The absolute ethical requirement of individual, informed consent: A commentary on Barrett and Parker

2003 ◽  
Vol 22 (3) ◽  
pp. 18-22
Author(s):  
Reidar Lie
2016 ◽  
Vol 41 (1) ◽  
pp. 119-128 ◽  
Author(s):  
Amy L. Fairchild ◽  
Ronald Bayer

AbstractSurveillance is the radar of public health. Without tracking, often by name, the incidence and prevalence of both infectious and chronic disease, health officials would be unable to understand where and how to potentially intervene or what resources might be required to protect populations. Surveillance without individual informed consent has been challenged in the name of both bioethics and human rights. In this article we contend that a robust conception of public health not only justifies surveillance but, without disregarding the need to respect individuals, provides an affirmative duty to engage in surveillance. There may be social and political circumstances in which the names of those reported cannot be protected from unwarranted disclosure and misuse for ends that have little to do with protecting the public's health. But while the potential for misuse requires an ongoing, searching scrutiny of disease surveillance, remote or hypothetical threats should not serve to undermine this vital public health activity.


2011 ◽  
Vol 21 (1) ◽  
pp. 40-50 ◽  
Author(s):  
GERT HELGESSON

Proper procedures for informed consent are widely recognized as an ethical requirement for biomedical research involving human beings, in particular as a means to respect the autonomy and personal integrity of potential and actual research participants.


2013 ◽  
Vol 13 (9) ◽  
pp. 17-19 ◽  
Author(s):  
Margarita Gonzalvo-Cirac ◽  
María Victoria Roqué ◽  
Ferran Fuertes ◽  
Mauricio Pacheco ◽  
Ignacio Segarra

2004 ◽  
Vol 359 (1447) ◽  
pp. 1133-1136 ◽  
Author(s):  
Onora O'Neill

During the past 25 years, medical ethics has concentrated largely on clinical medicine and the treatment of individual patients. This focus permits a view of medical provision as a (quasi–) consumer good, whose distribution can be or should be contingent on individual choice. The approach cannot be extended to public health provision. Public health provision, including measures for limiting the spread of infectious diseases, is a public good and can be provided for some only if provided for many. The provision or non–provision of public goods cannot be contingent on individual informed consent, so must be in some respects compulsory. An adequate ethics of public health needs to set aside debates about informed consent and to consider the permissible limits of just compulsion for various types of public good. It will therefore gain more from engaging with work in political philosophy than with individualistic work in ethics.


2014 ◽  
Vol 13 (1) ◽  
pp. 93-98 ◽  
Author(s):  
David Ameh ◽  
Uchendu O Uchendu ◽  
Oyedeji A Adeyemi ◽  
Readon C Ideh ◽  
Bernard E Ebruke ◽  
...  

2018 ◽  
Vol 13 (4) ◽  
pp. 311-322 ◽  
Author(s):  
Michelle Brear

In community-based participatory research (CBPR), community-level consent is assumed to enhance ethical rigor, when obtained prior to individual informed consent. However, community leaders’ permission to conduct research may influence individuals’ agency to decline participation. This article presents findings of a Bourdieusian analysis of ethnographic data documenting CBPR in rural Swaziland. The findings reveal that the “symbolic power” of leaders who provide community-level consent constrains individual agency and reproduces existing relations of power, if individual informed consent is simply a procedure. However, when informed consent is a process that introduces notions of autonomy and rights, it can disrupt power relations. Implications for ethical CBPR practice, and ethnography’s value for developing theory from real-world research ethics practice, are discussed.


2013 ◽  
pp. 22-37 ◽  
Author(s):  
Theda Rehbock

In this article I oppose the current account of autonomy and informed consent in bioethics through criticising the four underlying prejudices of an objectivistic, dualistic, rationalistic and individualistic misunderstanding of the will. With special regard to the case of patients with dementia I argue for the thesis that the principle of autonomy, as moral principles in general, has unconditional and universal validity, but has to be applied differently in the face of specific situations and circumstances by means of the power of judgment (Urteilskraft). As the philosophical resp. anthropological basis of my argument I develop a broad understanding of the will in an Aristotelian and phenomenological sense. The practical consequences of my thesis consist in the ethical requirement of equal respect for the will of mentally ill patients.


