Identifying the unmet supportive care needs of men living with and beyond prostate cancer: A systematic review

2015 ◽  
Vol 19 (4) ◽  
pp. 405-418 ◽  
Author(s):  
Catherine Paterson ◽  
Allison Robertson ◽  
Alison Smith ◽  
Ghulam Nabi
2019 ◽  
Vol 28 (12) ◽  
pp. 2307-2322 ◽  
Author(s):  
Megan McIntosh ◽  
Melissa J. Opozda ◽  
Holly Evans ◽  
Amy Finlay ◽  
Daniel A. Galvão ◽  
...  

2011 ◽  
Vol 38 (2) ◽  
pp. 189-198 ◽  
Author(s):  
Nancy Carter ◽  
Denise Bryant-Lukosius ◽  
Alba DiCenso ◽  
Jennifer Blythe ◽  
Alan J. Neville

2017 ◽  
Author(s):  
Jördis Maria Zill ◽  
Jörg Dirmaier ◽  
Matthias Augustin ◽  
Sarah Dwinger ◽  
Eva Christalle ◽  
...  

BACKGROUND Psoriasis is a chronic inflammatory disease that is often associated with a number of somatic and mental comorbidity. Patients with psoriasis show an increased risk of depression and (social) anxiety. OBJECTIVE The aims of this study are 1) to explore the psychosocial distress of patients with psoriasis and to assess their care needs; and 2) to develop a supportive intervention based on the prior results. METHODS A multi-stage design with four phases combining quantitative and qualitative methodology will be used and conducted in two centers. 1) A scoping review and focus groups will be used to design a questionnaire to assess the psychosocial distress and care needs of the patients. 2) The questionnaire developed in phase 1 will be used in a cross-sectional survey to assess the extent of psychosocial distress and supportive care needs in 400 patients with psoriasis. 3) A systematic review and meta-analysis will be conducted to identify psychosocial and psychoeducational interventions for patients with psoriasis and to describe their effectiveness. 4) Based on the results of the phases 2 and 3 a manualized supportive intervention will be developed and the feasibility and acceptance of the intervention will be assessed. RESULTS Currently, phase 1 of the project has been completed and the recruitment for phase 2 has been started. The systematic review and meta-analysis of phase 3 are conducted simultaneously to phase 2 and results are expected soon. Phase 4 has not been started yet. CONCLUSIONS The expected results of this study will show the extent of psychosocial distress of patients with psoriasis in Germany and supplement previous research with findings about the supportive care needs of this patient group. Moreover, the developed intervention will help to address the psychosocial support needs of patients with psoriasis. Research shows that psychosocial support is strongly needed.


2017 ◽  
Vol 29 ◽  
pp. 60-70 ◽  
Author(s):  
Grigorios Kotronoulas ◽  
Constantina Papadopoulou ◽  
Kathryn Burns-Cunningham ◽  
Mhairi Simpson ◽  
Roma Maguire

2008 ◽  
Vol 98 (12) ◽  
pp. 1903-1909 ◽  
Author(s):  
E Ream ◽  
A Quennell ◽  
L Fincham ◽  
S Faithfull ◽  
V Khoo ◽  
...  

2012 ◽  
Vol 14 (4) ◽  
pp. 392-404 ◽  
Author(s):  
E. Ford ◽  
S. Catt ◽  
A. Chalmers ◽  
L. Fallowfield

2017 ◽  
Vol 40 (6) ◽  
pp. 497-507 ◽  
Author(s):  
Catherine Paterson ◽  
Sławomir Grzegorz Kata ◽  
Ghulam Nandwani ◽  
Debi Das Chaudhury ◽  
Ghulam Nabi

2007 ◽  
Vol 25 (18) ◽  
pp. 2560-2566 ◽  
Author(s):  
David P. Smith ◽  
Rajah Supramaniam ◽  
Madeleine T. King ◽  
Jeanette Ward ◽  
Martin Berry ◽  
...  

Purpose It is important to meet the supportive care needs of cancer patients to ensure their satisfaction with their care. A population-wide sample of men younger than 70 years and newly diagnosed with prostate cancer was surveyed to determine their unmet needs in five domains and the factors predicting them. Patients and Methods Eligible men were younger than 70 years and residents in New South Wales, Australia, with newly diagnosed histopathologically confirmed prostate cancer. Sixty-seven percent of eligible men diagnosed between October 2000 and October 2001 participated. Demographic, treatment, and self-reported health data were collected. Information on cancer stage, grade, and prostate-specific antigen was obtained from medical records. Logistic regression analyses determined patient and treatment variables that predicted higher unmet needs. Results More than half (54%) of men with prostate cancer expressed some level of unmet psychological need, and 47% expressed unmet sexuality needs. Nearly one fourth expressed a moderate or high level of unmet need with respect to changes in sexuality. Sexuality needs were independently predicted by being younger, having had a secondary school education only, having had surgery, and being married, living as married, or divorced. Uncertainty about the future was also an important area of unmet need. Conclusion Attention should be given to sexual and psychological needs in the early months after diagnosis or treatment of prostate cancer, particularly in younger men, those with less education, and those having surgery. Research into better ways of meeting these needs will enable us to meet them with as much rigor as we meet clinical treatment needs.


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