Comparing support to breast cancer patients from online communities and face-to-face support groups

2011 ◽  
Vol 85 (2) ◽  
pp. e95-e100 ◽  
Author(s):  
Yoko Setoyama ◽  
Yoshihiko Yamazaki ◽  
Kazuhiro Nakayama
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Support Groups ◽  
Online Communities ◽  
Breast Cancer Patients ◽  
Face To Face ◽  
Face Support

The effect of sukshma vyayama joint loosening yoga on aromatase inhibitor-induced arthralgia (AI) in breast cancer patients: A feasibility study conducted on Facebook.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e23129-e23129
Author(s):  
L. Leigh Leibel ◽  
Kashinath G. Metri ◽  
Rajendra Prasad ◽  
J. Gregory Mears
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Support Groups ◽  
Joint Pain ◽  
Therapeutic Modality ◽  
Breast Cancer Patients ◽  
Cancer Support ◽  
Before And After ◽  
Cancer Care Continuum ◽  
Study Intervention

e23129 Background: AI therapy causes joint pain in up to half of women, and up to 20% become non-compliant with treatment due to pain and discomfort. This pilot study investigated the efficacy of sukshma vyayama in improving AI-induced joint pain and evaluated the feasibility of delivering the intervention on Facebook. Methods: Breast cancer patients undergoing treatment with AI's with self-reported arthralgia were recruited via an IRB-approved announcement posted in two closed breast cancer support groups on Facebook to participate in a yoga study delivered on Facebook. Participants completed BPI, DASH, PRAI and WOMAC questionnaires before and after the study. Intervention consisted of 12 joint loosening exercises performed in a chair, once daily for 12 minutes, Monday-Friday for 4 weeks. Asynchronous video demonstrations were available in a secret Facebook group and viewing confirmed by typing "done" (time-stamped) in comments. Results: 200 women responded. 38 met the inclusion criteria/consent, 26 completed the online consent, interventions and pre/post questionnaires. Paired simple t tests results showed significant (P < 0.05) improvement in all the pain measures and quality of life parameters after yoga intervention compared to baseline. Conclusions: This study provides the first evidence that it is feasible to teach sukshma vyayama to patients on Facebook and that the intervention significantly improves AI-induced arthralgia. Teaching yoga via social media may provide better access to this therapeutic modality to patients at all points in the cancer care continuum globally. [Table: see text]

A Randomized Controlled Trail of A Narrative Therapy Technique Intervention To Facilitate The Life Meaning In Chinese Breast Cancer Patients During Chemotherapy: Study Protocol

2021 ◽  
Author(s):  
Lijing Lu ◽  
Ningning Lu ◽  
Ying Lou ◽  
Jingyi Shan ◽  
Aifeng Meng ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Narrative Therapy ◽  
Meaning In Life ◽  
Intervention Program ◽  
Breast Cancer Patients ◽  
Life Meaning ◽  
Face To Face ◽  
Randomized Controlled ◽  
Therapy Technique

Abstract Aim:The purpose of this protocol is to illustrate the feasibility and effectiveness of face-to-face intervention based on narrative therapy to enhance the sense of meaning in life and other relevant psychological indicators for Chinese breast cancer patients during chemotherapy.Background:The sense of meaning in life can relieve the negative emotions,improve patients' quality of life,enhance treatment compliance,tap the potential of coping with trauma and so on.Breast cancer patients with chemotherapy are facing more severe psychological distress and the existing intervention studies are less and the target population is not suitable for breast cancer patients with chemotherapy.Through narrative psychotherapy,the psychological growth of patients can be achieved.This protocol is based on a brief face‐to‐face narrative therapy technique intervention to improve life meaning for breast cancer patients during chemotherapy.Design:A non-blinded randomized controlled trial.Methods:92 breast cancer chemotherapy patients were randomly divided into the experimental group and the control group in a 1:1 ratio,and 6 face-to-face individualized interventions were conducted.The four evaluations were conducted after diagnosis,the third intervention,the last intervention,and three months after the last intervention.The main evaluation indicators were the sense of meaning of life,the level of anxiety and depression,the level of post-traumatic growth,psychological distress and medical coping style.Discussion:The purpose of this study is to construct an intervention program based on narrative therapy technology to improve the life meaning of Chinese breast cancer patients undergoing chemotherapy.If the intervention program is effective and feasible,it can be applied in clinic and benefit patients.Impact:This study will provide a reference template for clinical psychological intervention,allowing breast cancer patients to reconstruct the meaning of life in trauma.If this protocol is effective,it will be applied in clinic.Trial registration:This trial was registered on Chinese clinical Trials.gov (ChiCTR2000034409),the registration date is 04/07/2020.Registered url is http://www.chictr.org.cn/index.aspxThis study was reviewed by the ethics committee of Nanjing Medical University. The results showed that the rights and interests of the subjects were fully protected, and there was no potential risk for the subjects. This study was agreed to carry out.

Incidence of breast pain in breast cancer patients in a multi-ethnic cohort.

