Caregiving burden and health-promoting behaviors among the family caregivers of cancer patients

2015 ◽  
Vol 19 (2) ◽  
pp. 174-181 ◽  
Author(s):  
Sun Young Rha ◽  
Yeonhee Park ◽  
Su Kyung Song ◽  
Chung Eun Lee ◽  
Jiyeon Lee
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Health Promoting Behaviors ◽  
Caregiving Burden ◽  
The Family ◽  
Health Promoting

Caregivers needing care: the unmet needs of the family caregivers of end-of-life cancer patients

2017 ◽  
Vol 26 (3) ◽  
pp. 759-766 ◽  
Author(s):  
Maryam Hashemi ◽  
Alireza Irajpour ◽  
Fariba Taleghani
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Unmet Needs ◽  
The Family

Employment status and work-related difficulties in family caregivers of terminal cancer patients compared with the general population

2009 ◽  
Vol 27 (15_suppl) ◽  
pp. 9580-9580
Author(s):  
S. Kim ◽  
J. Lee ◽  
Y. Yun ◽  
S. Kim ◽  
S. Kim ◽  
...  
Keyword(s):  
General Population ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Employment Status ◽  
Job Loss ◽  
Performance Status ◽  
Terminal Cancer ◽  
Caregiving Burden ◽  
Work Related ◽  
Terminal Cancer Patients

9580 Background: This study was aimed to investigate the employment status and work-related difficulties among family caregiver of terminal cancer patients compared with the general population. Methods: A survey was administered to 381 family caregivers of terminal cancer patients at 11hospitals and 994 general populations aged more than 18 years. Results: Family caregivers of terminal cancer patients were female (66.7%) and the patient's spouse (50.9%), with mean age of 46.8years (SD, 13.5). 212(56.1%) were working before cancer diagnosis, however, only 133(36.3%) continued working currently. Compared with the general population, 233(63.7%)family caregivers of terminal cancer patients were more likely to be not working (adjusted odds ratio [aOR] =2.39; 95% confidence interval [95%CI] = 1.73 to 3.29).Those who continued working reported more easy fatigability (40.6% vs 22.4%) and reduced working hours (20.3% vs 2.1%) than general population. For those doing housework, caregiving itself (56.4%) were identified to be the most common difficulties, followed by easy fatigability (32.3%). Major reasons for not working were providing care to the terminal cancer patients (24.0%). Older age (aOR=10.37; 95%CI=2.80 to 38.41), female sex (aOR=4.28; 95%CI=2.25 to 8.13), lower household income (aOR=2.19; 95%CI=1.19 to 4.06), bearing medical cost by other than spouse (aOR=2.10; 95%CI=1.05 to 4.19), and low performance status of the patients (aOR=2.00; 95%CI=1.01 to 3.95) were significantly associated with not working. Conclusions: When compared to the general population, family caregivers of terminal cancer patients were at risk job loss from their caregiving burden, and caregiving and easy fatigability were the major work-related difficulties. Our study might help make a strategy to reduce job loss for family caregivers' caregiving burden. No significant financial relationships to disclose.

Caring for people who take care: What is already done?

2021 ◽  
pp. 1-11
Author(s):  
Carolina Oliveira ◽  
Gabriela Fonseca ◽  
Neide P. Areia ◽  
Luciana Sotero ◽  
Ana Paula Relvas
Keyword(s):  
Mental Health ◽  
Palliative Care ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Mental Health Professionals ◽  
Technology Use ◽  
Intervention Programs ◽  
The Family ◽  
Psychological Symptomatology ◽  
Care Approach

Abstract Objective The growing prevalence and impact of cancer on the family system calls for a palliative care approach with the family as the unit of care. This study aimed at providing an overview of the intervention programs that have been developed to offer support to the family caregivers of oncologic patients receiving palliative care. Method Sixteen articles were included in the final review, encompassing (i) studies focused on intervention programs with family caregivers of cancer patients in palliative care, (ii) studies including a pre- and post-test evaluation of the intervention program, (iii) and studies whose cancer patients were at least 18 years old. Results A great heterogeneity was verified with respect to care settings, number of sessions, outcome measures, or timing of assessment within the reviewed programs. These findings mirrored the complexity of the palliative care approach, which is difficult to standardize. Nonetheless, some interventions with different features accomplished good and sometimes similar results. The studies’ main outcomes were clustered in five categories: psychological symptomatology, general quality of life, caregiving role, family relational variables, and bereavement/grief. Moreover, 44% of the main outcomes were psychological symptomatology of family caregivers, with an emphasis toward anxiety and depression. Also shown was a growing emergence of technology use among these interventions. Significance of results Results revealed a scarcity of family-oriented programs and lack of certified mental health professionals as interventionists. Future studies and interventions should focus on the positive outcomes of the caregiving experience and must acknowledge the cultural differences when trying to replicate programs. Considering that there is no precise formula for dealing with terminal illness and grief, we submit that family-centered and systemic lenses are excellent approaches for support during this adjustment process. In conclusion, the present study advocates for increased investment in the field, underscoring the importance of family caregivers’ mental health.

