Establishment of a web-based registry for rare (orphan) pediatric lung diseases in the United Kingdom: The BPOLD registry

2008 ◽  
Vol 43 (5) ◽  
pp. 451-456 ◽  
Author(s):  
A. Laverty ◽  
A. Jaffé ◽  
S. Cunningham
Keyword(s):  
United Kingdom ◽  
Lung Diseases ◽  
Web Based ◽  
The United Kingdom

scholarly journals Test–retest reliability of the EQ-5D-5L and the reworded QOLIBRI-OS in the general population of Italy, the Netherlands, and the United Kingdom

2021 ◽  
Author(s):  
Di Long ◽  
Suzanne Polinder ◽  
Gouke J. Bonsel ◽  
Juanita A. Haagsma
Keyword(s):  
United Kingdom ◽  
General Population ◽  
The Netherlands ◽  
Web Based ◽  
Retest Reliability ◽  
The United Kingdom ◽  
Sum Score ◽  
Summary Index ◽  
Test Retest Reliability ◽  
Eq Vas

Abstract Purpose To assess the test–retest reliability of the EQ-5D-5L and the reworded Quality of Life After Traumatic Brain Injury Overall Scale (QOLIBRI-OS) for the general population of Italy, the Netherlands, and the United Kingdom (UK). Methods The sample contains 1864 members of the general population (aged 18–75 years) of Italy, the Netherlands, and the UK who completed a web-based questionnaire at two consecutive time points. The survey included items on gender, age, level of education, occupational status, household annual income, chronic health status, and the EQ-5D-5L and reworded QOLIBRI-OS instrument. Test–retest reliability of the EQ-5D-5L dimensions, EQ-5D-5L summary index, EQ VAS, reworded QOLIBRI-OS dimensions and reworded QOLIBRI-OS level sum score was examined by Gwet’s Agreement Coefficient (Gwet’s AC) and Intraclass Correlation Coefficient (ICC). Results Gwet’s AC ranged from 0.64 to 0.97 for EQ-5D-5L dimensions. The ICC ranged from 0.73 to 0.84 for the EQ-5D-5L summary index and 0.61 to 0.68 for EQ VAS in the three countries. Gwet’s AC ranged from 0.35 to 0.55 for reworded QOLIBRI-OS dimensions in the three countries. The ICC ranged from 0.69 to 0.77 for reworded QOLIBRI-OS level sum score. Conclusion Test–retest reliability of the EQ-5D-5L administered via a web-based questionnaire was substantial to almost perfect for the EQ-5D-5L dimensions, good for EQ-5D-5L summary index, and moderate for the EQ VAS. However, test–retest reliability was less satisfactory for the reworded QOLIBRI-OS. This indicates that the web-based EQ-5D-5L is a reliable instrument for the general population, but further research of the reworded QOLIBRI-OS is required.

scholarly journals Qualitative Evaluation of Web-Based Digital Intervention to Prevent and Reduce Excessive Alcohol Use and Harm Among Young People Aged 14-15 Years: A “Think-Aloud” Study

10.2196/19749 ◽  
2020 ◽  
Vol 3 (2) ◽  
pp. e19749
Author(s):  
Laura Elizabeth Tinner ◽  
Eileen Kaner ◽  
Claire Garnett ◽  
Siobhan Mitchell ◽  
Matthew Hickman ◽  
...  
Keyword(s):  
United Kingdom ◽  
Alcohol Use ◽  
Young People ◽  
Think Aloud ◽  
Youth Workers ◽  
Short Term ◽  
Web Based ◽  
The United Kingdom ◽  
Social Pressures ◽  
Excessive Alcohol

Background In the United Kingdom, despite some downward trends in alcohol use among young people, over one-fifth of young people reported excessive alcohol use in the past month, which is associated with short- and long-term harm to health. Digital interventions to reduce alcohol use, such as websites, among young people present an appealing and cost-effective mode of intervention that can be integrated into the education system. However, relatively few school-based digital alcohol-focused interventions have been developed and evaluated for young people in the United Kingdom. Objective This study aims to develop a novel web-based intervention, Rethink Alcohol, to prevent and reduce excessive alcohol use and related harm among young people aged between 14 and 15 years, and explore the views of young people, teachers, and youth workers in relation to the content, design, and usability of the intervention. Methods Intervention development followed the person-based approach, using theories of social norms and social influence. Qualitative “Think-Aloud” interviews, either one-to-one or paired, were conducted while participants perused and worked through the web-based intervention, talking aloud. Participants included 20 young people (12 female, 8 male), 5 youth workers (4 female, 1 male), 3 teachers (2 male, 1 female), and 1 (male) clinical professional, recruited via youth groups and professional networks. Interviews were audio recorded, transcribed verbatim, and analyzed thematically. Results The prototype web-based intervention included normative feedback, information, a quiz, interactive activities, and scenarios. On a rating scale of impressions from poor (1) to excellent (5), participants gave an average score of 3.6/5. A total of 5 themes were identified: content, credibility of the website, making the website easy to understand, design and navigation, and suitability for the audience. These themes reflected views that the content was interesting, credible, informative, and embodied a neutral and nonjudgmental tone, but stronger messaging was needed regarding social pressures and short-term risks regarding safety and risk behavior alongside clarity around pathways of risk; credibility and trustworthiness of information were critical features, determined in part, by the professionalism of design and referencing of sources of information provided; and messages should be succinct and come to life through design and interactive features. Conclusions Together, the data illustrated the importance and challenge of communicating nuanced alcohol-focused public health messages to young people in concise, clear, nonjudgmental, and appealing ways. Young people report interest in clear, credible, neutral, and interactive messages regarding social pressures and short-term risks of alcohol use via a web-based intervention. There is scope for optimization and feasibility testing of the Rethink Alcohol intervention.

