Evaluation of Super-Link System Theory for Spinal Cord Injury Patients Using Participatory Action Research in a Rehabilitation Hospital

2012 ◽  
Vol 37 (3) ◽  
pp. 119-127 ◽  
Author(s):  
Hsiao-Yu Chen ◽  
Tzu-Jung Wu ◽  
Mei-Li Cheng ◽  
Hsi-Hui Sung
Keyword(s):  
System Theory ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Action Research ◽  
Participatory Action Research ◽  
Participatory Action ◽  
Rehabilitation Hospital ◽  
Cord Injury

scholarly journals Website Redesign of a 16-Week Exercise Intervention for People With Spinal Cord Injury by Using Participatory Action Research (Preprint)

2019 ◽  
Author(s):  
Maria Cole ◽  
Katherine Froehlich-Grobe ◽  
Simon Driver ◽  
Ross Shegog ◽  
Jeffery McLaughlin
Keyword(s):  
Physical Activity ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Action Research ◽  
Participatory Action Research ◽  
Exercise Intervention ◽  
Research Approach ◽  
Participatory Action ◽  
Cord Injury ◽  
Iterative Feedback

BACKGROUND People with spinal cord injury (SCI) are at higher risk for numerous preventable chronic conditions. Physical activity is a protective factor that can reduce this risk, yet those with SCI encounter barriers to activity and are significantly less likely to be active. Limited evidence supports approaches to promote increased physical activity for those with SCI. OBJECTIVE Building upon our previous theory- and evidence-based approach to increase participation in regular physical activity for those with SCI, this study aimed to use a participatory action research approach to translate a theory-based intervention to be delivered via the Web to individuals with SCI. METHODS A total of 10 individuals with SCI were invited to participate in consumer input meetings to provide the research team with iterative feedback on an initial website designed as a platform for delivering a theory-based exercise intervention. RESULTS A total of 7 individuals with SCI whose average age was 43.6 years (SD 13.4) and lived an average age of 12.5 years (SD 14.9) with SCI met on 2 occasions to provide their feedback of the website platform, both on the initial design and subsequently on the revamped site. Their iterative feedback resulted in redesigning the website content, format, and functionality as well as delivery of the intervention program. CONCLUSIONS The substantially redesigned website offers an easier-to-navigate platform for people with SCI with greater functionality that delivers information using a module format with less text, short video segments, and presents more resources. Preliminary testing of the site is the next step.

scholarly journals Website Redesign of a 16-Week Exercise Intervention for People With Spinal Cord Injury by Using Participatory Action Research

10.2196/13441 ◽  
2019 ◽  
Vol 6 (2) ◽  
pp. e13441 ◽  
Author(s):  
Maria Cole ◽  
Katherine Froehlich-Grobe ◽  
Simon Driver ◽  
Ross Shegog ◽  
Jeffery McLaughlin
Keyword(s):  
Physical Activity ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Action Research ◽  
Participatory Action Research ◽  
Exercise Intervention ◽  
Research Approach ◽  
Participatory Action ◽  
Cord Injury ◽  
Iterative Feedback

Background People with spinal cord injury (SCI) are at higher risk for numerous preventable chronic conditions. Physical activity is a protective factor that can reduce this risk, yet those with SCI encounter barriers to activity and are significantly less likely to be active. Limited evidence supports approaches to promote increased physical activity for those with SCI. Objective Building upon our previous theory- and evidence-based approach to increase participation in regular physical activity for those with SCI, this study aimed to use a participatory action research approach to translate a theory-based intervention to be delivered via the Web to individuals with SCI. Methods A total of 10 individuals with SCI were invited to participate in consumer input meetings to provide the research team with iterative feedback on an initial website designed as a platform for delivering a theory-based exercise intervention. Results A total of 7 individuals with SCI whose average age was 43.6 years (SD 13.4) and lived an average age of 12.5 years (SD 14.9) with SCI met on 2 occasions to provide their feedback of the website platform, both on the initial design and subsequently on the revamped site. Their iterative feedback resulted in redesigning the website content, format, and functionality as well as delivery of the intervention program. Conclusions The substantially redesigned website offers an easier-to-navigate platform for people with SCI with greater functionality that delivers information using a module format with less text, short video segments, and presents more resources. Preliminary testing of the site is the next step.

