Family burden and coping strategies in schizophrenia: 1-year follow-up data from the BIOMED I study

2000 ◽  
Vol 35 (3) ◽  
pp. 109-115 ◽  
Author(s):  
G. Fadden ◽  
M. Economou ◽  
T. Held ◽  
M. Xavier ◽  
M. Guarneri ◽  
...  
2021 ◽  
Vol 10 (17) ◽  
pp. 3916
Author(s):  
Roman Kotas ◽  
Marta Nowakowska-Kotas ◽  
Sławomir Budrewicz ◽  
Anna Pokryszko-Dragan

Objectives: Stress is supposed to be linked with a background of multiple sclerosis (MS) and the disease course. Design: The study aimed to assess the level of stress and coping strategies in MS patients within a year of follow-up and to investigate the relationships between these aspects and factors related—or not—to MS. Methods: In 65 patients with MS, the Perceived Stress Scale (PSS-10), Type D Scale (DS14) and Coping Orientations to Problems Experienced (COPE) were performed at baseline and after a year. Baseline PSS-10, DS-14 and COPE scores were analyzed with regard to demographics, MS duration, treatment, indices of disability and self-reported stressful events (SEs). Final PSS-10 and COPE results were analyzed with reference to MS activity and SE within a year of follow-up. Results: Initially, 67% of patients reported a moderate or high level of stress and 31% met Type-D personality criteria. Diverse coping strategies were preferred, most of which were problem-focused. The negative affectivity DS-14 subscore (NEG) was correlated with disability level. Non-health-related SEs were associated with higher PSS-10 and NEG scores. After a year, the mean PSS-10 score decreased, while COPE results did not change significantly. Non-health-related SEs were associated with a higher PSS-10 score and less frequent use of acceptance and humor strategies. Those with an active vs. stable MS course during the follow-up did not differ in terms of PSS-10 and COPE results. Conclusions: MS patients experienced an increased level of stress. No significant relationships were found between stress or coping and MS course within a year. Non-health-related factors affected measures of stress more than MS-related factors.


2007 ◽  
Vol 48 (3) ◽  
pp. 211-216 ◽  
Author(s):  
Florence Cousson-Gelie ◽  
Marilou Bruchon-Schweitzer ◽  
Jean Marie Dilhuydy ◽  
Marthe-Aline Jutand

2017 ◽  
Vol 22 (3) ◽  
pp. 379-388 ◽  
Author(s):  
Guro Hanevold Bjørkløf ◽  
Knut Engedal ◽  
Geir Selbæk ◽  
Deborah Bezerra Maia ◽  
Tom Borza ◽  
...  

2020 ◽  
Author(s):  
Bezawit Ketema ◽  
Mirgissa Kaba ◽  
Adamu Addissie ◽  
Eva Johanna Kantelhardt

Abstract Background People with comorbidities are at higher risk of becoming severely ill with COVID-19. Evidence has shown that those with cardiovascular diseases, chronic respiratory diseases, diabetes and cancer had more severe illness and worse prognosis with COVID-19 compared to patients without comorbidities. Insufficient numbers of health workers, high financial barriers and lack of access to quality-assured medicines have been challenges for patients with non-communicable diseases (NCDs) in developing countries, even before COVID-19. Therefore, this study aimed to explore the challenges and coping strategies in NCD management during COVID-19 in Addis Ababa, Ethiopia.Methods This study followed a phenomenological study approach to explore challenges and coping strategies using the experience of healthcare professionals (HCPs) and people with NCDs. Twenty-two individuals (13 HCPs and nine people with NCDs) were recruited purposively and invited for in-depth interview. All interviews were made by telephone and data collected using interview guide. There was pre-interview telephonic conversation to ask participants for a convenient time and date for the actual interview. At the end of every interview, a summary of the interview notes was read to the participants to ensure the correct interpretation of participants’ original views. ATLAS.ti version 7 software was used to assist in the coding and categorisation. Thematic analysis was employed to understand the challenges and coping strategies in NCD management during COVID-19 in Addis Ababa, Ethiopia.Results Challenges posed by COVID-19 to people with NCD included postponement of NCD follow-up due to fear of COVID-19 infection, transportation problems and unwelcoming healthcare facilities; stress related to fear of death and absence of social support; and reduced physical activity in relation to staying at home. For the HCPs, a shortage of personal protective equipment and an absence of standards and guidelines were the common challenges. Telemedicine was the typical coping strategy used by HCPs, while people with NCDs were mostly expecting spiritual protection and safeguarding.Conclusions We concluded that the postponement of NCD follow-up, in addition to stress and reduced physical activity, may worsen the increasing mortality from preventable NCDs in the country. We recommend every COVID-19 response measures to target NCD health service independently.


1999 ◽  
Vol 99 (1) ◽  
pp. 10-15 ◽  
Author(s):  
L. Magliano ◽  
G. Fadden ◽  
A. Fiorillo ◽  
C. Malangone ◽  
D. Sorrentino ◽  
...  

1990 ◽  
Vol 157 (2) ◽  
pp. 221-227 ◽  
Author(s):  
K. D. Bledin ◽  
B. Maccarthy ◽  
L. Kuipers ◽  
R. T. Woods

Twenty-five women who were the primary carers for a parent with dementia were rated for expressed emotion (EE) and then divided into two groups: 11 with low-EE ratings and 14 with high-EE ratings. Although there were no differences between these groups in the levels of their parents' cognitive impairment, when such impairment was taken into account, high-EE subjects were found to report higher levels of strain and distress. More efficient coping strategies were reported by subjects who made fewer critical comments and more positive remarks. High-EE subjects more frequently had no living siblings, and were more likely to have had a respite break from caring. EE status was not associated with continuing care in the community at a nine-month follow-up.


1999 ◽  
Vol 174 (2) ◽  
pp. 154-158 ◽  
Author(s):  
Marcia Scazufca ◽  
Elizabeth Kuipers

BackgroundMost research on expressed emotion (EE) has used an empirical approach to describe relatives' ways of coping with people with schizophrenia.AimsTo use the stress and coping model proposed by Lazarus and Folkman to examine how relatives coped with patients.MethodPatients with DSM–III–R schizophrenia and their relatives were assessed just after hospitalisation of the patients and nine months after discharge. Both assessments included the symptoms of the patients and the coping strategies, burden, distress and levels of EE of the relatives.ResultsFifty patients and 50 relatives were assessed at inclusion, and 31 patients and 36 relatives at follow-up. Coping strategies were used more frequently at inclusion than at follow-up. Problem-focused coping was the strategy used more often at both assessments. Avoidance coping was strongly associated with burden, distress and high EE at both assessments.ConclusionsWays of coping are influenced by relatives' perceptions of the situation with patients. Avoidance strategies seem to be less effective in regulating the distress of care-givers than problem-focused strategies.


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