The impact of childhood cancer on the family: a qualitative analysis of strains, resources, and coping behaviors

2004 ◽  
Vol 13 (6) ◽  
pp. 390-407 ◽  
Author(s):  
Joän M. Patterson ◽  
Kristen E. Holm ◽  
James G. Gurney
Keyword(s):  
Qualitative Analysis ◽  
Childhood Cancer ◽  
Coping Behaviors ◽  
The Family ◽  
And Coping ◽  
The Impact

scholarly journals Reducing Loneliness: The Impact of Mindfulness, Social Cognitions, and Coping

2021 ◽  
pp. 003329412199777
Author(s):  
Robin Besse ◽  
Whitney K. Whitaker ◽  
Laura A. Brannon
Keyword(s):  
Young Adults ◽  
Social Cognitions ◽  
Age Group ◽  
Coping Behaviors ◽  
Current Health ◽  
Current State ◽  
And Coping ◽  
Study Participants ◽  
The Impact ◽  
At Home

While many facets of loneliness have been explored, research examining the efficacy of loneliness interventions has been overlooked among young adults. The study of loneliness among young adults has become increasingly important considering the current state of isolation and stay-at-home orders issued to prevent the spread of COVID-19. Preliminary reports suggest an increase in loneliness as a result of the current health pandemic, especially among young adults, who have reported feeling lonelier than any other age group. Such findings warrant the study of ways to help reduce loneliness among young adults. The current study examined the efficacy of strategies that might be used to help young adults manage feelings of loneliness. Two hundred and seventy-eight young adults completed the study. Participants read one of four messages: mindfulness, social cognitions, coping behaviors, or a control. Participants in the mindfulness condition felt better equipped to manage future instances of loneliness and held better attitudes toward this intervention. The current research helps to advance understanding of effective ways of helping young adults cope with loneliness.

scholarly journals Enduring Cell Lines: Parents’ Experiences of Postmortem Tumor Banking in Childhood Cancer

2021 ◽  
pp. 107484072110014
Author(s):  
Nancy J. Moules ◽  
Catherine M. Laing ◽  
Wendy Pelletier ◽  
Gregory M. T. Guilcher ◽  
Jennifer A. Chan
Keyword(s):  
Childhood Cancer ◽  
Pediatric Oncology ◽  
Common Factors ◽  
Living Cells ◽  
The Past ◽  
The Family ◽  
Deceased Donors ◽  
Cure Rates ◽  
The Impact ◽  
Parents Experiences

While cure rates in pediatric oncology have improved over the past 30 years, childhood cancer remains the second leading cause of death in children aged 1 to 14. Developing therapies often require using cancerous tissues, which may come from deceased donors. Tumor banks collect, store, and distribute these donated samples. While tumor banking is more common, factors that contribute to parents’ decision and the impact of it on the family are not well understood. The purpose of this hermeneutic study was to understand the meaning and impact of tumor banking for parents of children who have died from cancer. Findings suggest that parents donating their child’s tumors unexpectedly found a sense of meaning in their loss. They also found a legacy of their child’s life; the living cells in some ways assisted the parents with grief. Aspects of this sensitive conversation and decision are discussed from the perspective of the parents’ experiences.

The Impact of Childhood Cancer on the Family

1991 ◽  
Vol 8 (4) ◽  
pp. 71-85 ◽  
Author(s):  
James Overholser ◽  
Gregory Fritz
Keyword(s):  
Childhood Cancer ◽  
The Family ◽  
The Impact

Patient experiences and implications for consultation outcomes and treatment adherence using mHealth applications among health care professionals (Preprint)

2018 ◽  
Author(s):  
Zuhal Kathy Keeling
Keyword(s):  
Health Care ◽  
Treatment Adherence ◽  
Health Care Professionals ◽  
Clinical Training ◽  
Healthcare Services ◽  
Coping Behaviors ◽  
Services Delivery ◽  
And Coping ◽  
The Impact ◽  
Depth Interviews

BACKGROUND mHealth is a broad term for the use of mobile communication devices for healthcare services delivery. The use of mobile devices by health care professionals (HCPs) has transformed many aspects of clinical training and practice. However, there are still gaps in knowledge concerning patient perception of the use of mHealth technologies by HCP during secondary care consultations. OBJECTIVE To explore the impact on patient experience and implications for consultation outcomes and treatment adherence. Introduction of new technological application into interactions that have very set expectations and roles and possibility for attendant disruption of patient expectations. METHODS This paper explores, via in-depth interviews, patient opinions regarding the usage of mHealth applications by health care professionals (HCPs) during consultations, identifying the paradoxes and coping behaviors to deal with those paradoxes. This qualitative study recruited ten respondents using purposive sampling and snowballing techniques through in-depth interviews. RESULTS The results comprise paradoxes and coping behaviors. They showed that convenience, time savings, accuracy of diagnosis and reduction of errors are the important elements for using mHealth for both HCP and patient. In addition, respondents perceived that mobile health apps facilitate HCP engagement of patients and assist explanations and better patient understanding. Interaction and the quality of the interaction were acknowledged as significant in HCP-patient communication and patient compliance with treatment. CONCLUSIONS To sum, many patients were responsive to the idea of mHealth, both by the doctor and themselves, but wanted to have regulation of use of apps, better involvement and explanations and not have the doctor lose focus on the patient, that is, the feeling of personalized treatment. They also were worried that the HCP might seem to ignore the patient or withdraw from the type of interaction that makes the consultation ‘human.’

