Cancer patients and their network: the meaning of the social network and social interactions for quality of life

1993 ◽  
Vol 1 (3) ◽  
pp. 152-155 ◽  
Author(s):  
Johan H. de Ruiter ◽  
Johanna C. J. M. de Haes ◽  
Reike Tempelaar
Keyword(s):  
Quality Of Life ◽  
Social Network ◽  
Social Interactions ◽  
Cancer Patients ◽  
The Social

scholarly journals Three Strategies for Describing Social Interactions of Adolescents in a Multicultural Environment—Indicators for the Quality of Life Research

2021 ◽  
Vol 18 (15) ◽  
pp. 8166
Author(s):  
Alicja Szerląg ◽  
Arkadiusz Urbanek ◽  
Kamila Gandecka
Keyword(s):  
Quality Of Life ◽  
Social Interactions ◽  
Social Relationships ◽  
Social Relations ◽  
Living Environment ◽  
Life Assessment ◽  
Multicultural Environment ◽  
Multicultural Community ◽  
The Social

Background: The analysis has involved social interactions in a multicultural environment. The social context has been defined by the Vilnius region (Lithuania), where national, religious, and cultural differences exist across generations (multicultural community). The space of “social relationships”, as one of the modules of the WHO quality of life assessment, has been studied. An innovation of the research has been related to the analysis of the phenomenon of community of nationalities and cultures as a predictor of quality of life (QoL). The social motive of the research has been the historical continuity (for centuries) of the construction of the Vilnius cultural borderland. Here, the local community evolves from a group of many cultures to an intercultural community. Interpreting the data, therefore, requires a long perspective (a few generations) to understand the quality of relationships. We see social interactions and strategies for building them as a potential for social QoL in multicultural environments. Methods: The research has been conducted on a sample of 374 respondents, including Poles (172), Lithuanians (133), and Russians (69). A diagnostic poll has been used. The respondents were adolescents (15–16 years). The research answers the question: What variables form the interaction strategies of adolescents in a multicultural environment? The findings relate to interpreting the social interactions of adolescents within the boundaries of their living environment. The description of the social relations of adolescents provides an opportunity to implement the findings for further research on QoL. Results: An innovative outcome of the research is the analysis of 3 interaction strategies (attachment to national identification, intercultural dialogue, and multicultural community building) as a background for interpreting QoL in a multicultural environment. Their understanding is a useful knowledge for QoL researchers. The data analysis has taken into account cultural and generational (historical) sensitivities. Therefore, the team studying the data has consisted of researchers and residents of the Vilnius region. We used the interaction strategies of adolescents to describe the category of “social relationships” in nationally and culturally diverse settings.

The impact of the social network, stigma and empowerment on the quality of life in patients with schizophrenia

2011 ◽  
Vol 26 (1) ◽  
pp. 28-33 ◽  
Author(s):  
I. Sibitz ◽  
M. Amering ◽  
A. Unger ◽  
M.E. Seyringer ◽  
A. Bachmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Network ◽  
Structural Equation ◽  
Internalized Stigma ◽  
Stigma Reduction ◽  
Equation Modelling ◽  
The Social ◽  
Recovery Approach ◽  
The Impact

Abstract:Objective:The quality of life (QOL) of patients with schizophrenia has been found to be positively correlated with the social network and empowerment, and negatively correlated with stigma and depression. However, little is known about the way these variables impact on the QOL. The study aims to test the hypothesis that the social network, stigma and empowerment directly and indirectly by contributing to depression influence the QOL in patients with schizophrenia and schizoaffective disorders.Method:Data were collected on demographic and clinical variables, internalized stigma, perceived devaluation and discrimination, empowerment, control convictions, depression and QOL. Structural equation modelling (SEM) was applied to examine the impact of the above-mentioned constructs on QOL.Results:The influences of the social network, stigma, empowerment and depression on QOL were supported by the SEM. A poor social network contributed to a lack of empowerment and stigma, which resulted in depression and, in turn, in poor QOL. Interestingly, however, the social network and stigma did not show a direct effect on QOL.Conclusions:Following a recovery approach in mental health services by focusing on the improvement of the social network, stigma reduction and especially on the development of personal strength has the potential to reduce depression in patients with psychosis and improving their QOL.

scholarly journals Filipino head and neck cancer patients and their quality of life

