The development and evaluation of a self-management web app for women with cardiac pain

2021 ◽  
Vol 37 (2) ◽  
pp. e19
Author(s):  
M. Parry ◽  
A.K. Bjørnnes ◽  
H. Clarke ◽  
J. Cafazzo ◽  
L. Cooper ◽  
...  
Keyword(s):  
Self Management ◽  
Web App ◽  
Cardiac Pain

Self-Management Interventions for Women With Cardiac Pain: A Systematic Review and Meta-analysis

2018 ◽  
Vol 34 (4) ◽  
pp. 458-467 ◽  
Author(s):  
Monica Parry ◽  
Ann Kristin Bjørnnes ◽  
J. Charles Victor ◽  
Ana Patricia Ayala ◽  
Erica Lenton ◽  
...  
Keyword(s):  
Systematic Review ◽  
Meta Analysis ◽  
Self Management ◽  
Management Interventions ◽  
Cardiac Pain

scholarly journals Effectiveness of an online self-management tool, OPERAS (an On-demand Program to EmpoweR Active Self-management), for people with rheumatoid arthritis: a research protocol

2019 ◽  
Author(s):  
Johnathan Tam ◽  
Diane Lacaille ◽  
Teresa Liu-Ambrose ◽  
Chris D Shaw ◽  
Hui Xie ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Physical Activity ◽  
Disease Activity ◽  
Disease Status ◽  
Management Tool ◽  
Self Management ◽  
Secondary Outcome ◽  
On Demand ◽  
Management Ability ◽  
Web App

Abstract Background. Active self-management is a process where patients are fully engaged in managing their health in daily life by having access to contextualized health data and tailored guidance to support a healthy lifestyle. The current study aims to determine whether an e-health intervention which incorporates symptom/disease activity monitoring and physical activity counselling can improve self-management ability in patients with rheumatoid arthritis (RA). Methods. The Empowering active self-management of arthritis: Raising the bar with OPERAS (an On-demand Program to EmpoweR Active Self-management) project is a randomized controlled trial which uses a delayed control design. 134 participants with RA will be randomized to either start the intervention immediately (Immediate Group) or start 6 months later (Delayed Group). The intervention involves: 1) use of a Fitbit-compatible web app to record and monitor their RA disease activity, symptoms and time spent on physical activity and a Fitbit; 2) group education and individual counselling by a physiotherapist (PT), and 3) 6 phone calls with a PT. The primary outcome measure is self-management ability measured by the Patient Activation Measure. Secondary outcome measures include disease status, fatigue, pain, depressive symptoms, and characteristics of habitual behavior. In addition, time spent in physical activity and sedentary activity with a wearable multi-sensor device (SenseWear Mini). Following the 6-month intervention, we will interview a sample of participants to examine their experiences with the intervention. Discussion. The results of this study will help to determine whether this technology-enhanced self-management intervention improves self-management ability and their health outcomes for people living with RA. A limitation of this study is that participants will need to self-report their symptoms, disease status, and treatment use through questionnaires on the OPERAS web app. The user-friendly interface, reminder emails from the research staff, and tailored guidance from PTs will encourage participants to actively engage with the app. Trial Registration. Date of last update in ClinicalTrials.gov: January 2, 2019 ClinicalTrials.gov Identifier: NCT03404245

Self-Management of Cardiac Pain in Women: A Meta-Summary of the Qualitative Literature

2018 ◽  
Vol 28 (11) ◽  
pp. 1769-1787 ◽  
Author(s):  
Ann Kristin Bjørnnes ◽  
Monica Parry ◽  
Marit Leegaard ◽  
Ana Patricia Ayala ◽  
Erica Lenton ◽  
...  
Keyword(s):  
Data Extraction ◽  
Action Planning ◽  
Self Management ◽  
Sex And Gender ◽  
Associated Symptoms ◽  
Artery Disease ◽  
And Gender ◽  
The Individual ◽  
Cardiac Pain ◽  
Qualitative Literature

Symptom recognition and self-management is instrumental in reducing the number of deaths related to coronary artery disease (CAD) in women. The purpose of this study was to synthesize qualitative research evidence on the self-management of cardiac pain and associated symptoms in women. Seven databases were systematically searched, and the concepts of the Individual and Family Self-Management Theory were used as the framework for data extraction and analysis. Search strategies yielded 22,402 citations, from which 35 qualitative studies were included in a final meta-summary, comprising data from 769 participants, including 437 (57%) women. The available literature focused cardiac pain self-management from a binary sex and gender perspective. Ethnicity was indicated in 19 (54%) studies. Results support individualized intervention strategies that promote goal setting and action planning, management of physical and emotional responses, and social facilitation provided through social support.

The Self-Management of Cardiac Pain in Women with Coronary Artery Disease: A Systematic Review and Meta-Analysis

2018 ◽  
Vol 34 (4) ◽  
pp. e12
Author(s):  
M. Parry ◽  
A.K. Bjørnnes ◽  
J.C. Victor ◽  
A.P. Ayala ◽  
E. Lenton ◽  
...  
Keyword(s):  
Systematic Review ◽  
Coronary Artery Disease ◽  
Coronary Artery ◽  
Meta Analysis ◽  
The Self ◽  
Self Management ◽  
Artery Disease ◽  
Cardiac Pain

Developing an eHealth intervention for cancer symptom management for rural residents.

