scholarly journals Natural History of Feeding-Tube Use in Nursing Home Residents With Advanced Dementia

2009 ◽  
Vol 10 (4) ◽  
pp. 264-270 ◽  
Author(s):  
Sylvia Kuo ◽  
Ramona L. Rhodes ◽  
Susan L. Mitchell ◽  
Vincent Mor ◽  
Joan M. Teno
Keyword(s):  
Nursing Home ◽  
Natural History ◽  
Nursing Home Residents ◽  
Feeding Tube ◽  
Advanced Dementia ◽  
History Of

Natural History of Pressure Injury Among Ethnically/Racially Diverse Nursing Home Residents: The Pressure Ulcer Detection Study

2021 ◽  
Vol 47 (3) ◽  
pp. 37-46
Author(s):  
Barbara M. Bates-Jensen ◽  
Kailey Anber ◽  
Maximus M. Chen ◽  
Sierra Collins ◽  
Adriana N. Esparza ◽  
...  
Keyword(s):  
Nursing Home ◽  
Natural History ◽  
Pressure Ulcer ◽  
Nursing Home Residents ◽  
Racially Diverse ◽  
Pressure Injury ◽  
History Of ◽  
Ulcer Detection

Natural History of Change in Physical Function Among Long-Stay Nursing Home Residents

2003 ◽  
Vol 52 (2) ◽  
pp. 119-126 ◽  
Author(s):  
Eleanor S. McConnell ◽  
Laurence G. Branch ◽  
Richard J. Sloane ◽  
Carl F. Pieper
Keyword(s):  
Nursing Home ◽  
Natural History ◽  
Physical Function ◽  
Nursing Home Residents ◽  
History Of

Impact of Race on Decision Making for Nursing Home Residents With Advanced Dementia: Can We Disrupt and Transform?

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 414-414
Author(s):  
Ruth Lopez ◽  
Ashley Roach ◽  
Meghan Hendricksen ◽  
Anita Rogers ◽  
Fayron Epps ◽  
...  
Keyword(s):  
Decision Making ◽  
Nursing Home ◽  
Racial Differences ◽  
Nursing Home Residents ◽  
Feeding Tube ◽  
Advanced Dementia ◽  
Structured Interviews ◽  
Advance Study ◽  
Staff Members ◽  
Hospital Transfer

Abstract Despite 20 years of research and numerous experts and associations advocating a palliative approach to care for nursing home (NH) residents with advanced dementia, research consistently demonstrate striking and persistent racial differences in the use of burdensome interventions such as feeding tubes and hospital transfer. Most notable is that Black NH residents experience more burdensome interventions at the end of life. The reasons for these differences are poorly understood. The purpose of this study was to examine NH staff members’ perceptions of advance care planning with proxies of Black and White residents. We conducted thematic analysis of semi-structured interviews with 158 NH staff members gathered as part of the ADVANCE study. This is a large qualitative study in 13 NHs in 4 regions of the country aimed at explaining regional and racial factors influencing feeding tube and hospital transfer rates. We found that NH staff, regardless of region of the country, held several assumptions about Black proxies including: being attached or not wanting to let go; not wanting to talk about death, believing everything must be done; not wanting to play God; having large conflicted families, not trusting; putting on attitude, and tending not to use NHs. We found that these assumptions led some NH staff to feel that rather than engaging in shared decision making, they were engaged in a battle with proxies leading them to pick and choose their battles and at times even giving up trying. Whether these assumptions can be disrupted and transformed will be discussed.

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