Poster 17: Family Needs Affect Well-Being in Family-Member Caregivers of Patients With Traumatic Brain Injury

2008 ◽  
Vol 89 (10) ◽  
pp. e13
Author(s):  
Monica Apone ◽  
Maria Cristina Quijano ◽  
Maria Teresa Cuervo ◽  
Adriana Rincón ◽  
Heather Rogers ◽  
...  
2010 ◽  
Author(s):  
Paul C. Hubbarth ◽  
Lisa J. Rapport ◽  
Brigid Waldron-Perrine ◽  
Sarah-Jane Meachen

2021 ◽  
Vol 9 (1) ◽  
pp. 39
Author(s):  
Evgenia Stasinopoulou ◽  
Margarita Giannakopoulou ◽  
Georgios Fildisis ◽  
Maria Kalafati ◽  
Chryssoula Leomonidou

Background: Investigating quality of life (QoL) is of crucial importance for the scientific community as it could function not only as an indicator of prognosis and post-traumatic clinical and psychological changes in patients who have suffered from acute brain injury (ABI), but also as an indicator of the effectiveness of their treatment and social rehabilitation. In addition, it can highlight changes in the carer’s health, social life and well-being. This study examined the QoL of patients following ABI and the needs of their carers.Material and methodology: This study was conducted in patients suffering from ABI, who were admitted to the General Hospital of Attica “KAT” and to the National Rehabilitation Center and on their carers. Data collection including demographics and Quality of Life After Brain Injury Questionnaire (QOLIBRI) and the Family Needs Questionnaire (FNQ) was performed during patients’ rehabilitation, while six months after release, a follow-up survey was conducted using the same questionnaires. Statistical analysis of data was performed using SPSS.Results: We analysed 50 patients with mild ABI (GCS ≥ of 13/15) during rehabilitation and six months after release and found that their QoL improves and is positively related to improvement of health status (i.e. in terms of thinking ability, QoL improves from r = 2.33, p < .01 to r = 3.37, p < .001). We also found that “Age” has the greatest impact on the patient’s progress for recovery and the general QoL after ABI (r = -0.423, p < .01). In addition, it was found that carers of patients with ABI are confronted with the burden of care, while they record both fulfilled and unmet needs regarding their individual needs (i.e. only for 30% of the sample the need for help in preparing them for the worst is met).Conclusions: Our study confirms previous findings that underline that ABI has a major impact on QoL of both patients and their carers providing them with long-term daily care. Although it has been found that over time there is an improvement in the QoL of patients with ABI, the absence of an official support network for carers from public health system, hospitals and rehabilitation centers may adversely affect the QoL of patients and their carers. Therefore, more structured, long-term family-wide monitoring and support is needed, focusing on identifying those at risk of social isolation and incomplete social networking.


2019 ◽  
Vol 25 (08) ◽  
pp. 890-895 ◽  
Author(s):  
Allison S. Binder ◽  
Katie Lancaster ◽  
Jean Lengenfelder ◽  
Nancy D. Chiaravalloti ◽  
Helen M. Genova

AbstractObjective: Individuals with traumatic brain injury (TBI) can experience social isolation, which is damaging to well-being and counterproductive to successful rehabilitation. It has been proposed that social cognitive deficits that commonly result from TBI may contribute to weakened social integration. However, the consequences of specific social cognitive deficits in TBI are still being delineated. The current work sought to better characterize the relationship between community integration and facial affect recognition (FAR) in TBI. Participants and Methods: A total of 27 participants with moderate to severe TBI and 30 healthy controls (HCs) completed two tests of FAR, which employed either static photographic stimuli or dynamic video stimuli (The Awareness of Social Inference Test). The Community Integration Questionnaire was also administered to participants. Results: Participants with TBI were significantly impaired on both the static and dynamic FAR measures, yet the deficits were most pronounced within the dynamic task. Furthermore, participants with TBI reported lower community integration compared with HCs. FAR was positively associated with community integration in both groups, such that participants with proficient affect recognition skills were better integrated into their communities. Conclusions: FAR deficits may contribute to the lack of community integration often observed in TBI; thus, interventions designed to improve FAR may be beneficial to this population’s ability to successfully reintegrate into society.


2013 ◽  
Vol 2013 ◽  
pp. 1-9 ◽  
Author(s):  
Ryan J. Kalpinski ◽  
Meredith L. C. Williamson ◽  
Timothy R. Elliott ◽  
Jack W. Berry ◽  
Andrea T. Underhill ◽  
...  

Identifying reliable predictors of positive adjustment following traumatic brain injury (TBI) remains an important area of inquiry. Unfortunately, much of available research examines direct relationships between predictor variables and outcomes without attending to the contextual relationships that can exist between predictor variables. Relying on theoretical models of well-being, we examined a theoretical model of adjustment in which the capacity to engage in intentional activities would be prospectively associated with greater participation, which in turn would predict subsequent life satisfaction and perceived health assessed at a later time. Structural equation modeling of data collected from 312 individuals (226 men, 86 women) with TBI revealed that two elements of participation—mobility and occupational activities—mediated the prospective influence of functional independence and injury severity to optimal adjustment 60 months following medical discharge for TBI. The model accounted for 21% of the variance in life satisfaction and 23% of the variance in self-rated health. Results indicate that the effects of functional independence and injury severity to optimal adjustment over time may be best understood in the context of participation in meaningful, productive activities. Implications for theoretical models of well-being and for clinical interventions that promote adjustmentafter TBI are discussed.