Electroejaculatory Stimulation for Male Infertility Secondary to Spinal Cord Injury: The Irish Experience in National Rehabilitation Hospital

Urology ◽  
2011 ◽  
Vol 77 (1) ◽  
pp. 83-87 ◽  
Author(s):  
Ciara McGuire ◽  
Rustom P. Manecksha ◽  
Pauline Sheils ◽  
Thomas E.D. McDermott ◽  
Ronald Grainger ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Male Infertility ◽  
Rehabilitation Hospital ◽  
Cord Injury

scholarly journals Web-Based Specialist Support for Spinal Cord Injury Person’s Care: Lessons Learned

2012 ◽  
Vol 2012 ◽  
pp. 1-7
Author(s):  
Vincenzo Della Mea ◽  
Dario Marin ◽  
Claudio Rosin ◽  
Agostino Zampa
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Feasibility Study ◽  
Lessons Learned ◽  
Phone Call ◽  
Web Based ◽  
Rehabilitation Hospital ◽  
Healthcare Network ◽  
Cord Injury ◽  
Training Courses

Persons with disability from spinal cord injury (SCI) are subject to high risk of pathological events and need a regular followup even after discharge from the rehabilitation hospital. To help in followup, we developed a web portal for providing online specialist as well as GP support to SCI persons. After a feasibility study with 13 subjects, the portal has been introduced in the regional healthcare network in order to make it compliant with current legal regulations on data protection, including smartcard authentication. Although a number of training courses have been made to introduce SCI persons to portal use (up to 50 users), the number of accesses remained very low. Reasons for that have been investigated by means of a questionnaire submitted to the initial feasibility study subjects and included the still easier use of telephone versus our web-based smartcard-authenticated portal, in particular, because online communications are still perceived as an unusual way of interacting with the doctor. To summarize, the overall project has been appreciated by the users, but when it is time to ask for help to, the specialist, it is still much easier to make a phone call.

scholarly journals Spinal cord injury hospitalisation in a rehabilitation hospital in Japan

Spinal Cord ◽  
1994 ◽  
Vol 32 (1) ◽  
pp. 47-51 ◽  
Author(s):  
Y Hasegawa ◽  
M Ohashi ◽  
N Ando ◽  
T Hayashi ◽  
T Ishidoh ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Rehabilitation Hospital ◽  
Cord Injury

scholarly journals Exploring prevention and management of secondary health conditions in people with spinal cord injury in South Africa

2021 ◽  
pp. 1-10
Author(s):  
Sonti Pilusa ◽  
Hellen Myezwa ◽  
Joanne Potterton
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Health Conditions ◽  
Limited Information ◽  
Preventative Care ◽  
Therapeutic Approaches ◽  
Face To Face ◽  
Rehabilitation Hospital ◽  
Cord Injury ◽  
Public Rehabilitation

Background/Aims Preventative care for people with spinal cord injury is neglected, even though secondary health conditions are prevalent among this group. There is limited information on preventative care for secondary health conditions among people with spinal cord injury. This study aimed to explore how people with spinal cord injury prevent and manage secondary health conditions. Methods A total of 17 individuals with spinal cord injury attending an outpatients clinic at a public rehabilitation hospital were interviewed face to face. All the interviews were transcribed verbatim and analysed using thematic content analysis. Results The participants used different strategies to prevent and manage secondary health conditions, such as medication, assistive devices, self-management, resilience coping strategies and therapeutic approaches. The participants found prevention of secondary health conditions ‘challenging’ and some of the strategies were ineffective. Conclusions Although many strategies are used by people with spinal cord injury to prevent and manage secondary health conditions, the experience is difficult. To minimise the occurrence and the consequence of secondary health conditions among people with spinal cord injury, health professionals must promote and support preventative care for secondary health conditions.

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