Longitudinal assessment of health-related quality of life in an observational cohort of patients with cystic fibrosis

2010 ◽  
Vol 46 (1) ◽  
pp. 36-44 ◽  
Author(s):  
Gregory S. Sawicki ◽  
Lawrence Rasouliyan ◽  
Ann H. McMullen ◽  
Jeffrey S. Wagener ◽  
Susanna A. McColley ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Health Related Quality ◽  
Longitudinal Assessment ◽  
Related Quality ◽  
Health Related ◽  
Observational Cohort

scholarly journals PND46 Longitudinal Assessment of Health-Related Quality of Life in an Observational Cohort of Patients With Cystic Fibrosis

2012 ◽  
Vol 15 (4) ◽  
pp. A149
Author(s):  
G.S. Sawicki ◽  
L. Rasouliyan ◽  
A.H. Mcmullen ◽  
J.S. Wagener ◽  
S.A. Mccolley ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Health Related Quality ◽  
Longitudinal Assessment ◽  
Related Quality ◽  
Health Related ◽  
Observational Cohort

scholarly journals 357 Factors associated with changes in health-related quality of life in children with cystic fibrosis during one-year follow-up

2017 ◽  
Vol 16 ◽  
pp. S154
Author(s):  
M. Van Horck ◽  
B. Winkens ◽  
G. Wesseling ◽  
K. de Winter-de Groot ◽  
I. De Vreede ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Health Related Quality ◽  
Factors Associated ◽  
Related Quality ◽  
Health Related ◽  
One Year

scholarly journals Economic Burden And Health-Related Quality Of Life Of Patients With Cystic Fibrosis In Bulgaria

Folia Medica ◽  
2015 ◽  
Vol 57 (1) ◽  
pp. 56-64 ◽  
Author(s):  
Georgi G. Iskrov ◽  
Rumen S. Stefanov ◽  
Julio López-Bastida ◽  
Renata Linertová ◽  
Juan Oliva-Moreno ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Economic Burden ◽  
Resource Utilisation ◽  
Informal Carer ◽  
Health State ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

AbstractObjective:The aim of this study was to determine the economic burden from a societal perspective and health-related quality of life (HRQOL) of patients with cystic fibrosis (CF) in Bulgaria.Materials and methods:We conducted a cross-sectional study of 33 patients with CF and 17 caregivers from Bulgaria. Data on socio-demographic characteristics, health resource utilisation, informal care, labor productivity losses and HRQOL were collected from questionnaires completed by patients or their caregivers. HRQOL was evaluated with the EuroQol 5-domain (EQ-5D-3L) questionnaire.Results:Median annual costs of CF in Bulgaria were € 24 152 per patient in 2012 as a reference year. Median annual costs for children were found to be significantly higher than those for adults – € 31 945 vs. € 15 714 (p = 0.012). This outcome came from statistically significant differences in costs for main informal carer (p < 0.001) and costs for other informal carers (p = 0.022). As a single cost item, drugs had the biggest monetary impact. Median annual drug costs were € 13 059. Bulgarian CF patients showed low HRQOL results – 50 median VAS score and 0.592 median health utilities. A quarter of patients even rated their health state as worse than death.Conclusion:CF patients from Eastern Europe remain a vulnerable population with risk factors for worse health outcomes. Our study provided a state-of-the art analysis that facilitates the elaboration, adoption and application of targeted public health policies to tackle CF-related problems at national and European level.

scholarly journals Relationships Among Health-Related Quality of Life, Pulmonary Health, and Newborn Screening for Cystic Fibrosis

CHEST Journal ◽  
2011 ◽  
Vol 140 (1) ◽  
pp. 170-177 ◽  
Author(s):  
Audrey Tluczek ◽  
Tara Becker ◽  
Anita Laxova ◽  
Adam Grieve ◽  
Caroline N. Racine Gilles ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Newborn Screening ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related
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