2020 ◽  
Vol 6 (3) ◽  
pp. 439
Author(s):  
Frederic Ivan L. Ting ◽  
Aylmer Rex B. Hernandez ◽  
Reno Eufemon P. Cereno ◽  
Irisyl B. Orolfo-Real ◽  
Corazon A. Ngelangel
Keyword(s):  
Quality Of Life ◽  
Head And Neck Cancer ◽  
Head And Neck ◽  
Cancer Patients ◽  
Neck Cancer ◽  
The Philippines ◽  
Head And Neck Cancers ◽  
The Social ◽  
The University

<p class="abstract"><strong><span lang="EN-US">Background: </span></strong>In the management of head and neck cancer (HNC), assessment of quality of life (QoL) is imperative because of the potentially debilitating effect of treatment toxicities. Currently, there are no published data assessing the QoL in Filipino HNC patients, thus this study.</p><p class="abstract"><strong><span lang="EN-US">Methods: </span></strong>This cross-sectional study utilized the University of the Philippines - Department of Health Quality of Life scale. Patients with head and neck cancers at the University of the Philippines - Philippine General Hospital from February to September 2019 were invited to participate.  </p><p class="abstract"><strong><span lang="EN-US">Results: </span></strong>A total of 418 patients were included in the study with a mean age of 42 years old (range 18 to 73 years old). In general, Filipino head and neck cancer patients had moderate QoL (mean score of 4.59±0.79). All of the QoL domains (physical, emotional, cognitive, and related functions) had a score of 3-5 (moderate), except for the social status domain which had a mean score of 5.51±0.83 (high). Among socio-demographic factors, patients who are employed and with additional funding sources on top of their income have better global QoL (p&lt;0.01). Clinically, patients with higher stages of disease, fungating tumors, post-laryngectomy, have a feeding tube, with a tracheostomy, and had chemotherapy have lower global QoL (p&lt;0.01).</p><p class="abstract"><strong><span lang="EN-US">Conclusions: </span></strong>Filipino patients with head and neck cancers have an overall moderate quality of life, with high scores in the social domain. Patients with higher tumor burdens and have been exposed to chemotherapy have lower QoL scores, while patients with financial stability and aid have better QoL scores.</p><p class="abstract"><span lang="EN-US"> </span></p>

scholarly journals Improving quality of life in cancer patients through higher participation and health literacy: study protocol for evaluating the oncological social care project (OSCAR)

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Johann Frick ◽  
Daniel Schindel ◽  
Pimrapat Gebert ◽  
Ulrike Grittner ◽  
Liane Schenk
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Patient Reported Outcomes ◽  
Social Care ◽  
The Social ◽  
Patient Reported ◽  
Mixed Method Design ◽  
Insurance Funds ◽  
Health Insurance Funds

Abstract Background Cancer patients experience psychological and social distress due to their medical treatment and social issues. However, continuous and specialized social support is still lacking. In Germany, a group of company health insurance funds has developed an approach to support cancer patients with monthly structured interviews conducted by specially trained Social Care Nurses. The nurses will identify patient needs in order to provide help with medical, personal, and social matters. One aim of the scientific evaluation is to analyze the effect of the consultations on various patient-reported outcomes, especially quality of life. The evaluation concept will be described in this study protocol. Methods/design The evaluation is a non-randomized, controlled, multi-center intervention study with a mixed-method design. It consists of three research modules which include primary data from questionnaires, and claims data from the health insurance funds. In Module 1, cancer patients will be recruited to form an intervention group (OSCAR, n = 150) and a control group (n = 200) in four study centers for a period of 1 year. One baseline and three follow-up questionnaires will be conducted to survey the patient-reported outcomes. Relevant secondary outcomes are health literacy, participation, and physician-patient communication. In Module 2, claims data will be used to analyze cost effects and thereby assess effectivity and hospitalization. Module 3 will involve a qualitative analysis of project diaries kept by the Social Care Nurses. The diaries will record the nurses’ practical experiences and the benefits of deploying OSCAR across the German healthcare system. Discussion OSCAR is an innovative way of providing cancer patients with continuous support to improve their quality of life. The evaluation concept aims to assess the effects of the monthly consultations by the Social Care Nurses on the patients, and will use a mixed-method design. The results are important for assessing the transferability of OSCAR to the healthcare system as a whole. Trial registration German Clinical Trials Register (DRKS-ID: DRKS00013640). Registered 29 December 2017.

