scholarly journals Utilization Of Preventive Care Services By Hematopoietic Cell Transplant Survivors

2010 ◽  
Vol 16 (2) ◽  
pp. S226-S227 ◽  
Author(s):  
S.J. Lee ◽  
W.M. Leisenring ◽  
N. Khera ◽  
E.J. Chow ◽  
K.L. Syrjala ◽  
...  
2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 63-63 ◽  
Author(s):  
Elizabeth A Murphy ◽  
Navneet S. Majhail ◽  
Kevin Scott Baker ◽  
Beatrice Abetti ◽  
Balkrishna N. Jahagirdar ◽  
...  

63 Background: There is a critical need to increase awareness of late complications and recommended preventive care among patients and providers and improve communication about long-term care. During transition back to community, care often becomes fragmented and insufficient to address survivors’ complex medical needs. A survivorship care plan (SCP) was developed using disease and hematopoietic cell transplant (HCT) data submitted to an outcomes registry. A treatment summary incorporates these data and identifies important treatment-related risk factors. The care plan uses these risk factors and long-term follow-up guidelines (Majhail et al, BBMT/BMT 2012) to provide personalized recommendations for preventive care. Study aims were to characterize patient-centered elements that will increase acceptability of the SCP. Methods: Phone focus groups (N = 12) were conducted for: 1) adult allogeneic patients > 1 year post-HCT and their caregivers (3 groups, N = 22); 2) hematology/oncology and primary care physicians/mid-level providers (3 groups, N = 24); 3) HCT providers (2 groups, N = 14); and 4) HCT nurses/social workers (4 groups, N = 17). Transcripts were coded and analyzed for saturation of key themes. Coding reliability and validity were assessed (kappa > .90). Results: Patients/caregivers reported challenges in accessing specialty care due to providers’ unfamiliarity with HCT and felt SCP should be more personalized with robust sections on psychosocial, sexual/mental health, and diet. Providers found the SCP markedly better than what they currently receive. Both patients and providers identified that SCP will facilitate appropriate post-HCT care. Similar themes were identified among the health professional groups, with the exception of screening and care for psychosocial issues more frequently mentioned by the nurses/social workers. Conclusions: Our study highlights the need for a personalized SCP tool to facilitate HCT survivorship care. Patient and provider feedback has been used to refine the SCP for which effectiveness is being assessed in a randomized, controlled trial. Engaging all stakeholder groups in this research helped to ensure patient-centeredness of the SCP.


2017 ◽  
Vol 4 (suppl_1) ◽  
pp. S266-S267 ◽  
Author(s):  
Christopher Kovacs ◽  
Vasilios Athans ◽  
David Lang ◽  
Ronald Sobecks ◽  
Lisa Rybicki ◽  
...  

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