2016 ◽  
Vol 34 (26_suppl) ◽  
pp. 207-207 ◽  
Author(s):  
Stephanie Gilbertson-White ◽  
Chi Yeung ◽  
Keri Nace Mercer ◽  
Dorota Bartoczszyk ◽  
Todd Papke
Keyword(s):  
Palliative Care ◽  
Focus Groups ◽  
Symptom Management ◽  
Self Management ◽  
Rural Residents ◽  
Cancer Symptoms ◽  
Cancer Symptom Management ◽  
Web App ◽  
The Web

207 Background: A disproportionate number of late-stage cancer diagnoses occur in rural residents. Paradoxically this population, with an increased need for palliative care, has minimal access to these services. As smartphone and high-speed internet connectivity reaches near universal penetrance across the country, eHealth technologies have the potential to address this palliative care access gap. Oncology Associated Symptoms and Individualized Strategies (OASIS) web-app was developed to provide tailored cancer symptom self-management support and address this gap. Methods: A two-phased, mixed-methods design was used to: (1) assess stakeholder needs and opinions on the role of eHealth technologies to manage cancer symptoms; and (2) beta test a symptom self-management web-app. Adult patients with advanced cancer and clinic staff from two rural cancer clinics were recruited. A descriptive qualitative approach was used to analyze the patient interviews and staff focus groups. Themes related to symptom management needs and the role of technology were identified. OASIS was developed to address the themes found in phase 1. OASIS consists of 57 self-management strategies for 15 cancer symptoms and a visual symptom/strategy tracker for patients to monitor their symptoms and improve their self-management skills. Results: n = 15 patients were interviewed and n = 11 staff participated in focus groups. Themes identified were “fatalistic acceptance”, “teaching self how to manage symptoms”, and “balancing information needs”. To address these themes OASIS was developed and beta-tested with n = 10 rural residents with advanced cancer. 100% of participants were able to access OASIS via their home internet connection, 80% understood how to use the web-app after one 15 min teaching session, and 50% requested access to the web-app for family to help them with their symptoms. Conclusions: Patients and staff in rural communities have significant cancer symptom management needs and are interested in using eHealth technologies to address these needs. OASIS was found to be accessible, user friendly, easily navigated, and visually appealing. Future research is needed to evaluate the feasibility and acceptability as well as the efficacy of OASIS.

scholarly journals Randomized Controlled Trial of a Psychoeducation Program for the Self-Management of Chronic Cardiac Pain

2008 ◽  
Vol 36 (2) ◽  
pp. 126-140 ◽  
Author(s):  
Michael H. McGillion ◽  
Judy Watt-Watson ◽  
Bonnie Stevens ◽  
Sandra M. LeFort ◽  
Peter Coyte ◽  
...  
Keyword(s):  
Randomized Controlled Trial ◽  
Controlled Trial ◽  
The Self ◽  
Self Management ◽  
Randomized Controlled ◽  
Cardiac Pain

scholarly journals Effectiveness of an online self-management tool, OPERAS (an On-demand Program to EmpoweR Active Self-management), for people with rheumatoid arthritis: a research protocol

Trials ◽  
2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Johnathan Tam ◽  
Diane Lacaille ◽  
Teresa Liu-Ambrose ◽  
Chris Shaw ◽  
Hui Xie ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Physical Activity ◽  
Disease Activity ◽  
Disease Status ◽  
Management Tool ◽  
Self Management ◽  
Secondary Outcome ◽  
On Demand ◽  
Management Ability ◽  
Web App

Abstract Background Active self-management is a process where patients are fully engaged in managing their health in daily life by having access to contextualized health data and tailored guidance to support a healthy lifestyle. This study aims to determine whether an e-health intervention that incorporates symptom/disease activity monitoring and physical activity counselling can improve self-management ability in patients with rheumatoid arthritis (RA). Methods The ‘Empowering active self-management of arthritis: Raising the bar with OPERAS (an On-demand Program to EmpoweR Active Self-management)’ project is a randomized controlled trial that uses a delayed control design. One hundred thirty-four participants with RA will be randomly assigned to start the intervention either immediately (immediate group) or 6 months later (delayed group). The intervention involves (1) use of a Fitbit-compatible web app to record and monitor their RA disease activity, symptoms, and time spent on physical activity and a Fitbit; (2) group education and individual counselling by a physiotherapist (PT); and (3) six phone calls with a PT. The primary outcome measure is self-management ability measured by the Patient Activation Measure. Secondary outcome measures include disease status, fatigue, pain, depressive symptoms, and characteristics of habitual behavior and also time spent in physical activity and sedentary activity with a wearable multi-sensor device (SenseWear Mini). After the 6-month intervention, we will interview a sample of participants to examine their experiences with the intervention. Discussion The results of this study will help to determine whether this technology-enhanced self-management intervention improves self-management ability and health outcomes for people living with RA. A limitation of this study is that participants will need to self-report their symptoms, disease status, and treatment use through questionnaires on the OPERAS web app. The user-friendly interface, reminder emails from the research staff, and tailored guidance from PTs will encourage participants to actively engage with the app. Trial registration Date of last update in ClinicalTrials.gov: January 2, 2019. ClinicalTrials.gov Identifier: NCT03404245.

