scholarly journals Nursing Staff Distress Associated With Neuropsychiatric Symptoms in Young-Onset Dementia and Late-Onset Dementia

2018 ◽  
Vol 19 (7) ◽  
pp. 627-632 ◽  
Author(s):  
Jeannette C.L. van Duinen-van den IJssel ◽  
Ans J.M.J. Mulders ◽  
Martin Smalbrugge ◽  
Sandra A. Zwijsen ◽  
Britt Appelhof ◽  
...  
Keyword(s):  
Nursing Staff ◽  
Late Onset ◽  
Neuropsychiatric Symptoms ◽  
Young Onset ◽  
Young Onset Dementia ◽  
Late Onset Dementia

scholarly journals Differences in neuropsychiatric symptoms between nursing home residents with young-onset dementia and late-onset dementia

2018 ◽  
Vol 23 (5) ◽  
pp. 581-586 ◽  
Author(s):  
Britt Appelhof ◽  
Christian Bakker ◽  
Jeannette C. L. Van Duinen-van Den IJssel ◽  
Sandra A. Zwijsen ◽  
Martin Smalbrugge ◽  
...  
Keyword(s):  
Nursing Home ◽  
Late Onset ◽  
Neuropsychiatric Symptoms ◽  
Nursing Home Residents ◽  
Young Onset ◽  
Young Onset Dementia ◽  
Late Onset Dementia

scholarly journals Quality of Life in People with Young-Onset Alzheimer’s Dementia and Frontotemporal Dementia

2018 ◽  
Vol 45 (1-2) ◽  
pp. 91-104 ◽  
Author(s):  
Lara Hvidsten ◽  
Knut Engedal ◽  
Geir Selbæk ◽  
Torgeir Bruun Wyller ◽  
Frøydis Bruvik ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Late Onset ◽  
Neuropsychiatric Symptoms ◽  
The Elderly ◽  
Community Dwelling ◽  
Cross Sectional ◽  
Young Onset ◽  
Proxy Version ◽  
Late Onset Dementia

Aims: The aims of this study were to compare quality of life (QOL) in people with young-onset Alzheimer’s (AD) and frontotemporal (FTD) dementia, explore variables associated with QOL, and compare QOL in young-onset dementia (YOD) and late-onset dementia (LOD). Methods: Cross-sectional data from a Nordic multicenter study of 50 community-dwelling participants with AD and 38 with FTD were included. A comparison group consisted of 100 people with LOD. QOL was measured using self-reported Euro-QOL 5-Dimension and the proxy version of Quality of Life in Alzheimer’s Disease (QOL-AD) questionnaire. Neuropsychiatric symptoms and needs were assessed using the Cornell Scale for Depression in Dementia (CSDD), Neuropsychiatric Inventory (NPI), and Camberwell Assessment of Needs in the Elderly. Multiple linear regression and multilevel modeling was used to determine variables associated with QOL. Results: We found no differences between the two YOD groups in QOL. The variables associated with QOL were scores on the CSDD, NPI, and unmet needs. The proxy QOL-AD score in YOD was significantly higher compared to LOD (median 36.0 [IQR 10.0] vs. 33.0 [IQR 9.0]). Conclusion: The QOL in Nordic people with YOD was better compared to people with LOD. Our results show depressive symptoms to be associated with QOL irrespective of age and diagnosis.

scholarly journals Patients with young-onset dementia in an older people's mental health service

2020 ◽  
pp. 1-5
Author(s):  
Michael Yeung ◽  
Katherine MacFarland ◽  
Vincent Mlilo ◽  
Nathan Dean ◽  
Benjamin R. Underwood
Keyword(s):  
Late Onset ◽  
Rare Condition ◽  
Service Level ◽  
Case Review ◽  
Young Onset ◽  
Dementia Patients ◽  
Level Data ◽  
Diagnosis Of Dementia ◽  
Young Onset Dementia ◽  
Late Onset Dementia