scholarly journals Psychometric Properties of the Family Inventory of Resources for Management in a Sample of Iranian Family Caregivers of Cancer Patients

2016 ◽  
Vol 2016 ◽  
pp. 1-5
Author(s):  
Seyed Reza Mirsoleymani ◽  
Camelia Rohani ◽  
Mahsa Matbouei ◽  
Malihe Nasiri ◽  
Parvaneh Vasli
Keyword(s):  
Psychometric Properties ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Internal Consistency ◽  
Convergent Validity ◽  
Convenience Sample ◽  
Significant Difference ◽  
The Family ◽  
Good Internal Consistency

Objective. The aim of this study was to investigate the psychometric properties of the Family Inventory of Resources for Management (FIRM) in a sample of family caregivers of cancer patients. Methods. In this methodological study, construct validity of the FIRM was evaluated by known groups and convergent validity in a convenience sample of family caregivers of cancer patients (n=104) referred to the outpatient oncology wards of five educational hospitals in Tehran from January to April 2016. Reliability was determined by assessing the internal consistency and stability of the instrument. Results. The known-groups findings showed that there is a significant difference between the scores of the FIRM in family caregivers with different levels of caregiver burden (p<0.001). Also, the results of convergent validity showed that there is a moderate negative correlation (r=-0.50; p<0.001) between the total scores of the FIRM and the scores of the caregiver burden inventory (CBI). The FIRM showed a good internal consistency (α=0.85) and a good stability of the test-retest reliability result. Conclusions. There is a sound psychometric basis for the use of the Persian translation of the FIRM for family studies in the Iranian population.

scholarly journals Health-promoting Lifestyles and Related Factors in Pregnant Women

2018 ◽  
Vol 3 (4) ◽  
Author(s):  
Zeinab Hamzehgardeshi ◽  
Samadaee Gelehkolaee Keshvar ◽  
Maryam Kardan Soraky
Keyword(s):  
Pregnant Women ◽  
Family Income ◽  
Self Care ◽  
Sociodemographic Factors ◽  
Sociodemographic Characteristics ◽  
Related Factors ◽  
Health Promoting Behaviors ◽  
The Family ◽  
Health Promoting ◽  
The Mean

Introduction: Health-promoting behavior increases the self-care of the individuals and improves the health. It reduces the chance of maternal and fetal harm during pregnancy. The objective of this study was to determine the sociodemographic factors related to health-promoting self-care behavior in Iranian pregnant women categorized by domains.Materials and Methods: A cross-sectional study design with convenience sampling was used to recruit 384 pregnant Iranian women that were referred to the health center in Sari in 2014-2015. Self-reporting questionnaires included sociodemographic characteristics and health-promoting lifestyle profile-II questionnaires. Data were analyzed with using the statistical package for the social sciences software (version 19). One-way ANOVA and chi-square tests were used to determine the relationship between the sociodemographic characteristics and health-promoting behaviors.Results: The mean age of pregnant women was 27.65±4.753 years. Most of the participants were in the second trimester of pregnancy. The mean of the total score for health-promoting behaviors was 142.96±17.947. Among the six dimensions of health-promoting behaviors, the interpersonal relations scored maximal, and the physical activity scored the lowest. Significant correlations existed between spirituality and the wife’s education, the wife’s job, and the family income. In addition, a significant correlation was established between stress management and the wife’s education, also between the aspect of relationships and the husband’s education, the wife’s education, the family income, and the decision maker (all P<0.005).Conclusion: The findings of the present study confirmed that the sociodemographic factors were vital in health-promoting behaviors in pregnant women.

scholarly journals THE LEVEL OF FAMILY CAREGIVERS INVOLVEMENT AND QUALITY OF LIFE IN CARING FOR CANCER PATIENTS AT WAHIDIN SUDIROHUSODO HOSPITAL MAKASAR

2019 ◽  
Vol 4 (2) ◽  
pp. 94
Author(s):  
Rahmatiah Rahmatiah ◽  
Kusrini Kadar ◽  
Kadek Ayu Erika
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Quantitative Methods ◽  
Cross Sectional ◽  
Level Of Involvement ◽  
Psychological Issues ◽  
The Family ◽  
Index Cancer

