A transition program to adult health services for teenagers receiving long‐term home mechanical ventilation: A longitudinal qualitative study

2020 ◽  
Vol 55 (3) ◽  
pp. 771-779 ◽  
Author(s):  
Craig M. Dale ◽  
Sarah Carbone ◽  
Reshma Amin ◽  
Khushnuma Amaria ◽  
Robert Varadi ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Qualitative Study ◽  
Health Services ◽  
Transition Program ◽  
Adult Health ◽  
Home Mechanical Ventilation

Außerklinische Beatmung – Konzepte und Therapieempfehlungen

2017 ◽  
Vol 142 (16) ◽  
pp. 1197-1204 ◽  
Author(s):  
Sarah Schwarz ◽  
Friederike Magnet ◽  
Bernd Schönhofer ◽  
Wolfram Windisch
Keyword(s):  
Mechanical Ventilation ◽  
Scientific Evidence ◽  
Underlying Disease ◽  
Home Mechanical Ventilation ◽  
Term Survival ◽  
Number Of Patients ◽  
Related Quality ◽  
Außerklinische Beatmung ◽  
Health Related

AbstractThe prognosis of patients receiving home mechanical ventilation is very heterogeneous and depends on the underlying disease, the degree of respiratory dependency and the comorbidities. Due to the severe chronic diseases, the initiation of a long-term NIV must be done during an inpatient treatment. Two recently published randomized controlled trials using more aggressive forms of NPPV targeted at normalizing hypercapnic PaCO2 values, showed improved long term survival also in patients with an underlying diagnosis of COPD. Consequently, the number of patients receiving home mechanical ventilation has dramatically increased in recent years and more and more outpatient settings has been established without scientific evidence. Nevertheless, beside reliable care structures, ethical aspects and health related quality of life are of great importance in the context of home mechanical ventilation.

scholarly journals Pediatric patients with home mechanical ventilation: The health services landscape

2018 ◽  
Vol 54 (1) ◽  
pp. 40-46 ◽  
Author(s):  
Sarah A. Sobotka ◽  
Dipika S. Gaur ◽  
Denise M. Goodman ◽  
Rishi K. Agrawal ◽  
Jay G. Berry ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Health Services ◽  
Pediatric Patients ◽  
Home Mechanical Ventilation

COPD patient cohort on long-term home mechanical ventilation (HMV) in Catalonia (CATCOVER): descriptive analysis

2019 ◽  
Author(s):  
Anna Sabater Montaner ◽  
Joan Escarrabill Sanglas ◽  
Noelia Pérez Márquez ◽  
Pedro A. Antón Albisu ◽  
Eduardo Loeb Melus ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Descriptive Analysis ◽  
Home Mechanical Ventilation ◽  
Patient Cohort

scholarly journals Long-term adherence to home mechanical ventilation: a 10-year retrospective, single-centre cohort study

2020 ◽  
Vol 12 (S2) ◽  
pp. S120-S128
Author(s):  
Omar Masoud ◽  
Michelle Ramsay ◽  
Eui-Sik Suh ◽  
Georgios Kaltsakas ◽  
Shelley Srivastava ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Cohort Study ◽  
Home Mechanical Ventilation ◽  
Single Centre

scholarly journals Outcomes of home mechanical ventilation with tracheostomy after congenital heart surgery

2021 ◽  
pp. 1-5
Author(s):  
Bahar Temur ◽  
İsmet E Emre ◽  
Selim Aydın ◽  
Mehmet A Önalan ◽  
Serdar Başgöze ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Median Duration ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Total Mortality ◽  
Congenital Heart Surgery ◽  
Home Mechanical Ventilation ◽  
Significant Difference

Abstract Objective: After congenital heart surgery, some patients may need long-term mechanical ventilation because of chronic respiratory failure. In this study, we analysed outcomes of the patients who need tracheostomy and home mechanical ventilation. Methods: Amongst 1343 patients who underwent congenital heart surgery between January, 2014 and June, 2018, 45 needed tracheostomy and HMV. The median age of these patients was 6.4 months (12 days–6.5 years). Nineteen patients underwent palliation while 26 patients underwent total repair. Post-operative diaphragm plication was performed in five patients (11%). Median duration of mechanical ventilation before tracheostomy was 32 days (8–154 days). The patients were followed up with their home ventilators in ward and at home. Mean follow-up time was 36.24 ± 11.61 months. Results: The median duration of ICU stay after tracheostomy was 27 days (range 2–93 days). Follow-up time in ward was median 30 days (2–156 days). A total of 12 patients (26.6%) were separated from the ventilator and underwent decannulation during hospital stay. Thirty-two patients (71.1%) were discharged home with home ventilator support. Of them, 15 patients (46.9%) were separated from the respiratory support in median of 6 weeks (1 week–11 months) and decannulations were performed. Total mortality was 31.1%. in which four patients are still HMV dependent. There was no significant difference for decannulation between total repair and palliation patients. Conclusion: HMV via tracheostomy is a useful option for the treatment of children who are dependent on long-term ventilation after congenital heart surgery although there are potential risks.

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