scholarly journals Associations of psychosocial factors with health outcomes among youth with cystic fibrosis

2009 ◽  
Vol 44 (1) ◽  
pp. 46-53 ◽  
Author(s):  
Joän M. Patterson ◽  
Melanie Wall ◽  
Jerica Berge ◽  
Carlos Milla
2021 ◽  
Vol 16 (1) ◽  
Author(s):  
Emily DiMango ◽  
Kaitlyn Simpson ◽  
Elizabeth Menten ◽  
Claire Keating ◽  
Weijia Fan ◽  
...  

Abstract Background Evidence is conflicting regarding differential health outcomes in racial and ethnic minorities with cystic fibrosis (CF), a rare genetic disease affecting approximately 28,000 Americans. We performed a cross-sectional analysis of health outcomes in Black/Latinx patients compared with non-Hispanic Caucasian patients cared for in a CF center in New York City. Adult patients enrolled in the CF Foundation Patient Registry at the Columbia University Adult CF Program and seen at least once during 2019 were included. Health metrics were compared between Black/Latinx and non-Hispanic Caucasian patients. Results 262 patients were eligible. 39 patients (15%) identified as Black/Latinx or non-Hispanic Caucasian. Descriptive statistics are reported with mean (standard deviation). Current age was 35.9 (13.3) years for non-Hispanic Caucasian and 32.0 (9.3) years for Black/Latinx patients (p = 0.087). Age of diagnosis did not differ between groups; 9.56 (15.96) years versus 11.59 (15.8) years for non-Hispanic Caucasian versus Black/Latinx respectively (p = 0.464). Pulmonary function, measured as mean forced expiratory volume in one second (FEV1) was 70.6 (22.5) percent predicted in non-Hispanic Caucasian versus 59.50 (27.9) percent predicted in Black/Latinx patients (p = 0.010). Number of visits to the CF clinic were similar between groups. When controlled for age, gender, co-morbidities, median income, and insurance status, there was a continued association between minority status and lower FEV1. Conclusions Minorities with CF have significantly lower pulmonary function, the major marker of survival, than non-Hispanic Caucasians, even when controlled for a variety of demographic and socioeconomic factors that are known to affect health status in CF. Significant health disparities based on race and ethnicity exist at a single CF center in New York City, despite apparent similarities in access to guideline based care at an accredited CF Center. This data confirms the importance of design of culturally appropriate preventative and management strategies to better understand how to direct interventions to this vulnerable population with a rare disease.


BMJ Open ◽  
2019 ◽  
Vol 9 (8) ◽  
pp. e030773
Author(s):  
Kotaro Imamura ◽  
Akizumi Tsutsumi ◽  
Yumi Asai ◽  
Hideaki Arima ◽  
Emiko Ando ◽  
...  

IntroductionThe world’s population is rapidly ageing, and health among older people is thus an important issue. Several previous studies have reported an association between adverse psychosocial factors at work before retirement and postretirement health. The objective of this systematic review and meta-analysis is to examine the association between psychosocial factors at work and health outcomes after retirement, based on a synthesis of well-designed prospective studies.Methods and analysisThe participants, exposures, comparisons and outcomes of the studies in this systematic review and meta-analysis are defined as follows: (P) people who have retired from their job, (E) presence of adverse psychosocial factors at work before retirement, (C) absence of adverse psychosocial factors at work before retirement and (O) any physical and mental health outcomes after retirement. Published studies were searched using the following electronic databases: MEDLINE, EMBASE, PsycINFO, PsycARTICLES and Japan Medical Abstracts Society. The included studies will be statistically synthesised in a meta-analysis to estimate pooled coefficients and 95% CIs. The quality of each included study will be assessed using the Risk Of Bias In Non-randomised Studies-of Interventions. For the assessment of meta-bias, publication bias will be assessed by using Egger’s test, as well as visually on a funnel plot. Heterogeneity will be assessed using the χ² test with Cochran’s Q statistic and I2.Ethics and disseminationResults and findings will be submitted and published in a scientific peer-reviewed journal and will be disseminated broadly to researchers and policy-makers interested in the translatability of scientific evidence into good practices.PROSPERO registration numberCRD42018099043.


2019 ◽  
Vol 33 (7) ◽  
pp. 1053-1057 ◽  
Author(s):  
Theresa E. Matson ◽  
Melissa L. Anderson ◽  
Anne D. Renz ◽  
Mikael Anne Greenwood-Hickman ◽  
Jennifer B. McClure ◽  
...  

Purpose: To estimate changes in self-reported health and psychosocial factors associated with a 12-week sedentary behavior intervention for older adults. Design: Exploratory secondary analysis of pilot randomized controlled trial. Setting: Kaiser Permanente Washington Subjects: Sixty adults aged 60 to 89 with body mass index ≥30 kg/m2. Intervention: Participants were randomized to the I-STAND intervention or control group. I-STAND involved 6 coaching sessions, a study workbook, Jawbone UP activity tracker to prompt breaks from sitting, and activPAL feedback on objective sitting time. Measures: At baseline and 12-week follow-up, participants completed a survey with validated measures of self-reported health outcomes (depression, stress, memory/concentration, sleep, pain, ability to do daily activities, energy, and quality of life) and modified scales measuring psychosocial factors (perceived benefits/barriers, social support, self-efficacy, and sedentary habit strength) regarding sedentary behavior. Analysis: Generalized linear models assessed associations between group assignment and change in each self-reported health and psychosocial score, adjusting for baseline scores. Results: I-STAND participants demonstrated improvements in self-efficacy (β = 0.35, 95% confidence interval [CI]: 0.10 to 0.60) and reduced habit strength (β= −0.23, 95% CI: −0.42 to −0.04) compared to control participants. There were no significant differences in self-reported health outcomes, although power was limited in this exploratory analysis. Conclusion: A sedentary behavior reduction intervention for older adults resulted in improvements for some psychosocial factors. Health outcomes may require longer than 12 weeks to observe improvements.


PEDIATRICS ◽  
2013 ◽  
Vol 132 (5) ◽  
pp. 847-853 ◽  
Author(s):  
Lisa Tuchman ◽  
Michael Schwartz

2018 ◽  
Vol 17 ◽  
pp. S128
Author(s):  
T. Zorcec ◽  
S. Fustic ◽  
T. Jakovska ◽  
L. Spirevska ◽  
A. Stamatova

2011 ◽  
Vol 26 (2) ◽  
pp. 216-222 ◽  
Author(s):  
Carol S. Stilley ◽  
William B. Flynn ◽  
Susan M. Sereika ◽  
Erin D. Stimer ◽  
Andrea F. DiMartini ◽  
...  

2016 ◽  
Vol 15 (5) ◽  
pp. 696-702 ◽  
Author(s):  
Adrienne P. Borschuk ◽  
Robin S. Everhart ◽  
Michelle N. Eakin ◽  
Devin Rand-Giovannetti ◽  
Belinda Borrelli ◽  
...  

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