People with intellectual disabilities who are affected by a relative or friend with cancer: A qualitative study exploring experiences and support needs

2012 ◽  
Vol 16 (5) ◽  
pp. 512-519 ◽  
Author(s):  
Irene Tuffrey-Wijne ◽  
Nikoletta Giatras ◽  
Gary Butler ◽  
Amanda Cresswell
Keyword(s):  
Qualitative Study ◽  
Intellectual Disabilities ◽  
Support Needs ◽  
People With Intellectual Disabilities

Views of family carers to the future accommodation and support needs of their relatives with intellectual disabilities

2006 ◽  
Vol 23 (4) ◽  
pp. 140-144 ◽  
Author(s):  
Roy McConkey ◽  
Jayne McConaghie ◽  
Owen Barr ◽  
Paul Roberts
Keyword(s):  
Intellectual Disabilities ◽  
Living Arrangements ◽  
Service Planning ◽  
Support Needs ◽  
Family Carers ◽  
Individual Interviews ◽  
Supported Accommodation ◽  
The Family ◽  
People With Intellectual Disabilities

AbstractObjectives: The demand for places in supported accommodation is likely to rise due to the increasing longevity of people with intellectual disabilities and as their parents become unavailable or unable to care for them. However few attempts have been made to ascertain carer's views on alternative accommodation.Method: Four studies were undertaken in Northern Ireland to ascertain carer's views using three different methods. In all, 387 carers participated with the response being greatest for individual interviews conducted in the family home and least for self-completed questionnaires and attendance at group meetings.Results: The majority of carers envisaged the person continuing to be cared for within the family. The most commonly chosen out-of-home provision was in residential or nursing homes, living with support in a house of their own and in homes for small groups of people. Few carers chose living with another family. However only small numbers of carers envisaged alternative provision being needed in the next two years and few had made any plans for alternative living arrangements.Conclusions: The implications for service planning are noted, primarily the need for individual reviews of future needs through person-centred planning; improved information to carers about various residential options and their differential benefits, along with more services aimed at improving the quality of life of people living with family carers. These need to be underpinned by a commitment of statutory agencies to partnership working with family carers. The implications for mental health services are noted.

PEOPLE WITH INTELLECTUAL DISABILITY COMPARED TO OTHER TYPES OF DISABILITIES

2021 ◽  
Vol 571 (10) ◽  
pp. 23-28
Author(s):  
Elżbieta Zakrzewska-Manterys
Keyword(s):  
Intellectual Disabilities ◽  
Public Support ◽  
People With Disabilities ◽  
Well Being ◽  
Support Needs ◽  
Disabled People ◽  
Specific Group ◽  
Starting Point ◽  
Different Types ◽  
People With Intellectual Disabilities

Disability is a wide concept, encompassing different types of disability, different capabilities of people with disabilities and different social support needs. People with intellectual disabilities belong to a specific group. They do not fit into the mainstream of support and activation measures for disabled people. Although they are a small group (about 1%), they require care which is not provided within the current social policy towards people with disabilities. The article provides examples of public activities unfavourable and favourable for the well-being of people with intellectual disabilities. This could be a starting point for a preparation of a policy project of accurate public support for this group of people

Qualitative Study of Malnutrition in People With Intellectual Disabilities

2011 ◽  
Vol 8 (4) ◽  
pp. 239-246
Author(s):  
Janine J. L. Franssen ◽  
Marian A. Maaskant ◽  
Henny M. J. van Schrojenstein Lantman-de Valk
Keyword(s):  
Qualitative Study ◽  
Intellectual Disabilities ◽  
People With Intellectual Disabilities

Is health a priority? Examining health-related support needs in adults with intellectual disability through a self-determination framework

2021 ◽  
pp. 174462952110096
Author(s):  
Romina Rinaldi ◽  
Jordan Duplat ◽  
Marie-Claire Haelewyck
Keyword(s):  
Intellectual Disabilities ◽  
Psychological Health ◽  
Self Determination ◽  
Health Needs ◽  
Support Needs ◽  
Major Health ◽  
Health Related ◽  
People With Intellectual Disabilities ◽  
A Priority ◽  
Adults With Intellectual Disabilities

Background: People with intellectual disabilities experience inequities in healthcare. Those are maintained by individual limitations as well as environmental factors. In this context, health needs are less likely to be expressed, identified and met. Method: We led a survey in 832 adults with intellectual disabilities to identify if health was set as a priority and if so, what were their major health-related support needs (in terms of physical, social and psychological health). Results: 67.1% of participants reported at least one need. Most frequently, two or more types of needs were reported with gender and living facility having an effect on whether participants would report these needs, but these did not affect which type of needs were reported. Conclusions: Health-related support needs are highly prevalent and diversified in people with intellectual disabilities. This study emphasizes the importance to consider health as a global concept as well as the relationships between health and self-determination.

scholarly journals Using PAR to promote social justice for older people and people with intellectual disabilities

2019 ◽  
Author(s):  
Katie Wright-Bevans ◽  
Michael Richards
Keyword(s):  
Qualitative Research ◽  
Health Promotion ◽  
Qualitative Study ◽  
Intellectual Disabilities ◽  
The Other ◽  
Participatory Methods ◽  
Research Projects ◽  
Participatory Action ◽  
People With Intellectual Disabilities ◽  
Community Choir

Qualitative research methods and participatory action research (PAR) share many intrinsic and complementary qualities. We present two cases, one adopted a broader PAR approach, a health promotion project with men with intellectual disabilities, and the other used participatory methods within a longitudinal qualitative study exploring the benefits of community choir participation. We discuss the nature of the methods adopted and how they helped and hindered both research projects. We conclude that despite some common challenges, qualitative studies can benefit from drawing on PAR principles.

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