Aims and method Currently, no separate service exists for patients with young-onset dementia in Cambridgeshire. These patients are managed together with late-onset dementia patients within old age psychiatry services. To inform service design, we sought to characterise young-onset dementia patients in our population. We first analysed service-level data and supplemented this with a detailed case review of 90 patients. Results Young-onset dementia remains a relatively rare condition. Only a small proportion of those referred for assessment receive a diagnosis of dementia. Data collected on presenting complaints, comorbidities, medication and Health of the Nation Outcome Scales scores associated young-onset dementia with a greater incidence of depression than late-onset dementia. Outcomes in the two groups did not appear to differ. Clinical implications The data presented here do not suggest a need to create a separate service. Practitioners should be aware of the increased incidence of depression observed in this group.

Time to diagnosis in young-onset dementia as compared with late-onset dementia

2012 ◽  
Vol 43 (2) ◽  
pp. 423-432 ◽  
Author(s):  
D. van Vliet ◽  
M. E. de Vugt ◽  
C. Bakker ◽  
Y. A. L. Pijnenburg ◽  
M. J. F. J. Vernooij-Dassen ◽  
...  
Keyword(s):  
Symptom Onset ◽  
Late Onset ◽  
Linear Regression Analysis ◽  
Age At Onset ◽  
Multiple Linear Regression Analysis ◽  
Living Situation ◽  
Young Onset ◽  
Time To Diagnosis ◽  
Young Onset Dementia ◽  
Late Onset Dementia

BackgroundThe extent to which specific factors influence diagnostic delays in dementia is unclear. Therefore, the aim of the present study was to compare duration from symptom onset to diagnosis for young-onset dementia (YOD) and late-onset dementia (LOD) and to assess the effect of age at onset, type of dementia, gender, living situation, education and family history of dementia on this duration.MethodData on 235 YOD and 167 LOD patients collected from caregivers from two prospective cohort studies were used. Multiple linear regression analysis was performed.ResultsThe duration between symptom onset and the diagnosis of YOD exceeded that of LOD by an average of 1.6 years (2.8 v. 4.4 years). Young age and being diagnosed with frontotemporal dementia were related to increases in the time to diagnosis. Subjects with vascular dementia experienced shorter time to diagnosis.ConclusionsThere is a need to raise special awareness of YOD to facilitate a timely diagnosis.

The Impact of Young Onset Dementia on Informal Caregivers Compared with Late Onset Dementia: Results from the NeedYD Study

2016 ◽  
Vol 24 (6) ◽  
pp. 467-474 ◽  
Author(s):  
Joany K. Millenaar ◽  
Marjolein E. de Vugt ◽  
Christian Bakker ◽  
Deliane van Vliet ◽  
Yolande A.L. Pijnenburg ◽  
...  
Keyword(s):  
Late Onset ◽  
Informal Caregivers ◽  
Young Onset ◽  
Young Onset Dementia ◽  
The Impact ◽  
Late Onset Dementia

scholarly journals 206 - Suicide and euthanasia in young onset dementia

2020 ◽  
Vol 32 (S1) ◽  
pp. 42-42
Keyword(s):  
Suicide Ideation ◽  
Late Onset ◽  
Brain Disorders ◽  
Life Situation ◽  
Young Onset ◽  
Great Transformation ◽  
Young Onset Dementia ◽  
Scientific Purpose ◽  
Late Onset Dementia

BackgroundDementia affects people that have not reached the age of 65 years. Persons diagnosed with dementia before this age, are often referred to as people with “young onset dementia". They are normally diagnosed in a later stage of the disorder compared to their older peers. This, probably due to a larger variety of brain disorders causing dementia among young persons compared to what is the case among elderly. People with young onset dementia experience a great transformation of existential life. Studies have shown that they are more aware of the disease and depressed than people with late onset dementia. The awareness of disease increases the risk of suicide ideation in this population. Health personnel should therefore be more trained to detect and diagnose young persons with dementia at an earlier stage, to meet their needs. Providing tailored services to them and their families may contribute to prevent suicide and adequately address thoughts about ending life.Content of the SessionWe will organize four lectures with speakers from Brazil, Norway, the Netherlands and Portugal. The first lecture will contain results focusing on awareness of the disease and suicide ideation and the different awareness between persons with young onset of dementia and late onset dementia. The second and third lecture will report results from two qualitative studies, in which young persons with dementia have been interviewed express ideas about suicide and end of life. The last one will build on a case report to discuss the role of family interventions in the clinical context of YOD, including scenarios involving including scenarios involving suicidality and challenges related with the legalization of euthanasia.Scientific PurposeTo contribute to the development of knowledge and understanding of the situation of young persons with dementia and their life situation based on three scientific studies and a clinically based discussion of the topic.