scholarly journals Effectiveness of an online self-management tool for people with rheumatoid arthritis: a research protocol

2019 ◽  
Author(s):  
Johnathan Tam ◽  
Diane Lacaille ◽  
Teresa Liu-Ambrose ◽  
Chris D Shaw ◽  
Hui Xie ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Physical Activity ◽  
Disease Activity ◽  
Disease Status ◽  
Management Tool ◽  
Self Management ◽  
Secondary Outcome ◽  
Phone Calls ◽  
Management Ability ◽  
Web App

Abstract Background. Active self-management is a process where patients are fully engaged in managing their health in daily life by having access to contextualized health data and tailored guidance to support a healthy lifestyle. The current study aims to determine whether an e-health intervention which incorporates symptom/disease activity monitoring and physical activity counselling can improve self-management ability in patients with rheumatoid arthritis (RA). Methods. The Empowering active self-management of arthritis: Raising the bar with OPERAS (an On-demand Program to EmpoweR Active Self-management) project is a randomized controlled trial which uses a delayed control design. 134 participants with RA will be randomized to either start the intervention immediately (Immediate Group) or start 6 months later (Delayed Group). The intervention involves: 1) use of a Fitbit-compatible web app to record and monitor their RA disease activity, symptoms and time spent on physical activity and a Fitbit; 2) group education and individual counselling by a physiotherapist (PT), and 3) 6 phone calls with a PT. The primary outcome measure is self-management ability measured by the Patient Activation Measure. Secondary outcome measures include disease status, fatigue, pain, depressive symptoms, and characteristics of habitual behavior. In addition, time spent in physical activity and sedentary activity with a wearable multi-sensor device (SenseWear Mini). Following the 6-month intervention, we will interview a sample of participants to examine their experiences with the intervention. Discussion. The results of this study will help to determine whether this technology-enhanced self-management intervention improves self-management ability and their health outcomes for people living with RA. A limitation of this study is that participants will need to self-report their symptoms, disease status, and treatment use through questionnaires on the OPERAS web app. The user-friendly interface, reminder emails from the research staff, and tailored guidance from PTs will encourage participants to actively engage with the app. Trial Registration. Date of last update in ClinicalTrials.gov: January 2, 2019 ClinicalTrials.gov Identifier: NCT03404245

scholarly journals Preferences for Web-Based Information Material for Low Back Pain: Qualitative Interview Study on People Consulting a General Practitioner (Preprint)

2017 ◽  
Author(s):  
Allan Riis ◽  
Ditte Meulengracht Hjelmager ◽  
Line Dausel Vinther ◽  
Michael Skovdal Rathleff ◽  
Jan Hartvigsen ◽  
...  
Keyword(s):  
Low Back Pain ◽  
Back Pain ◽  
General Practitioner ◽  
Self Management ◽  
Low Back ◽  
Semistructured Interview ◽  
Web Based ◽  
Consultation Room ◽  
Qualitative Interview Study ◽  
Web App

BACKGROUND Information on self-management, including addressing people’s fears and concerns, are core aspects of managing patients with low back pain (LBP). Web apps with patient information may be used to extend patient-physician consultations and encourage self-management outside of the consultation room. It is, however, important to identify the end users’ needs and preferences in order to maximize acceptance. OBJECTIVE The aim of this study was to identify preferences for the content, design, and functionality of a Web app with evidence-based information and advice for people with LBP in Denmark. METHODS This is a phenomenological qualitative study. Adults who had consulted their general practitioner because of LBP within the past 14 days were included. Each participated in a semistructured interview, which was audiotaped and transcribed for text condensation. Interviews were conducted at the participant’s home by 2 interviewers. Participants also completed a questionnaire that requested information on age, gender, internet usage, interest in searching new knowledge, LBP-related function, and pain. RESULTS Fifteen 45-min interviews were conducted. Participants had a median age of 40 years (range 22-68 years) and reported a median disability of 7 points (range 0-18) using the 23-item Roland Morris Disability Questionnaire. Participants reported that Web-based information should be easy to find and read, easily overviewed, and not be overloaded with information. Subjects found existing Web-based information confusing, often difficult to comprehend, and not relevant for them, and they questioned the motives driving most hosting companies or organizations. The Patient Handbook, a Danish government-funded website that provides information to Danes about health, was mentioned as a trustworthy and preferred site when searching for information and advice regarding LBP. CONCLUSIONS This study identified important issues to consider when developing and supplementing existing general practice treatment with Web-based information and advice for patients with LBP. Development of a Web app should consider patient input, and developers should carefully address the following domains: readability, customization, design, credibility, and usability.

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