scholarly journals Mucopolysaccharidosis (MPS) Physical Symptom Score: Development, Reliability, and Validity

Author(s):  
A. Ahmed ◽  
K. Rudser ◽  
A. Kunin-Batson ◽  
K. Delaney ◽  
C. Whitley ◽  
...  
2014 ◽  
Vol 111 (2) ◽  
pp. S17-S18
Author(s):  
Alia Ahmed ◽  
Alicia Kunin-Batson ◽  
Evelyn Redtree ◽  
Chester B. Whitley ◽  
Elsa Shapiro

2021 ◽  
pp. 003022282110436
Author(s):  
Li Ping Wong ◽  
Sik Loo Tan ◽  
Haridah Alias ◽  
Thiam Eng Sia ◽  
Aik Saw

This study assessed death anxiety (Death Anxiety Questionnaire, DAQ) and psychophysical- (psychological and physical) symptom experience following cadaveric dissection among the Silent Mentor Program (SMP) participants before thawing (T1), after the suturing, dressing and coffining session (T2), and one month post-program (T3). There was a significant decline in the total DAQ score comparing T1 and T2 ( t = 7.69, p < 0.001) and T2 and T3 ( t = 5.00, p < 0.001) and T1 and T3 (t = 10.80, p < 0.001). There was a significant reduction in total psychological-symptom score comparing T1 and T2 ( t = 4.92, p < 0.001) and between T1 and T3 ( t = 4.85, p < 0.001). However, for the physical-symptom experience, a significant increase in the physical-symptom score between T1 and T2 ( t = –3.25, p = 0.001) was reported but the scores reduced significantly one month after the program (T2–T3; t = 4.12, p < 0.001). The mentoring concept of the SMP program has beneficial effects on improving attitude towards death and psychophysical-symptom experience associated with cadaver dissection.


2020 ◽  
Vol 129 (2) ◽  
pp. S19
Author(s):  
Alia Ahmed ◽  
Kyle Rudser ◽  
Elsa Shapiro ◽  
Chester B. Whitley

2012 ◽  
Vol 31 (5) ◽  
pp. 664-668 ◽  
Author(s):  
Aaron C. Weinberg ◽  
Gary H. Brandeis ◽  
John Bruyere ◽  
Johnson F. Tsui ◽  
Jeffrey P. Weiss ◽  
...  

2016 ◽  
Vol 196 (2) ◽  
pp. 536-541 ◽  
Author(s):  
Lisette A. ’t Hoen ◽  
Ida J. Korfage ◽  
Jacintha T.C.M. Verhallen ◽  
Marjan J. van Ledden-Klok ◽  
Joop van den Hoek ◽  
...  

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