A Qualitative Evaluation of the Impact of the First Love Yourself (FLY) Women’s Support Group

2016 ◽  
Vol 5 (2) ◽  
pp. 123
Author(s):  
Valerie Blackmon ◽  
Chalenna Cassell ◽  
Cathy Gilbert McElderry ◽  
Olawunmi Obisesan
Keyword(s):  
Social Support ◽  
Focus Group ◽  
Qualitative Analysis ◽  
Support Groups ◽  
Support Group ◽  
Qualitative Evaluation ◽  
Physical And Mental Health ◽  
Focus Group Study ◽  
And Coping ◽  
The Impact

Research has shown that social support groups not only have significant effects on the physical and mental health of individuals, but can also be used as predictors of health outcomes. It is, therefore, important that social workers and other public health professionals are aware of the social support groups that exist in communities so as to find ways to utilize these to meet health needs. The study aims to explore the First Love Yourself (FLY) group, an empowerment-based support group specifically designed to meet the needs of Healthy Start consumers, parents and consortium members. A qualitative analysis of the data gathered from this focus group study yielded several key themes. While participants described finding other community resources helpful, they reported having no other outlet for confidential self-expression and connection to peers other than the FLY group. Group members also reported having improved self-esteem, relationships with their children, partners, and family, and ability to cope as a result of participation in the group. Participants further described gaining knowledge and learning skills that were helpful. This included learning parenting, communication, stress and anger management, budgeting, goal-setting and coping skills and techniques. Finally, qualitative analysis of the data gained from the focus group with participants and the group leader revealed the presence of all 11 curative factors described by Yalom (2005). The primary areas for improvement noted by the group and its leader were related to the frequency of group meetings. Both audiences indicated that additional sessions would be beneficial.

scholarly journals Healthcare Provider and Parent Behavior and Children’s Coping and Distress at Anesthesia Induction

2009 ◽  
Vol 111 (6) ◽  
pp. 1290-1296 ◽  
Author(s):  
Jill MacLaren Chorney ◽  
Carrie Torrey ◽  
Ronald Blount ◽  
Christine E. McLaren ◽  
Wen-Pin Chen ◽  
...  
Keyword(s):  
Healthcare Provider ◽  
Video Data ◽  
Anesthesia Induction ◽  
Medical Procedure ◽  
Parent Behavior ◽  
Coping Behaviors ◽  
Opposite Pattern ◽  
Children's Coping ◽  
And Coping ◽  
The Impact

Background To date, no study has evaluated the impact of specific healthcare provider and parent behaviors on children's distress and coping during anesthesia induction. Method Extensive digital video data were collected on 293 two- to ten-yr-old children undergoing anesthesia induction with a parent present. Anesthesiologist, nurse, and parent behavior and children's distress and coping were coded using the Revised Preoperative Child-Adult Medical Procedure Interaction Scale administered using specialized coding software. Results Anesthesiologists and parents engaged in higher rates of most behaviors than nurses. Overall, adult emotion-focused behavior such as empathy and reassurance was significantly positively related to children's distress and negatively related to children's coping behaviors. Adult distracting behavior such as humor and distracting talk showed the opposite pattern. Medical reinterpretation by anesthesiologists was significantly positively related to children's coping behaviors, but the same behavior by parents was significantly positively related to children's distress. Conclusions The data presented here provide evidence for a relation between adult behaviors and children's distress and coping at anesthesia induction. These behaviors are trainable, and hence it is possible to test whether modifying physician behavior can influence child behavior in future studies.

scholarly journals Family’s experience in caring for clients with suicidal risk in Indonesia

2018 ◽  
Vol 18 (1) ◽  
pp. 445-463
Author(s):  
Renny Nova ◽  
Achir Yani Syuhaimie Hamid ◽  
Novy Helena Catharina Daulima
Keyword(s):  
Attempted Suicide ◽  
Suicide Attempts ◽  
Community Support ◽  
Social Unit ◽  
Descriptive Phenomenology ◽  
The Family ◽  
Salud Mental ◽  
Family Perceptions ◽  
And Coping ◽  
The Impact

