Home Mechanical Ventilation and Quality of Life Measures

2012 ◽  
Keyword(s):  
Quality Of Life ◽  
Mechanical Ventilation ◽  
Home Mechanical Ventilation ◽  
Quality Of Life Measures

scholarly journals Validation of the Hungarian version of the SRI Questionnaire

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Luca Valko ◽  
Szabolcs Baglyas ◽  
Laszlo Kunos ◽  
Attila Terray-Horvath ◽  
Andras Lorx ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mechanical Ventilation ◽  
Respiratory Failure ◽  
Chronic Respiratory Failure ◽  
Life Questionnaire ◽  
Home Mechanical Ventilation ◽  
Life Tool ◽  
Sf 36 ◽  
Hungarian Version

Abstract Background Home mechanical ventilation is a reliable treatment for patients suffering from chronic respiratory failure, improving survival and quality of life. Prevalence has been increasing worldwide as a result of evolving technical possibilities, telemedicine and improving national guidelines. Projects to establish a national guideline and registry for patients treated with home mechanical ventilation are currently under way in Hungary and our aim was to validate a quality of life questionnaire suited for evaluation and follow up in this specific patient group. The Severe Respiratory Insufficiency Questionnaire (SRI) is a quality of life tool designed to evaluate patients receiving home mechanical ventilation and has been validated both in patient groups receiving invasive and noninvasive ventilation. Methods The Hungarian version of the SRI was created using the translation-backtranslation method, which was then tested for validity, viability and reliability in a cohort involving patients from three centers, receiving long-term home mechanical ventilation for chronic respiratory failure through an invasive or noninvasive interface. Patient data was collected (demographic data, lung function test, arterial blood gas, ventilation settings) and quality of life was measured with the previously validated SF-36 and newly created Hungarian SRI Questionnaires at two time points. Results One hundred four patients receiving home mechanical ventilation were enrolled. The time to complete the SRI Questionnaire was 8.6 (±3.1) minutes, 69.2% questionnaires were self-administered. Exploratory factor analysis explained 73.8% of the variance of the questionnaire, but resulted in 13 scales. We found correlations between the SRI subscale scores to corresponding scales of the previously validated general quality of life survey SF-36. The Cronbach alpha coefficient was 0.928 for the Summary Scale of the SRI Questionnaire, proving high internal consistency. Reproducibility was high for most scales, resulting in a high overall correlation for the summary score (0.877, p < 0.001). Conclusions The Hungarian version of the SRI Questionnaire is a viable, valid, reliable and reproduceable quality of life tool applicable for patients treated with home mechanical ventilation.

Quality-of-Life Evaluation of Patients With Neuromuscular and Skeletal Diseases Treated With Noninvasive and Invasive Home Mechanical Ventilation

CHEST Journal ◽  
2002 ◽  
Vol 122 (5) ◽  
pp. 1695-1700 ◽  
Author(s):  
Agneta Markstro¨m ◽  
Kerstin Sundell ◽  
Michael Lysdahl ◽  
Gillis Andersson ◽  
Ulla Schedin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mechanical Ventilation ◽  
Home Mechanical Ventilation ◽  
Life Evaluation

scholarly journals Factors related to quality of life in patients receiving home mechanical ventilation

2008 ◽  
Vol 102 (4) ◽  
pp. 605-612 ◽  
Author(s):  
Jose Luis López-Campos ◽  
Inmaculada Failde ◽  
Juan F. Masa ◽  
Jose M. Benítez-Moya ◽  
Emilia Barrot ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mechanical Ventilation ◽  
Home Mechanical Ventilation

scholarly journals Home mechanical ventilation: quality of life patterns after six months of treatment

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Luca Valko ◽  
Szabolcs Baglyas ◽  
V. Anna Gyarmathy ◽  
Janos Gal ◽  
Andras Lorx
Keyword(s):  
Quality Of Life ◽  
Mechanical Ventilation ◽  
Home Mechanical Ventilation ◽  
Life Patterns
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