Defining and listing very rare cancers of paediatric age: consensus of the Joint Action on Rare Cancers in cooperation with the European Cooperative Study Group for Pediatric Rare Tumors

2019 ◽  
Vol 110 ◽  
pp. 120-126 ◽  
Author(s):  
Andrea Ferrari ◽  
Ines B. Brecht ◽  
Gemma Gatta ◽  
Dominik T. Schneider ◽  
Daniel Orbach ◽  
...  
2012 ◽  
Vol 224 (06) ◽  
pp. 416-420 ◽  
Author(s):  
G. Bisogno ◽  
A. Ferrari ◽  
E. Bien ◽  
I. Brecht ◽  
B. Brennan ◽  
...  

2012 ◽  
Vol 08 (02) ◽  
pp. 130 ◽  
Author(s):  
Gianni Bisogno ◽  
Giovanni Cecchetto ◽  
Andrea Ferrari ◽  
◽  
◽  
...  

Very rare tumours (VRTs) in paediatric age are a heterogeneous group of cancers very rarely encountered in daily practice, even in large paediatric oncology centres. Some of them are typical of paediatric age, such as pleuropulmonary blastoma or pancreatoblastoma; others are typically found in adulthood, such as carcinomas and melanoma. With the objective of improving the research on, and management of, paediatric VRTs, a national study group was founded and the Tumori Rari in Età Pediatrica (Rare Tumours in Paediatric Age [TREP]) project was launched in Italy in 2000. For the purposes of this project, VRTs have been defined as “any solid malignancy characterized by an annual incidence of <2 cases/million children and not considered in other clinical trials”. From January 2000 to December 2011, 652 patients <18 years of age were registered in the TREP database. This article presents the experience gathered so far and underlines the need to develop international collaborations dedicated to paediatric VRTs. With this aim, national groups from Italy, Germany, France, Poland and the UK have created, in June 2008, a new collaborative group named European Cooperative Study Group for Paediatric Rare Tumours (EXPeRT).


2021 ◽  
Vol 68 (S4) ◽  
Author(s):  
Andrea Ferrari ◽  
Dominik T. Schneider ◽  
Gianni Bisogno ◽  
Yves Reguerre ◽  
Jan Godzinski ◽  
...  

2013 ◽  
Vol 13 (1) ◽  
pp. 1-3 ◽  
Author(s):  
Andrea Ferrari ◽  
Dominik T Schneider ◽  
Gianni Bisogno ◽  

2020 ◽  
Vol 140 ◽  
pp. 63-70
Author(s):  
Daniel Orbach ◽  
Nicolas André ◽  
Ines B. Brecht ◽  
Ricardo López Almaraz ◽  
Tal Ben-Ami ◽  
...  

2015 ◽  
Vol 51 (4) ◽  
pp. 543-550 ◽  
Author(s):  
Dominik T. Schneider ◽  
Daniel Orbach ◽  
Giovanni Cecchetto ◽  
Teresa Stachowicz-Stencel ◽  
Bastian Brummel ◽  
...  

2015 ◽  
Vol 51 (16) ◽  
pp. 2444-2452 ◽  
Author(s):  
Teresa Stachowicz-Stencel ◽  
Daniel Orbach ◽  
Ines Brecht ◽  
Dominik Schneider ◽  
Ewa Bien ◽  
...  

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