Background: cancer is one of the causes of morbidity and mortality around the world. The involvement of family members taking the role as caregivers in care is important. This study aims to describe the level of involvement and the quality of life of family caregivers in caring for cancer patients at the hospital. Methods: this research using quantitative methods with cross-sectional approach as much as 133 samples from the family of a cancer patient who was in RSUP. Wahidin Sudirohusodo in July 2018. The data collected to obtain an overview of sosiodemografi, engagement and quality of life of family caregivers using the Family Caregivers Involvement in Caring-Cancer (FCIC-C) and Caregiver QoL Index-Cancer (CQOLC) questionnaire. Results: the level of involvement of family caregivers toward cancer patients high (mean = 52.07; SD � 14.01), where the domain of involvement in psychological issues is the highest order (mean = 9.51; SD � 5.37). But quality of life is a little low (mean = 71.22; SD � 21.33). Conclusion: Involvement of family caregivers in caring for cancer patients in RSUP. Wahidin Sudirohusodo is high especially in the domain of the fulfillment of psychological issues and social problems of patients but on the quality of life of life family caregivers a bit downhill.

scholarly journals Burden and Depression among Jordanian Caregivers of Hemodialysis Patients: A Cross-sectional Study

2021 ◽  
Vol 15 (1) ◽  
pp. 29-37
Author(s):  
Eman Khamis Alnazly
Keyword(s):  
Travel Time ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Multinomial Logistic Regression ◽  
Cross Sectional Study ◽  
Patient Age ◽  
Cross Sectional ◽  
Caregiving Burden ◽  
Patient Âgé ◽  
The Family

Introduction: Caring for patients receiving hemodialysis places a burden on caregivers. Objectives: To examine caregiving burden and depression in the family caregivers of patients receiving hemodialysis and associated factors. Methods: A cross-sectional design was used. Participants were 204 adult caregivers of patients receiving hemodialysis. Questionnaires included sociodemographic characteristics, the Oberst Caregiving Burden Scale-Difficulty (OCBS-D) subscale, Bakas Caregiving Outcomes Scale (BCOS), and the Patient Health Questionnaire-9 to measure the burden and depression of caregivers. Descriptive statistics, two linear regression analyses, and multinomial logistic regression were used in data analysis. Results: The majority (59.0%, n = 120) of caregivers had a moderate level of depression with scores ranging from 11 to 16. The analysis showed that the mean score of OCBS-D was 42.0 (SD = 4.7) with scores ranging from 26.9 to 58.9 (range = 32.0), while the caregivers' mean score of BCOS was 52.1 (SD = 9.3) with scores ranging from 38.0 to 82.5 (range = 44.5). Given that the expected score of OCBS-D and BCOS ranged from 15 to 75 and 15 to 105, respectively, the analysis indicated a moderate to a high level of burden among caregivers. Age and travel time were associated with a higher likelihood of negative outcomes in the family caregivers, while higher patient age was associated with a greater caregiver burden. Relevance to Clinical Practice: It is important to assess and address the practical issues that caregivers experience, such as employment-related responsibilities, financial difficulties, and the need to learn specific skills related to patients’ chronic illnesses. Conclusion: Caregivers of patients receiving hemodialysis are likely to experience moderate depression and burden. Caregiver burden increases with patient age and travel time to the hemodialysis units.

scholarly journals Burden among family caregivers of breast cancer patients in north coastal Andhra Pradesh: a hospital based cross-sectional study

2020 ◽  
Vol 7 (4) ◽  
pp. 1533
Author(s):  
Venkata Phani Madhavi Kajana ◽  
Amaleswari Katta ◽  
Devi Madhavi Bhimarasetty
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Family Members ◽  
Breast Cancer Patients ◽  
Cross Sectional ◽  
Caregiving Burden ◽  
Care Giving ◽  
Number Of Patients ◽  
The Government

Background: A large number of patients with chronic diseases like cancer are cared for in homes by the family members. The vital role that these family members play as “caregivers” is well recognized. However, the burden on them is poorly understood. The objective of the study was to assess the caregiving burden among family caregivers of breast cancer patients and to explore the factors associated with high levels of caregiving burden among family members of breast cancer patients.Methods: A cross-sectional, hospital based study was conducted in a tertiary health care setting in Visakhapatnam A total of 45 primary caregivers who were accompanying the breast cancer patients to the Government Hospital were interviewed using Zarit burden interview. The socio demographic variables of the care givers like age, gender, occupation, income, relation with the patient were also obtained. Informed consent was obtained from the caregiver. Data analysis: Data was entered in the MS Excel spread sheet and it was analysed using SPSS software version 21.0.Results: The study population consisted of 26 (57.7%) males and 19 (42.3%) female caregivers. Very few 4 (9%) caregivers reported with no or mild burden during care giving. Majority 18 (40%) of the caregivers reported with mild to moderate burden, whereas 18 (40%) of the caregivers reported with moderate to severe burden. Few 5 (11%) reported with severe burden. Financial factors and uncertainty regarding the illness of the patient are associated with more burden.Conclusions: There is high burden among caregivers of cancer patients which should be addressed.

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