2019 ◽  
Vol 7 (1) ◽  
pp. 150
Author(s):  
Indra Darian Wicaksana , ◽  
Ambar Budhisulistyawati ,

<p>Abstract<br />This journal aims to determine the legal consequences of emergency medical treatment without informed <br />consent. This research is a normative perspective. As science is perspective, the science of law study law <br />purposes, the values   of justice, the validity of the rule of law and legal norms. This research approach using <br />the statue approach. Legal materials research using primary and secondary legal materials. Mechanical <br />collection  of  legal materials  research through library research / study documents and subsequently <br />analyzed by deduction, the analysis to draw conclusions from things that are common to be the case that <br />individual. Informed consent is mandatory before doctors perform medical procedures on patients. In the <br />absence of informed consent then there is no agreement before medical treatment. In the absence of <br />informed consent is the legal protection of the doctor and the patient is minimal and there is no agreement <br />between the patient and the doctor. Legal consequences arising in the absence of informed consent was <br />not inflict a loss of a doctor giving a feat obligation to the patient. <br />Keywords: Legal consequences; Informed Consent;  Agreement; Exception</p><p>Abstrak<br />Jurnal  ini  bertujuan  untuk  mengetahui  akibat  hukum  dari  penanganan  medis  gawat  darurat  tanpa <br />menggunakan informed consent. Penelitian ini merupakan penelitian normatif yang bersifat perspektif. <br />Sebagai  ilmu  yang  bersifat  prespektif,  ilmu  hukum  mempelajari  tujuan  hukum,  nilai-nilai  keadilan, <br />validitas aturan hukum, dan norma-norma hukum. Pendekatan penelitian ini menggunakan pendekatan <br />undang-undang. Bahan hukum penelitian ini menggunakan bahan hukum primer dan sekunder. Teknik <br />pengumpulan bahan hukum penelitian ini melalui studi kepustakaan/studi dokumen dan selanjutnya <br />dianalisis dengan teknik deduksi, analisis untuk menarik kesimpulan dari hal yang bersifat umum menjadi <br />kasus yang bersifat individual. Informed Consent merupakan hal yang wajib sebelum dokter melakukan <br />tindakan medis terhadap pasien. Dengan tidak adanya informed consent maka tidak terjadi perikatan <br />sebelum penanganan medis. Dengan tidak adanya informed consent maka perlindungan hukum terhadap <br />dokter dan pasien sangatlah minim dan tidak terdapat perikatan antara pasien dan dokter. Akibat hukum <br />yang timbul dengan tidak adanya informed consent ternyata tidak menimbulkan hilangnya kewajiban <br />dokter memberikan suatu prestasi kepada pasien. <br />Kata Kunci : Akibat Hukum; Informed Consent; Persetujuan; Pengecualian</p>


Author(s):  
Enock Takyi

The technique of participant observation, and the roles involved, have been widely discussed in the literature across a range of settings and topics. However, researchers rarely argue for a particular role that a participant observer should adopt. In this paper, I attempt to argue for the participant-as-observer role. I do so by reviewing existing literature on the topic. I argue that the complete observer and the complete participant roles are not applicable in today's research environment because, aside from their practical problems, they violate the ethical requirement of informed consent. I argued further that the observer-as-participant role, with its limited involvement in the life of informants, not only prevents the researcher from fully understanding the context of the study, but also instils doubts and suspicion in informants, leading to concealment or distortion of data. I therefore conclude that, where all the four roles are possible, the participant-as-observer role, which offers a higher degree of involvement, should be employed to enable the researcher to get deeper understanding of the context under study. I add, however, that the participant observer should, in this case, account for his/her biases and their possible effects on his/her observations.


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