2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e24085-e24085
Author(s):  
Jami Aya Fukui ◽  
Madison Meister ◽  
Ian Pagano ◽  
Erin Bantum
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Native Hawaiian ◽  
Breast Cancer Surgery ◽  
Mcgill Pain Questionnaire ◽  
Breast Pain ◽  
Breast Cancer Patients ◽  
Pain Questionnaire ◽  
Face To Face ◽  
Type Of Surgery

e24085 Background: Breast cancer is the most common cancer in women. Prevalence rates for persistent pain following breast cancer surgery are reported to be up to 60%. Younger age, radiation, more invasive surgery, and acute post-operative pain have been identified as predictors of chronic pain after surgery. Several studies have looked at factors predicting breast pain, but to our knowledge none of these studies have reported on perceived pain among ethnic groups beyond white and non-white comparisons. Methods: Participants were asked to complete an anonymous breast pain questionnaire based on the McGill pain questionnaire, either online or face-to-face in a clinical setting. Incidence and type of breast pain, common risk factors (age, type of surgery, treatment: chemotherapy, radiation and endocrine therapy), and race/ethnicity was collected and analyzed through descriptive and multivariate analysis. Results: 238 responses were collected and analyzed. About 36% of participants reported breast pain, where 82% reported these symptoms for more than a year. More than 71% identified as non-white, with the majority identifying as Asian (50%) followed by White (11%), Multi-ethnic (9%) and Native Hawaiian (8%). The majority of participants were older than 60 years of age (57%), with 30% being older than 70. Japanese, Filipino and Native Hawaiian participants reported significantly more pain compared to White participants (p < .0001). The majority of participants reported a 3/10 pain level on a pain scale and described overall breast pain as mild. The most common descriptor of mild pain was aching and represents the dullness pain characteristic. The most common descriptor of moderate pain was sharp characterizing an incisive pressure, and the most common descriptors of severe pain were heavy, tender, shooting and throbbing, representing various pain characteristics. Participants who were undergoing radiation (p < .0001) or chemotherapy (p < .05) reported statistically higher breast pain, although there were no differences in breast pain according to the type of surgery (mastectomy vs lumpectomy). Participants who completed the survey online also reported more pain (p < .0001) than participants who completed the survey face-to-face. Conclusions: Breast pain is a significant problem in our breast cancer community. This questionnaire has informed our understanding of the type of pain our multi-ethnic breast cancer patients are experiencing and in turn we are developing culturally appropriate pain management strategies to treat this challenging symptom for breast cancer survivors.

scholarly journals Experiences of Patients Diagnosed and Living With Metastatic Breast Cancer in Kumasi, Ghana: A Lesion to Learn From Low-Middle Income Country

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 8s-8s
Author(s):  
C. Asoogo ◽  
M. Hoyte-Williams ◽  
B. Dwobeng ◽  
D. Sam ◽  
E. Amankwa-Frimpong
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Metastatic Breast Cancer ◽  
Cancer Patients ◽  
Support Groups ◽  
Metastatic Breast ◽  
Care Providers ◽  
Breast Cancer Patients ◽  
Financial Changes ◽  
Fear And Anxiety

Background: Breast cancer is a leading cause of death among women in Ghana. About 50% of cases seen at the oncology directorate are breast cancer-related, and 85% of these cases present in advanced stage with very poor prognosis and high mortality. Objectives: To explore and describe the experiences of patients diagnosed and living with metastatic breast cancer. Methods: A cross sectional descriptive study design was used to involved breast cancer patients at Komfo Anokye Teaching Hospital who comes from various social and ethnic groups as well as geographically distinct areas from the vast territory of the Ashanti region and the Northern part of Ghana. Convenient sampling was used to select 120 participants for the study using semistructured questionnaire. Data of their social and demographic background and experiences living with metastatic breast cancer were obtained after seeking informed consent. Results: The study revealed that 12% of participants diagnosed and living with metastatic breast cancer experience loneliness and devastated, 22% experience fear and anxiety, while 35% experience stigma from both family and the society. Moreover, feeling of anger and hopelessness also account for 15%, 11% experience financial changes, while 5% of participants experience both physical and emotional pain with their diagnosis and treatment. Recommendations were made for policy makers, health care professionals, and other researchers. These include the need for intensified metastatic breast cancer awareness campaigns, educating health care providers on the need for professional counseling on metastatic breast cancer and the need to organized support groups, so that patients could contact each other. Emphasis should be placed on training of nurses to deal with issues relating to metastatic breast cancer. Conclusion: Generally, fear and anxiety, stigma, feeling of loneliness, devastated, anger and hopelessness, emotional and physical pain and financial changes are the variables that explain the experiences of women diagnosed and living with metastatic breast cancer. Some support groups has shown an improvement, therefore efforts to raise public awareness of metastatic breast cancer should be continued. The current study became imperative to fill this identified gap and improve health interventions and health outcomes for metastatic breast cancer patients in future.

Influential Factors in Breast Cancer Patients' Performance Using Malaysian Social Network Support Groups

2019 ◽  
Vol 14 (4) ◽  
pp. 73-90
Author(s):  
Marva Mirabolghasemi ◽  
Noorminshah A. Iahad ◽  
T. Ramayah
Keyword(s):  
Breast Cancer ◽  
Social Network ◽  
Cancer Patients ◽  
Support Groups ◽  
Breast Cancer Patients ◽  
Network Support ◽  
Cancer Support ◽  
Social Network Support ◽  
Task Technology Fit ◽  
And Task

Social network communities can serve as a health resource for cancer patients to share and disseminate information. Even so, theory-based research into evaluating cancer patients' performance empirically using social network sites (SNSs) is limited, representing an identifiable knowledge gap. This study proposes a research model that integrates social cognitive theory and task technology fit theory to contribute to the understanding of key factors impacting the performance of breast cancer patients using SNSs. Data were collected via a structured paper-based questionnaire. A total of one hundred seventy-eight (178) participants from six cancer support groups and hospitals in Peninsular Malaysia responded to the administered survey. Survey data were analyzed using the partial least squares (PLS) method while Smart PLS was used to test the hypotheses and to validate the proposed model. Results indicate that outcome expectation, self-efficacy, negative affect, positive affect, social support and task technology fit are significant factors affecting the performance of breast cancer patients vis-à-vis Malaysian social network support groups.

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