2001 ◽  
Vol 16 (4) ◽  
pp. 374-385 ◽  
Author(s):  
Stephanie A. Kolakowsky-Hayner ◽  
K. Dawn Miner ◽  
Jeffrey S. Kreutzer

2019 ◽  
Vol 27 (4) ◽  
pp. 859-866
Author(s):  
Angela Sekely ◽  
Yimin Xie ◽  
Aalim Makani ◽  
Tyler Brown ◽  
Konstantine K. Zakzanis

2019 ◽  
Vol 76 (7) ◽  
pp. 471-478 ◽  
Author(s):  
Reema Shafi ◽  
Peter M Smith ◽  
Angela Colantonio

IntroductionWorkplace violence carries a substantial economic loss burden. Up to 10% of all traumatic brain injury (TBI) admissions result from physical assault. There remains a paucity of research on assault as a mechanism of injury, taking into account sex, and its association with work re-entry.ObjectivesThe aim of this study was to characterise, by sex, the sample of workers who had sustained a work-related mild TBI (wr-mTBI) and to assess the independent influence of assault, as a mechanism of injury, on time away from work.MethodsA population-based retrospective cohort of workers’ compensation claimants in Australia (n=3129) who had sustained a wr-mTBI was used for this study. A multivariable logistic regression analysis assessed whether workers who had sustained wr-mTBI as a result of assault (wr-mTBI-assault) were more likely to claim time off work compared with workers who had sustained a wr-mTBI due to other mechanisms.ResultsAmong claimants who sustained a wr-mTBI, 9% were as a result of assault. The distribution of demographic and vocational variables differed between the wr-mTBI-assault, and not due to assault, both in the full sample, and separately for men and women. After controlling for potential confounding factors, workers who sustained wr-mTBI-assault, compared with other mechanisms, were more likely to take days off work (OR 2.14, 95% CI 1.53 to 2.99) within a 3-month timeframe.ConclusionThe results have policy-related implications. Sex-specific and workplace-specific prevention strategies need to be considered and provisions to support return-to-work and well-being within this vulnerable cohort should be examined.


2009 ◽  
Vol 90 (10) ◽  
pp. e20
Author(s):  
Guido Mascialino ◽  
Svetlana Serova ◽  
Theodore Tsaousides ◽  
Joshua Cantor ◽  
Teresa Ashman ◽  
...  

2018 ◽  
Vol 17 (2) ◽  
pp. 27
Author(s):  
McKenzie Seaton, LAT, ATC, MSRT Student ◽  
Victoria DeFazio, CTRS ◽  
Heather R. Porter, PhD, CTRS

The purpose of this systematic review is to examine the efficacy of anger management interventions for individuals with traumatic brain injury (TBI). A total of 4,178 articles were identified of which six met the inclusion criteria. Anger management interventions included TBI education, anger education, emotional recognition, support, and maintenance of an anger log. Data were collected on eight outcomes (trait anger, anger expression-out, anger control, self-reported aggressiveness, anger recognition strategies, well-being, self-reported anger, and treatment satisfaction) with mixed findings. Suggestions for recreational therapy practice are provided. Further research is needed, particularly for the pediatric and adolescent TBI population.


2012 ◽  
Vol 22 (1) ◽  
pp. 47-52 ◽  
Author(s):  
Colin Silverthorne ◽  
Sat Bir Khalsa ◽  
Robin Gueth ◽  
Nicole DeAvilla ◽  
Janie Pansini

Objective: This pilot study was designed to identify the potential benefits of breath-focused yoga on respiratory, physical, and psychological functioning for adults with severe traumatic brain injury (TBI). Participants: Ten individuals with severe TBI who self-selected to attend weekly yoga classes and 4 no-treatment controls were evaluated. Methods: Participants were assessed at pretreatment baseline and at 3-month intervals for a total of 4 time points over 40 weeks. Outcomes of interest included observed exhale strength, ability to hold a breath or a tone, breathing rate, counted breaths (inhale and exhale), and heart rate, as well as self-reported physical and psycho-logical well-being. Results: Repeated within-group analyses of variance revealed that the yoga group demonstrated significant longitudinal change on several measures of observed respiratory functioning and self-reported physical and psychological well-being over a 40-week period. Those in the control group showed marginal improvement on 2 of the 6 measures of respiratory health, physical and social functioning, emotional well-being, and general health. The small sample sizes precluded the analysis of between group differences. Conclusion: This study provides preliminary evidence that breath-focused yoga may improve respiratory functioning and self-perceived physical and psychological well-being of adults with severe TBI.


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