Perceived Impact of the Namaste Care Family Program on People with Advanced Dementia, Nursing Staff, and Family Caregivers: A Qualitative Study

2019 ◽  
Vol 20 (3) ◽  
pp. B31 ◽  
Author(s):  
Hanneke Smaling ◽  
H. Smaling ◽  
K. Joling ◽  
S. Doncker ◽  
W. Achterberg ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Nursing Staff ◽  
Advanced Dementia ◽  
Family Program ◽  
Care Family ◽  
Perceived Impact

scholarly journals THE EFFECTS OF THE NAMASTE CARE FAMILY PROGRAM ON QUALITY OF LIFE OF PEOPLE WITH ADVANCED DEMENTIA

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S824-S824
Author(s):  
Jenny T van der Steen ◽  
Karlijn J Joling ◽  
Anneke L Francke ◽  
Wilco P Achterberg ◽  
Hanneke J A Smaling
Keyword(s):  
Quality Of Life ◽  
Nursing Homes ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Intervention Group ◽  
Secondary Outcome ◽  
Advanced Dementia ◽  
Family Program ◽  
Care Family

Abstract People with advanced dementia often die in nursing homes. Family caregivers frequently feel that their loved one’s quality of life and dying is suboptimal. The daily Namaste Care Family program -derived from the US Namaste Care program- involves family caregivers and integrates personalized care with meaningful activities for people with advanced dementia. A cluster-randomized controlled trial (December 2016 - December 2018) examined effects of the Namaste Care Family program on resident and family caregiver outcomes. Ten Dutch nursing homes implemented Namaste Care Family for 117 residents, while nine nursing homes provided usual care for 114 residents in the study. Nursing staff assessed quality of life over the last week with the Quality of Life in Late-Stage Dementia (QUALID, the primary resident outcome measure). Research assistants observed discomfort during the sessions with the Discomfort Scale-Dementia of Alzheimer Type (DS-DAT). Assessments were at baseline and after 1, 3, 6, and 12 months. We found a significant difference in QUALID score at 12 months favoring quality of life in the intervention group. Further, the intervention group showed less signs of discomfort at 3, 6, and 12 months compared with the control group. The Namaste Care Family program can improve quality of life of people with advanced dementia in the long run. These study findings support sustained implementation of the daily program in nursing homes. Further analyses of effects on the other outcomes will include blinded DS-DAT assessments, more secondary outcome measures and family caregiver outcomes.

scholarly journals Family involvement in the Namaste Care Family program for dementia: A qualitative study on experiences of family, nursing home staff, and volunteers

2021 ◽  
pp. 103968
Author(s):  
Petra. E.M. Tasseron-Dries ◽  
Hanneke J.A. Smaling ◽  
Sarah M.M.M Doncker ◽  
Prof. Wilco P. Achterberg ◽  
Jenny T. van der Steen
Keyword(s):  
Nursing Home ◽  
Qualitative Study ◽  
Family Involvement ◽  
Nursing Home Staff ◽  
Family Nursing ◽  
Family Program ◽  
Care Family

scholarly journals Effects of the Namaste Care Family programme on quality of life of nursing home residents with advanced dementia and on family caregiving experiences: study protocol of a cluster-randomised controlled trial

BMJ Open ◽  
2018 ◽  
Vol 8 (10) ◽  
pp. e025411 ◽  
Author(s):  
Hanneke J A Smaling ◽  
Karlijn J Joling ◽  
Peter M van de Ven ◽  
Judith E Bosmans ◽  
Joyce Simard ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Controlled Trial ◽  
Cluster Randomised Controlled Trial ◽  
Advanced Dementia ◽  
Cluster Randomised ◽  
Care Family ◽  
Randomised Controlled

IntroductionQuality of life of people with advanced dementia living in nursing homes is often suboptimal. Family caregivers can feel frustrated with limited contact with their relatives, which results in visits that are perceived as stressful and not very meaningful. Few psychosocial interventions are specifically developed for people with advanced dementia, and actively involve family caregivers or volunteers. Also, interventions usually stop when it becomes difficult for people to participate. The Namaste Care Family programme aims to increase the quality of life of people with advanced dementia, and improve family caregiving experiences through connecting to people and making them comfortable.Methods and analysisOur study will evaluate the effects of the Namaste Care Family programme on quality of life of people with advanced dementia living in nursing homes and family caregiving experiences using a cluster-randomised controlled trial. Longitudinal analyses will be performed taking into account clustering at the nursing home level. Both a cost-effectiveness and a cost-utility analysis from a societal perspective will be performed. We will modify the Namaste Care Family programme to increase family and volunteer involvement in ongoing and end-of-life care. Data collection involves assessments by family caregivers, nursing staff and elderly care physicians using questionnaires, and observations by the researchers at baseline and multiple times over 12 months. The last questionnaire will be sent up to month 24 after the death of the person with dementia. During semistructured interviews, the feasibility, accessibility and sustainability of the Namaste Care Family programme will be assessed.Ethics and disseminationThe study protocol is approved by the Medical Ethics Review Committee of the VU University Medical Center in Amsterdam (protocol no. 2016.399) and registered with the Nederlands Trial Register (NTR5692). The findings will be disseminated via publications in peer-reviewed journals, conference presentations and presentations for healthcare professionals where appropriate.Trial registration numberNTR5692.

scholarly journals Dementia Caregiving: The Association Between Family Caregiving Strain and Receipt of Paid Care

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 572-572
Author(s):  
Jennifer Reckrey ◽  
Evan Bollens-Lund ◽  
Emma Tsui ◽  
Kathrin Boerner ◽  
Katherine Ornstein
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Caregiver Strain ◽  
National Study ◽  
Advanced Dementia ◽  
Multivariable Model ◽  
Dementia Caregiving ◽  
Care Family ◽  
Using Data ◽  
Paid Caregivers

Abstract family caregivers. Using data from three waves (2011, 2015, 2017) of the National Health and Aging Trends Study (NHATS) linked to the National Study of Caregiving (NSOC), we identified family caregivers of those with advanced dementia and compared caregiving strain among those with zero, <20, and 20+ hours/week paid care. Family caregivers of those who received 20+ hours (26% of the sample) reported less caregiver strain (mean score 3.27 vs 4.15, p=0.04) and less frequently reported having more to do than they could handle (46.1% vs 67.9%, p=0.01) or not having enough time for themselves (46.8% vs 72.2%, p<0.01). The association persisted in a multivariable model. These results support the conceptualization of dynamic and potentially multidirectional relationships between paid and family caregivers and suggest that paid caregivers impact both those receiving care and their families.

scholarly journals Caring for a person with dementia during the COVID-19 pandemic: A qualitative study with family caregivers

2021 ◽  
pp. 1-36
Author(s):  
Sabrina Cipolletta ◽  
Benedetta Morandini ◽  
Silvia Caterina Maria Tomaino
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Person With Dementia

Pharmacists’ perspectives on medication reviews for long-term care residents with advanced dementia: a qualitative study

2019 ◽  
Vol 41 (4) ◽  
pp. 950-962 ◽  
Author(s):  
Domenica Disalvo ◽  
Tim Luckett ◽  
Alexandra Bennett ◽  
Patricia Davidson ◽  
Meera Agar
Keyword(s):  
Qualitative Study ◽  
Long Term Care ◽  
Advanced Dementia ◽  
Term Care ◽  
Medication Reviews
Sign in / Sign up

Export Citation Format

Share Document