scholarly journals The Patient Reported Outcomes Following Initial treatment and Long term Evaluation of Survivorship registry: Scope, rationale and design of an infrastructure for the study of physical and psychosocial outcomes in cancer survivorship cohorts

2011 ◽  
Vol 47 (14) ◽  
pp. 2188-2194 ◽  
Author(s):  
Lonneke V. van de Poll-Franse ◽  
Nicole Horevoorts ◽  
Mies van Eenbergen ◽  
Johan Denollet ◽  
Jan Anne Roukema ◽  
...  
2015 ◽  
Vol 114 (2) ◽  
pp. 286-296 ◽  
Author(s):  
Martijn J. Bours ◽  
Sandra Beijer ◽  
Renate M. Winkels ◽  
Fränzel J. van Duijnhoven ◽  
Floortje Mols ◽  
...  

In the present study, we aimed to describe dietary changes made post-diagnosis and current dietary supplement use by survivors of colorectal cancer (CRC), and explore the underlying motives for these lifestyle habits. Cross-sectional analyses were performed for 1458 stage I–IV CRC survivors of the Patient Reported Outcomes Following Initial Treatment and Long-Term Evaluation of Survivorship (PROFILES) registry, diagnosed between 2000 and 2009. Lifestyle, sociodemographic and clinical information was collected. Prevalence of and motivations for dietary changes and supplement use were assessed. Associations between lifestyle, sociodemographic and clinical variables were analysed by multivariable logistic regression. CRC survivors (57 % male) were on average 70 (sd 9) years of age and diagnosed 7 (sd 3) years ago. Dietary changes post-diagnosis were reported by 36 % of the survivors and current supplement use by 32 %. Motivations for dietary changes were mostly cancer-related (44 % reported ‘prevention of cancer recurrence’ as the main reason), while motivations for supplement use were less frequently related to the cancer experience (38 % reported ‘to improve health and prevent disease in general’ as the main reason). Dietary changes were significantly associated with dietary supplement use (OR 1·5, 95 % CI 1·1, 2·1). Survivors who had received dietary advice, were non-smokers, under 65 years of age, and had no stoma were more likely to have changed their diet. Survivors who were female, had multiple co-morbidities, and no overweight or obesity were more likely to use supplements. In conclusion, many CRC survivors alter their diet post-diagnosis and use dietary supplements, in part for different reasons. Insights into motivations behind these lifestyle habits and characteristics of CRC survivors adopting these habits can improve the tailoring of lifestyle counselling strategies.


2017 ◽  
Vol 24 (9) ◽  
pp. 1201-1209 ◽  
Author(s):  
Chelsea H Wiener ◽  
Jeffrey E Cassisi ◽  
Daniel Paulson ◽  
Olga Husson ◽  
Rema A Gupta

Survivors of differentiated thyroid cancer report significant distress. This study examines illness perceptions as mediating the relationship between information support and distress among survivors of differentiated thyroid cancer. Data were obtained from the Patient Reported Outcomes Following Initial Treatment and Long-term Evaluation of Survivorship registry. Model results revealed that greater information support was associated with better illness perceptions, and that better illness perceptions were associated with less distress. Information support and distress were indirectly related via illness perceptions. Results highlight the importance of addressing illness perceptions in this population and suggest that informational interventions may help serve this function.


2021 ◽  
Vol 10 (9) ◽  
pp. 2009
Author(s):  
Joaquín Fernández ◽  
Manuel Rodríguez-Vallejo ◽  
Javier Martinez ◽  
Noemi Burguera ◽  
David P. Piñero

(1) Background: To evaluate the efficacy at 6 years postoperative after the implantation of a trifocal intraocular lens (IOL) AT Lisa Tri 839MP. The secondary objective was to evaluate the contrast sensitivity defocus curve (CSDC), light distortion analysis (LDA), and patient reported outcomes (PROs). (2) Methods: Sixty-two subjects participated in phone call interviews to collect data regarding a visual function questionnaire (VF-14), a patient reported spectacle independence questionnaire (PRSIQ), and questions related to satisfaction and decision to be implanted with the same IOL. Thirty-seven of these subjects were consecutively invited to a study visit for measurement of their visual acuity (VA), CSDC, and LDA. (3) Results: The mean monocular distance corrected VA was −0.05, 0.08, and 0.05 logMAR at far and distances of 67 cm and 40 cm, respectively. These VAs were significantly superior to those reported in previous literature (p < 0.05). The total area under the CSDC was 2.29 logCS/m−1 and the light distortion index 18.82%. The mean VF-14 score was 94.73, with 19.4% of subjects requiring spectacles occasionally for near distances, and 88.9% considering the decision of being operated again; (4) Conclusions: Long-term AT LISA Tri 839MP IOL efficacy results were equal or better than those reported 12 months postoperatively in previous studies. The spectacle independence and satisfaction rates were comparable to those reported in short-term studies.


2016 ◽  
Vol 31 (2) ◽  
pp. 861-871 ◽  
Author(s):  
Amin Madani ◽  
Petru Niculiseanu ◽  
Wanda Marini ◽  
Pepa A. Kaneva ◽  
Benjamin Mappin-Kasirer ◽  
...  

2021 ◽  
Vol 79 ◽  
pp. S158-S159
Author(s):  
L. Del Favero ◽  
Y. Deruyver ◽  
G. Tasso ◽  
E. Beels ◽  
D. De Ridder ◽  
...  

Author(s):  
Bryan T. Hanypsiak ◽  
Walsh Thomas ◽  
David Hurt ◽  
Kurt P. Spindler ◽  
Richard D. Parker

2019 ◽  
Vol 17 (8) ◽  
pp. 1641-1642.e1 ◽  
Author(s):  
Zobair M. Younossi ◽  
Maria Stepanova ◽  
Issah Younossi ◽  
Calvin Q. Pan ◽  
Harry L.A. Janssen ◽  
...  

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