-up care of childhood cancer survivors in China.

scholarly journals Childhood cancer survivorship: barriers and preferences

2019 ◽  
pp. bmjspcare-2019-002001
Author(s):  
Christina Signorelli ◽  
Claire Wakefield ◽  
Jordana K McLoone ◽  
Joanna Fardell ◽  
Janelle M Jones ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Late Effects ◽  
Age Groups ◽  
Patient Reported ◽  
Childhood Cancer Survivorship ◽  
Young Survivors ◽  
Adolescent And Young Adults ◽  
Survivors Of Childhood Cancer ◽  
To Receive

ObjectiveMany survivors are disengaged from follow-up, mandating alternative models of survivorship-focused care for late effects surveillance. We explored survivors’ barriers to accessing, and preferences for survivorship care.MethodsWe invited Australian and New Zealand survivors of childhood cancer from three age groups: <16 years (represented by parents), 16–25 years (adolescent and young adults (AYAs)) and >25 years (‘older survivors’). Participants completed questionnaires and optional interviews.Results633 survivors/parents completed questionnaires: 187 parents of young survivors (mean age: 12.4 years), 251 AYAs (mean age: 20.6 years) and 195 older survivors (mean age: 32.5 years). Quantitative data were complemented by 151 in-depth interviews. Most participants, across all age groups, preferred specialised follow-up (ie, involving oncologists, nurses or a multidisciplinary team; 86%–97%). Many (36%–58%) were unwilling to receive community-based follow-up. More parents (75%) than AYAs (58%) and older survivors (30%) were engaged in specialised follow-up. While follow-up engagement was significantly lower in older survivors, survivors’ prevalence of late effects increased. Of those attending a follow-up clinic, 34%–56% were satisfied with their care, compared with 14%–15% of those not receiving cancer-focused care (p<0.001). Commonly reported barriers included lack of awareness about follow-up availability (67%), followed by logistical (65%), care-related beliefs (59%) and financial reasons (57%). Older survivors (p<0.001), living outside major cities (p=0.008), and who were further from diagnosis (p=0.014) reported a higher number of barriers.ConclusionsUnderstanding patient-reported barriers, and tailoring care to survivors’ follow-up preferences, may improve engagement with care and ensure that the survivorship needs of this population are met.

Late Effects in Survivors of Childhood Cancer

2006 ◽  
Vol 27 (7) ◽  
pp. 257-263
Author(s):  
Mandy M. Meck ◽  
Margaret Leary ◽  
Richard H. Sills
Keyword(s):  
Childhood Cancer ◽  
Late Effects ◽  
Survivors Of Childhood Cancer

Comparison of self-reported late effects with medical records among survivors of childhood cancer

2010 ◽  
Vol 46 (6) ◽  
pp. 1069-1078 ◽  
Author(s):  
Naomi Taylor ◽  
Kate Absolom ◽  
Gisela Michel ◽  
Tanya Urquhart ◽  
Mary Gerrard ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Late Effects ◽  
Medical Records ◽  
Survivors Of Childhood Cancer
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