The Intricacy of the Ordinary

1994 ◽  
Vol 164 (S23) ◽  
pp. 108-114 ◽  
Author(s):  
Tom Sørensen
Keyword(s):  
Quality Of Life ◽  
Social Network ◽  
Catchment Area ◽  
Well Being ◽  
Coping Resources ◽  
Subjective Well Being ◽  
The Social ◽  
Treatment Objective ◽  
Satisfactory Quality

Schizophrenia constitutes a lifelong vulnerability in relation to life stresses and the maintenance of social networks. Satisfactory quality of life – understood as subjective well-being in a lifetime perspective – is the ultimate treatment objective. This paper draws on research and clinical experience from Lofoten – the catchment area of a psychiatric out-patient clinic in Northern Norway. This work stresses the quality of life for the social network around the psychiatric patient as a consideration in its own right. The patient's coping resources and social network are regarded as a continuous professional concern.

scholarly journals As Strong as We Are United: Effects of Intrapersonal and Interpersonal Emotion Regulation on Quality of Life in Women With Breast Cancer

2021 ◽  
Vol 12 ◽  
Author(s):  
Rita Moura ◽  
Cristina Camilo ◽  
Sílvia Luís
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Social Interactions ◽  
Cancer Patients ◽  
Breast Cancer Patients ◽  
Emotional Burden ◽  
Social Sharing ◽  
Social Sharing Of Emotions ◽  
Family Wellbeing

Women diagnosed with breast cancer often experience unpleasant emotions, resulting in higher levels of emotional burden and decreased levels of wellbeing and quality of life. The present correlational and cross-sectional study aims to compare the implementation of two regulatory levels, intrapersonal and interpersonal (as social sharing of emotions), and two types of strategies, antecedent-focused and response-focused, and explore their impact on breast cancer patients’ perception of quality of life. Sixty-eight women previously diagnosed with the disease participated in this study, with a mean age of 63years old (SD=11.58). Data were collected through a self-report questionnaire to assess emotional experience, intrapersonal regulation, social sharing of emotions, and breast cancer-related wellbeing and quality of life. Data yielded that most of the participants regulated their negative emotions within social interactions and made more use of antecedent-focused strategies to cognitively reformulate the emotional episode. Social and family wellbeing were positively associated with antecedent-focused strategies, as well as intrapersonal and interpersonal regulatory levels. Moreover, the occurrence of sharing episodes and social interactions played an important and beneficial role on patients’ perceived quality of life. These findings reinforce the importance of promoting an adaptive intrapersonal regulation among breast cancer patients. Results also suggest that social sharing of emotions is an efficient process to help them to better cope with the psychological and emotional burden of the disease, thus positively influencing the way they perceive their social and family wellbeing, as well as their quality of life.

scholarly journals Global Tendency of Silver Population Benefits

2020 ◽  
Vol 2 (1) ◽  
pp. 100-108
Author(s):  
Mihaela Cazacu ◽  
Emilia Ţiţan
Keyword(s):  
Quality Of Life ◽  
Social Interactions ◽  
Social Protection ◽  
Protection System ◽  
Ageing Population ◽  
Economic Issues ◽  
Quality Of Life Indicators ◽  
The Social ◽  
Publication Quality

Abstract Global demographic trends for the most recent years shows an ageing population, concentrated mainly in Europe and Asia in countries like Italy, China and Japan. This can be seen as an issue in the future, considering the social protection system that should adapt, or as a big opportunity in keeping elders active. In both cases, the importance of social policies and the modernization of social protection system has become crucial in the world. In order to avoid major economic issues or social tensions, as a first step it is required to identify main areas with big impact for ageing population and consider benefits for them. The purpose of this research is to investigate the opportunities raised for the ageing population in the context of quality of life, based on the nine dimensions proposed by Eurostat in the publication Quality of life indicators and show that silver (population) is the new gold for society. As a preliminary research, ageing will impact mainly material living conditions, health, leisure and social interactions and also the overall experience of life. For instance, in medicine there will be a challenge to switch from traditional medical checks to tele-medicine based on gadgets that monitor health or can assist persons in their daily life and fight with illness.

The Social Network: a concept to improve the quality of life for an ageing population while reducing loading on the NHS

2018 ◽  
Vol 4 (2) ◽  
pp. 51-53
Author(s):  
Efioanwan Andah ◽  
Maheen Ahsan ◽  
Roy Lee ◽  
Edward Brewin ◽  
Kasim Ahmed
Keyword(s):  
Quality Of Life ◽  
Social Network ◽  
Ageing Population ◽  
The Social
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