Adaptive and maladaptive forms of disengagement coping in caregivers of children with chronic illnesses

2020 ◽  
Author(s):  
Christian E. Waugh ◽  
Calissa J. Leslie‐Miller ◽  
Elaine Z. Shing ◽  
R. Michael Furr ◽  
Chandylen L. Nightingale ◽  
...  
Keyword(s):  
Chronic Illnesses ◽  
Children With Chronic Illnesses

Family mealtime behaviors in children who are tube fed and preparing to transition to oral eating: A comparison to other pediatric populations

2020 ◽  
pp. 135910532098203
Author(s):  
Andrea M Garcia ◽  
Marshall T Beauchamp ◽  
Susana R Patton ◽  
Sarah Edwards ◽  
Meredith L Dreyer Gillette ◽  
...  
Keyword(s):  
Eating Behaviors ◽  
Tube Feeding ◽  
Chronic Illnesses ◽  
Oral Feeding ◽  
Pediatric Illness ◽  
Pediatric Populations ◽  
Children With Chronic Illnesses ◽  
Standardized Measure ◽  
Mealtime Interactions ◽  
Parent Child

This study examined differences in observed mealtime behaviors between children preparing to transition to oral feeding and children with various other chronic illnesses using a standardized measure of mealtime beaviors. The parent-child mealtime relationship can become strained due to problematic mealtime behaviors that limit food intake, as well as inadvertent reinforcement of disruptive behavior by caregivers. Frequency/rate of behaviors were compared between children with tube feeding (CwTF) and from previous studies of children with chronic illnesses using the Dyadic Interactive Nomenclature for Eating (DINE). Parents of CwTF used more coaxing, physical prompts, and reinforcement during meals, while parents of children with chronic illnesses used more direct commands and engaged in more parent talk. Findings support differences in parent-child mealtime interactions and eating behaviors across pediatric illness subgroups.

Community Physician's Role in Case Management of Children With Chronic Illnesses

PEDIATRICS ◽  
1989 ◽  
Vol 84 (3) ◽  
pp. 465-471
Author(s):  
Gregory S. Liptak ◽  
Gail M. Revell
Keyword(s):  
Primary Care ◽  
Case Management ◽  
Primary Care Physicians ◽  
Current System ◽  
Care Physician ◽  
Case Managers ◽  
Chronic Illnesses ◽  
Rural Physicians ◽  
Children With Chronic Illnesses ◽  
Time Required

There is general agreement that case management should be provided to children with chronic illnesses, yet it is not clear who should provide this service. A survey of physicians and parents of children with chronic illnesses was conducted to evaluate the practice and views of pediatricians and compare their assessments with those of parents. Surveys were mailed to 360 physicians and 519 families with response rates of 39% and 63%, respectively. The majority of physicians (74%) thought that the primary care physician should provide case management. When compared with parents, physicians underestimated the parental need for information about the child's diagnosis (8% vs 52%, P < .001), treatments (3% vs 54%, P < .01), and prognosis (30% vs 78%, P < .01). They also overestimated parental needs for information regarding financial aid (70% vs 58%, P < .01), vocations (78% vs 54%, P < .01), and insurance (62% vs 51%, P < .05). Four services ranked by need by parents in the top 10 were not ranked in the top 10 by physicians. Rural physicians noted that services were more difficult to obtain than did those in nonrural areas. The physicians surveyed made several recommendations for steps that could be implemented to facilitate their role as case manageers. If primary care physicians are to be effective case managers, alterations in the current system of care will be required including continuing education related to chronic illness, information about community resources, reimbursement for the time required to perform case management, and better communication between physician and parents.

Posttraumatic stress disorder in parents of children with chronic illnesses: A meta-analysis.

2009 ◽  
Vol 28 (3) ◽  
pp. 379-388 ◽  
Author(s):  
Mariana Cabizuca ◽  
Carla Marques-Portella ◽  
Mauro V. Mendlowicz ◽  
Evandro S. F. Coutinho ◽  
Ivan Figueira
Keyword(s):  
Posttraumatic Stress Disorder ◽  
Posttraumatic Stress ◽  
Stress Disorder ◽  
Meta Analysis ◽  
Chronic Illnesses ◽  
Children With Chronic Illnesses

Monitoring and Evaluating Managed Care for Children With Chronic Illnesses and Disabilities

PEDIATRICS ◽  
1996 ◽  
Vol 98 (5) ◽  
pp. 952-958 ◽  
Author(s):  
Paul W. Newacheck ◽  
Ruth E. K. Stein ◽  
Deborah Klein Walker ◽  
Steven L. Gortmaker ◽  
Karen Kuhlthau ◽  
...  
Keyword(s):  
Managed Care ◽  
Chronic Conditions ◽  
Monitoring And Evaluation ◽  
Health Problems ◽  
Chronic Illnesses ◽  
Satisfaction With Care ◽  
Chronic Health ◽  
Children With Chronic Illnesses ◽  
Chronic Health Problems ◽  
Children With Chronic Conditions

Objective. Children with chronic illnesses and disabilities are increasingly enrolling in managed care arrangements. Yet, the rapid expansion of managed care has unknown consequences for children with chronic conditions and disabilities. As managed care is likely to become the predominant mode of medical practice for children with chronic health problems, information gained from a thorough assessment of existing managed care models could be helpful in indicating adjustments and modifications that could result in improved outcomes for this population. The purpose of this article is to outline a new strategy for collecting needed information on the effects of managed care on children with chronic health problems. Methods. We reviewed the literature on the effects of managed care on children with chronic conditions and disabilities. We identified key domains relevant to monitoring and evaluating managed care for this population. Results. Two research approaches can provide helpful information for assessing the effects of managed care on children with chronic conditions. First, a monitoring strategy could be pursued in which enrollment trends in managed care, enrollee perceptions of access and satisfaction with care, and other general indicators of outcomes would be tracked over time using inexpensive and rapid turnaround data sources. Second, an evaluative strategy could be pursued using experimental or quasiexperimental designs, in which outcomes across a variety of domains for children with chronic conditions in managed care are compared with: (a) outcomes for the same children before enrollment in managed care; or (b) outcomes for similar children remaining in traditional fee-for-service settings. Evaluation and monitoring strategies should focus on outcomes in a number of domains including: (1) access to care; (2) utilization of services; (3) quality of care; (4) satisfaction with care; (5) expenditures for care; (6) health outcomes; and (7) family impact. Conclusion. Assessing outcomes that result from enrollment in managed care for children with chronic health problems presents a formidable challenge. The research strategy outlined in this article presents one approach to meeting that challenge. The monitoring and evaluation strategies described here would require commitment of additional resources on the part of government, private foundations, and/or health plans. Given the paucity of existing information and the stakes for children with chronic conditions and their families, investment of added resources in a comprehensive monitoring and evaluation strategy is essential.

Pediatriciansʼ attitudes toward resuscitation in children with chronic illnesses

2009 ◽  
Vol 10 (3) ◽  
pp. 369-374 ◽  
Author(s):  
K Sarah Hoehn ◽  
Kruti Acharya ◽  
Josh W. Joseph ◽  
Lainie Friedman Ross
Keyword(s):  
Chronic Illnesses ◽  
Children With Chronic Illnesses
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