O1.06: The impact of young onset dementia on caregivers compared to late onset dementia: Results from the NeedYD study

2014 ◽  
Vol 5 ◽  
pp. S46 ◽  
Author(s):  
J.K. Millenaar ◽  
M.E. de Vugt ◽  
C. Bakker ◽  
D. van Vliet ◽  
Y.A.L. Pijnenburg ◽  
...  
Keyword(s):  
Late Onset ◽  
Young Onset ◽  
Young Onset Dementia ◽  
The Impact ◽  
Late Onset Dementia

Predictors of the Time to Institutionalization in Young- Versus Late-Onset Dementia: Results From the Needs in Young Onset Dementia (NeedYD) Study

2013 ◽  
Vol 14 (4) ◽  
pp. 248-253 ◽  
Author(s):  
Christian Bakker ◽  
Marjolein E. de Vugt ◽  
Deliane van Vliet ◽  
Frans R.J. Verhey ◽  
Yolande A. Pijnenburg ◽  
...  
Keyword(s):  
Late Onset ◽  
Young Onset ◽  
Young Onset Dementia ◽  
Late Onset Dementia

Characteristics of institutionalized young onset dementia patients – the BEYOnD study

2014 ◽  
Vol 26 (12) ◽  
pp. 1973-1981 ◽  
Author(s):  
A.J.M.J. Mulders ◽  
S.U. Zuidema ◽  
F.R. Verhey ◽  
R.T.C.M. Koopmans
Keyword(s):  
Late Onset ◽  
Neuropsychiatric Symptoms ◽  
Community Dwelling ◽  
Assessment Instrument ◽  
Care Homes ◽  
Data Set ◽  
Female Population ◽  
Young Onset ◽  
Dementia Severity ◽  
Young Onset Dementia

ABSTRACTBackground:People with Young Onset Dementia (YOD) have specific needs for care. These people eventually require institutional care, usually delivered by institutions designed for the elderly. The Dutch network of care organizations delivering specialized YOD care offers a unique opportunity to obtain more knowledge of this special population.Methods:Our cross-sectional study collected data from 230 people with YOD in eight care homes providing YOD specialized care. Data collected: demographic data, disease duration, dementia subtype, comorbidity, dementia severity (Global Deterioration Scale – GDS), neuropsychiatric symptoms (NPS; Neuropsychiatric Inventory – NPI, Cohen Mansfield Agitation Inventory – CMAI), disease awareness (Guidelines for the Rating of Awareness Deficits – GRAD), need for assistance (hierarchic Activities of Daily Living (ADL) scale – Resident Assessment Instrument – Minimum Data Set (RAI-MDS)).Results:The mean age of the residents with YOD in care homes was 60 years and 53% of them were men. There is a large variety of etiologic diagnoses underlying the dementia. Dementia severity was very mild to mild in 18%, moderate in 25%, and severe or very severe in 58% of the participants. The prevalence of NPS was high with 90% exhibiting one or more clinically relevant NPS. Comorbidity was present in more than three quarters of the participants, most frequently psychiatric disorders.Conclusions:The institutionalized YOD population is heterogeneous. NPS occur in almost all institutionalized people with YOD, and frequency and severity of NPS are higher than in late onset dementia (LOD) and community-dwelling YOD patients. Care should be delivered in settings accommodating a mixed male and female population, with appropriate, meaningful activities for all individuals. Further research is needed on NPS in YOD, to enhance quality of life and work in specialized YOD-care.

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