Camorra Clans in the United Kingdom

2016 ◽  
Author(s):  
Felia Allum
Keyword(s):  
United Kingdom ◽  
Money Laundering ◽  
Criminal Activity ◽  
Organizational Structures ◽  
Web Based ◽  
The United Kingdom ◽  
Local Police ◽  
Violent Criminal ◽  
Illegal Activities ◽  
Criminal Groups

This chapter discusses the Camorra's presence in the United Kingdom. Mafia and Camorra members and their associates have been present and active in the United Kingdom for some time. However, their specific organizational structures, activities, and accomplices remain unknown. This is often because British police have not investigated mafia members, since they have not officially broken English or Scottish law, and thus the police profile is minimal. Clan members may be involved in illegal activities, but they remain below the radar of local police. For example, in 2013, a local police force identified six criminal groups made up of Italian nationals engaging in money laundering, economic and web-based fraud, violent criminal activity, organized theft, and drug-related activities, but only one was identified as having possible links to an Italian mafia group, whereas the others were not systematically investigated.

Operative training in otolaryngology in the United Kingdom: A specialist registrar survey

2005 ◽  
Vol 119 (5) ◽  
pp. 356-361 ◽  
Author(s):  
Christos Georgalas ◽  
Edward Hadjihannas ◽  
Khalid Ghufoor ◽  
Paul Pracy ◽  
Michael Papesch
Keyword(s):  
United Kingdom ◽  
Current Status ◽  
Training Environment ◽  
Web Based ◽  
Specialist Registrar ◽  
The United Kingdom ◽  
Training Standards ◽  
General Training ◽  
Satisfaction Rates

Objective: To assess the current status of operative training for otolaryngology specialist registrars in the United Kingdom.Design: Web-based questionnaire survey.Participants: All otolaryngology specialist registrars in the United Kingdom.Main outcome measures: The overall satisfaction with operative training was assessed as wellas the number of operations performed and level of competency in stage-specific procedures, as defined by the Joint Committee for Higher Specialist Training.Results: Otolaryngology specialist registrars are generally satisfied with the quality of their operative training. The most important predictive factor of satisfaction with operative training was the number of theatre sessions per week. The vast majority of registrars (92 per centby the end of year one, 73 per cent at the end of years two to four) appear to attain all the stage-appropriate surgical competencies during the first four years. However, with respect to the last two years of registrar training, only 26 per cent can perform all the designated (complex) procedures. There are no significant differences between deaneries or geographic regions in the overall satisfaction rates, number of operative sessions, number of operations performedor operative competencies attained.Conclusion: It appears that the Specialist Advisory Committee (SAC) is generally successful in maintaining common operative training standards and providing a homogenous training environment. During the first four years registrars attain an appropriate level of general training while the last two years are mainly devoted to subspecialty interests.

Religion, Gender, and Sexuality among Youth in Canada

2016 ◽  
Vol 45 (1) ◽  
pp. 17-26
Author(s):  
Heather Shipley ◽  
Pamela Young ◽  
Ian Cuthbertson
Keyword(s):  
United Kingdom ◽  
Mixed Methods ◽  
International Comparisons ◽  
Gender And Sexuality ◽  
Mixed Methods Study ◽  
Web Based ◽  
Canadian Youth ◽  
The United Kingdom ◽  
Survey Interviews

Since 2012, we have been investigating Religion, Gender and Sexuality among Youth (18-25 year olds) in Canada (RGSY). Ours is a mixed-methods study that has used a web-based survey, interviews, and video diaries to collect data from 486 Canadian youth. Our project maps onto research that was done in the United Kingdom by Andrew Kam-Tuck Yip, Sarah-Jane Page, and Michael Keenan. They kindly offered to let us use and modify their questionnaire for our own web-based survey and now we are at the point of having some interesting international comparisons. As well, researchers in several other countries are beginning similar studies.

Assessment and management of dysphagia in patients with head and neck cancer who receive radiotherapy in the United Kingdom – A web-based survey

Oral Oncology ◽  
2012 ◽  
Vol 48 (4) ◽  
pp. 343-348 ◽  
Author(s):  
Justin W.G. Roe ◽  
Paul N. Carding ◽  
Peter H. Rhys-Evans ◽  
Kate L. Newbold ◽  
Kevin J. Harrington ◽  
...  
Keyword(s):  
Head And Neck Cancer ◽  
United Kingdom ◽  
Head And Neck ◽  
Neck Cancer ◽  
Web Based ◽  
The United Kingdom ◽  
Management Of Dysphagia
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