Home Enteral Nutrition therapy: Difficulties, satisfactions and support needs of caregivers assisting older patients

2017 ◽  
Vol 36 (4) ◽  
pp. 1062-1067 ◽  
Author(s):  
Nikolina Jukic P ◽  
Cristina Gagliardi ◽  
Donata Fagnani ◽  
Claudia Venturini ◽  
Paolo Orlandoni
2015 ◽  
Vol 16 (6) ◽  
pp. 762-767 ◽  
Author(s):  
Paolo Orlandoni ◽  
Nikolina Jukic Peladic ◽  
Liana Spazzafumo ◽  
Claudia Venturini ◽  
Claudia Cola ◽  
...  

2021 ◽  
Vol 34 ◽  
Author(s):  
João Paulo Lima de OLIVEIRA ◽  
Mônica Sabrina Ribeiro dos SANTOS ◽  
Hellen Custódio MACHADO ◽  
Sarah Leão Fiorini de AGUIAR ◽  
Lívia Garcia FERREIRA

ABSTRACT Objective The objective of this study was to translate and cross-culturally adapt the NutriQoL® into Brazilian Portuguese. Methods The NutriQoL® comprises 17 questions that evaluate the quality of life of patients receiving home enteral nutrition therapy. The methodological procedures included the translation from the Spanish version into Portuguese by two translators, synthesis of the translations, back translation, evaluation by a committee of judges composed of 24 individuals in which a content validity index > 0.78 was considered acceptable, and generation of the pre-final version. A pre-test to analyze its semantic equivalence was administered to 12 patients receiving home enteral nutrition therapy. The final version of the questionnaire was then prepared. Results A summary version of the questionnaire was obtained using two versions of the translation. Both back translations were identical for 73.6% of sentences (n=25). Twenty-four volunteers were included in the committee of judges. The content validity index was 0.88±0.11, and 14.7% (n=5) of questions had a low content validity index and were thus reformulated. In the pre-test, 35.3% (n=12) of items obtained low levels of understanding and required adjustment. In the preparation of the final version, the inconsistencies of the items mentioned were corrected and/or adjusted. Conclusion After completing the methodological procedures, a Brazilian Portuguese version of the NutriQoL® questionnaire was obtained. Following the validation process, it can be used by dieticians and other health professionals to assess the quality of life of patients receiving home enteral nutrition therapy to contribute to improvements in care practices.


2021 ◽  
Vol 108 (Supplement_9) ◽  
Author(s):  
Okiki Olusona ◽  
Orla Brett ◽  
Cathy White ◽  
Wendy Hickey ◽  
Claire Coleman ◽  
...  

Abstract Background Nutritional optimisation is an essential component of prehabilitation and enhanced recovery for patients with oesophageal and gastric cancer, but may be associated with increased burden of inpatient care. The aim of this study was to determine risk factors associated with complications and unplanned hospital attendance among patients treated with home enteral nutrition. Methods Consecutive patients with oesophageal or gastric cancer commencing home enteral nutrition from March 2020-June 2021 were prospectively studied. The primary outcome measure was the incidence of complications associated with home enteral feeding requiring unplanned hospital attendance. Univariable and multivariable linear and logistic regression were used to determine factors independently associated with enteral feeding associated morbidity and healthcare utilisation. Results 70 patients were studied (27% pre neoadjuvant therapy, 63% postoperative; 19% gastrostomy, 81% jejunostomy). Tube complications requiring unplanned hospital attendance occurred in 33% of patients (25% gastrostomy, 38% jejunostomy, P = 0.405), most commonly dislodgement (15%), fixation problem (13%), and blockage (6%). Small bowel obstruction was rare (1.4%). Inpatient length of stay (LOS) following feeding tube placement and training was 5.1±2.4 days (gastrostomy: 5.5±2.7, jejunostomy: 4.4±1.9 days, P = 0.074). 17 unplanned hospital visits among nine patients (13.0%) occurred with a cumulative LOS of 71 inpatient days. On multivariable analysis patients undergoing neoadjuvant therapy were at the greatest risk of overall enteral feeding tube morbidity (OR19.34 [3.29–113.56], P = 0.001), dislodgement (OR19.09 [2.35-155.11], P = 0.006) and unplanned hospital attendance (P < 0.001). Older patients were at increased risk of tube dislodgement (OR1.14 [1.02–1.28], P=0.024) and unplanned hospital attendance (P = 0.034). Conclusions Unplanned hospital attendance is common among patients undergoing supplemental home enteral nutrition during treatment for oesophagogastric cancer. Fixation problems and dislodgement account for the majority of presentations, and are more common among older patients and those undergoing neoadjuvant therapy. Pragmatic strategies to optimise tube fixation and minimise the need for unplanned hospital visits among patients receiving home enteral nutrition are urgently needed.