El suicidio es una de las emergencias psiquiátricas que requieren atención integral porque los individuos corren el riesgo de ponerse en peligro a sí mismos, a los demás y al entorno. El suicidio en Indonesia está aumentando. Las familias tienen un papel importante en el cuidado de los clientes y la prevención del suicidio, pero las cargas familiares no se han estudiado profundamente. El objetivo del estudio fue obtener una visión general de la experiencia familiar en el cuidado de clientes con riesgo de suicidio. El diseño de la investigación fue cualitativo con un enfoque de fenomenología descriptiva que involucró a seis participantes. Los datos fueron recolectados por entrevista en profundidad y analizados utilizando el método Colaizzi. Los resultados del estudio encontraron cinco temas; los intentos de suicidio son una carga compleja para las familias, los cambios de comportamiento como un signo de suicidio, la preocupación como una forma de apoyo familiar y comunitario, las percepciones familiares sobre las causas y consecuencias del intento de suicidio y las estrategias de supervivencia de las familias superando el impacto del intento de suicidio. Los resultados del estudio recomiendan que la familia como unidad social de prevención del suicidio sea más sensible a los cambios en el comportamiento de clientes y enfermeras, ya que los consejeros pueden proporcionar intervenciones para mejorar el estado de salud mental de los clientes y las familias, como la educación sanitaria. terapia de psicoterapia familiar, manejo del estrés y grupo de autoayuda. La conclusión que puede extraerse de los cinco temas anteriores es que la carga de la familia que brinda cuidados al cliente con el riesgo de suicidio es mayor cuando la familia no puede reconocer los signos de suicidio del cliente, por lo que es necesario un sistema de apoyo. y afrontamiento constructivo. Suicide is one of the psychiatric emergencies that require comprehensive care because individuals are at risk of endangering themselves, others and the surrounding. Suicide in Indonesia is increasing. Families have a major role in caring for clients and preventing suicide but family burdens have not been studied profoundly. The aim of the study was to get an overview of family experience of caring for clients with suicide risk. The research design was qualitative with descriptive phenomenology approach involving six participants. Data was collected by in depth interview and analyzed using Colaizzi method. The results of the study found five themes; suicide attempts is a complex burden for families, behavioral changes as a suicide sign, concern as a form of family and community support, family perceptions about the causes and consequences of attempted suicide and coping strategies of families overcoming the impact of attempted suicide. The results of the study recommend that the family as the front social unit of suicide prevention can be more sensitive to changes in the behavior of clients and nurses as counselors can provide interventions to improve the mental health status of clients and families such as health education, family psycoeducation therapy, stress management and self help group. The conclusion that can be drawn from the five themes above is the burden of the family who provide caring for the client with the risk of suicide is heavier when the family is unable to recognize the client's suicide signs so there is a need for a support system and constructive coping.

Psychosocial factors and chronic illness in childhood

1995 ◽  
Vol 10 (6) ◽  
pp. 297-305 ◽  
Author(s):  
C Zimmermann Tansella
Keyword(s):  
Chronic Illness ◽  
Psychosocial Adjustment ◽  
Emotional Adjustment ◽  
Well Being ◽  
Coping Resources ◽  
Intervention Programs ◽  
Developmental Approach ◽  
The Family ◽  
And Coping ◽  
The Impact

SummaryChronic illness in a child requires successful organisational and emotional adjustment of the child and the family. The way in which the child and the family adapt to the illness will affect their psychological well-being and their quality of life. This review summarizes recent research findings on the relationship between illness factors, individual and family functioning, coping strategies and psychosocial adjustment. The findings are presented within the framework of three complementary theoretical models: the family developmental approach; the psychosocial typology of illnesses; and the process model of stress and coping. These models are useful for a better understanding of the complex interactions between illness, family and coping and offer to the professionals engaged in the care of chronically sick children, guidelines for assessment and the development of intervention programs. The review starts with examining the impact of chronic illness on the psychosocial adjustment of the sick child, his/her siblings and parents. Then psychosocial Stressors and risk factors in terms of illness and family related characteristics are discussed. Coping resources and strategies are presented which have been shown to be related to child and parental adjustment; and finally, successful intervention programs are described.

Parent-Professional Partnership in Behavioral Support: A Qualitative Analysis of One Family's Experience

1997 ◽  
Vol 22 (4) ◽  
pp. 198-207 ◽  
Author(s):  
Lise Fox ◽  
Bobbie J. Vaughn ◽  
Glen Dunlap ◽  
Millie Bucy
Keyword(s):  
Qualitative Analysis ◽  
Severe Disabilities ◽  
Behavioral Support ◽  
Community Based ◽  
Behavioral Challenges ◽  
Positive Behavioral Support ◽  
Semistructured Interviews ◽  
The Family ◽  
Quantitative Analyses ◽  
The Impact

Behavioral support with families is a multifaceted endeavor that should be studied from the various perspectives that affect its feasibility, efficacy, and potential to produce outcomes that are durable and meaningful to people's lives. This study describes a qualitative analysis of one family's experience during a 10-month process of assessment and intervention for the behavioral challenges of a boy with multiple and severe disabilities. Data collection included an audiojournal recorded by the boy's mother and a series of semistructured interviews with both parents and the boy's older brother. The data were synthesized to chronicle the impressions of the family relating to the phases of the positive behavioral support process. The data yielded two pervasive themes that describe the impact of the problem behavior on the family and the effects of the behavioral support process on the child and his family. Together, with a companion article that presents the procedures and quantitative analyses (Vaughn et al., 1997), the methods and findings from this study offer a broader view of behavioral support than has been evident in the literature thus far. The findings are presented as a heuristic for researchers to engage in participatory investigations that can illuminate important features of support processes with the intention of increasing responsiveness to consumers (e.g., families) and enhancing the benefits of community-based support efforts.

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