2021 ◽  
Vol 30 ◽  
Author(s):  
Maria Gabriela Afonso ◽  
Elaine Gomes da Silva ◽  
Patricia Viganó Contri Degiovanni ◽  
Carla Viviane Georg Dressler ◽  
Jonathan Rodrigues de Almeida ◽  
...  

ABSTRACT Objective: to elaborate and validate face and content of a multi-professional educational booklet for the education of caregivers of patients in use of Home Enteral Nutrition Therapy. Method: a methodological study, conducted in two stages: (1) elaboration of the educational booklet, divided in four phases; and (2) validation of the educational material by 12 experts. A minimum agreement rate of 80% was considered to ensure validation of the material. Results: the material is structured in 16 items that were considered pertinent by the experts. Content assessment by the experts presented a global Content Validity Index of 0.87. The agreement level of the categories assessed varied from 83% to 90%. The suggestions in relation to content, clarity, pertinence and relevance were addressed and modified for the final version of the material. Conclusion: the educational booklet is considered valid regarding content. It is suggested that it may contribute to the understanding in health education in caregivers and family members of patients in use of enteral nutrition therapy.


2015 ◽  
Vol 34 ◽  
pp. S62
Author(s):  
P. Orlandoni ◽  
N. Jukic Peladic ◽  
C. Gagliardi ◽  
C. Venturini ◽  
D. Fagnani

Author(s):  
Rubia Daniela Thieme ◽  
Maria Eliana Madalozzo Schieferdecker ◽  
Rafael Gomes Ditterich

Abstract Objective: to verify if national public policies and municipal programs contain elements that contribute to ensure the Human Right to Adequate Food (HRAF) of older adults undergoing home enteral nutrition therapy (HENT) and to propose the integration of these elements. Method: a qualitative study was carried out based on the content analysis of the documents of the National Policy for Older Adults (or PNI), the National Policy for the Health of Older Adults (or PNSPI) and the National Food and Nutrition Policy (or PNAN). Analysis of the relationships (co-occurrences) in programs of the 29 cities of the 2nd regional health region of Paraná to provide care for people with special dietary needs (SDN), such as older adults undergoing HENT, was also carried out. For the analysis of the relationships, the keywords older adult and right were used. Furthermore, the integration of national public policies and municipal programs was proposed. Results: the PNI, PNSPI and PNAN contain converging principles, guidelines and actions, but they are not fully integrated into the programs. Only seven cities with programs that aimed to organize care involving SDN were identified, documented in five protocols and two decrees. A co-occurrence was verified in three of the analyzed documents, but a relationship between the keywords older adult and right was not verified in the protocols and decrees. In the integration proposal, a network was described, based around the goal of reaching the center, which represents the HRAF for older adults undergoing HENT. Conclusion: national public policies contain elements to ensure the HRAF of older adults undergoing HENT, but the municipal programs do not include all these elements. A proposal to integrate the elements was created.


2019 ◽  
Vol 38 (4) ◽  
pp. 1871-1876 ◽  
Author(s):  
Paolo Orlandoni ◽  
Nikolina Jukic Peladic ◽  
Mirko Di Rosa ◽  
Claudia Venturini ◽  
Donata Fagnani ◽  
...  

2014 ◽  
Vol 155 (51) ◽  
pp. 2028-2033 ◽  
Author(s):  
Judit Hallay ◽  
Dániel Nagy ◽  
Béla Fülesdi

Malnutrition in hospitalised patients has a significant and disadvantageous impact on treatment outcome. If possible, enteral nutrition with an energy/protein-balanced nutrient should be preferred depending on the patient’s condition, type of illness and risk factors. The aim of the nutrition therapy is to increase the efficacy of treatment and shorten the length of hospital stay in order to ensure rapid rehabilitation. In the present review the authors summarize the most important clinical and practical aspects of enteral nutrition therapy. Orv. Hetil., 2014, 155(51), 2028–2033.


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