scholarly journals Explaining Cancer Information Avoidance Comparing People with and without Cancer Experience in the Family

2021 ◽  
Author(s):  
Elena Link ◽  
Eva Baumann1
Keyword(s):  
Cancer Information ◽  
Information Avoidance ◽  
The Family ◽  
Cancer Experience

“Hopefully This Will All Make Sense at Some Point”: Meaning and Performance in Illness Blogs

2018 ◽  
Vol 35 (4) ◽  
pp. 287-295 ◽  
Author(s):  
Catherine McGeehin Heilferty
Keyword(s):  
Childhood Cancer ◽  
Narrative Analysis ◽  
Family Health ◽  
Clinical Trial Data ◽  
Professional Relationship ◽  
Research Attention ◽  
Initial Analysis ◽  
The Family ◽  
And Performance ◽  
Cancer Experience

Aims: To analyze the narratives of illness blogs created by parents of children with cancer. Background: The profound effects of the childhood cancer experience on family members and the turn to the Internet by parents for help in the process are gaining research attention. Design: The qualitative study design involved secondary narrative analysis of 14 illness blogs: 9 by the parents of children with neuroblastoma and 5 by the parents of children with leukemia. Daily blog entries were analyzed as individual units of illness experience expression and in relation to one another to identify thematic and linguistic similarities. Methods: The initial analysis of these illness blogs resulted in identification of the quest for balance as a primary theme. Narratives in parents’ childhood cancer illness blogs illustrated themes of performance. During this initial analysis, however, the author repeatedly asked, “Why are they writing this? And why publish this?” A second analysis of the data answered these questions of why parents blog about the experience. Results: Narrative analysis resulted in the discovery of 6 main reasons that parents wrote and published the childhood cancer experience online: to report, explain, express, reflect, archive, and advocate. Conclusion: The analysis suggests that incorporation of parent writing may improve family-–provider communication, enhance the family-health care professional relationship, enhance safety by preventing medical errors, improve reporting of clinical trial data such as adverse events, and improve satisfaction.

The family cancer experience

1985 ◽  
Vol 8 (5) ◽  
pp. 285???291 ◽  
Author(s):  
SALLY THORNE
Keyword(s):  
The Family ◽  
Cancer Experience

scholarly journals Media Exposure, Cancer Beliefs, and Cancer-Related Information-Seeking or Avoidance Behavior Patterns in China

2021 ◽  
Vol 18 (6) ◽  
pp. 3130
Author(s):  
Rui He ◽  
Yungeng Li
Keyword(s):  
Social Media ◽  
Information Seeking ◽  
Media Exposure ◽  
Cancer Information ◽  
Information Avoidance ◽  
Related Information ◽  
Avoidance Behaviors ◽  
Health Related ◽  
Cancer Information Seeking ◽  
Cancer Beliefs

This study explored the relationships between media exposure, cancer beliefs, and cancer information-seeking or information-avoidance behaviors. Based on the planned risk information-seeking model and its extended framework, two predictive models were constructed: one for cancer information seeking and the other for cancer information avoidance. A structural equation modeling strategy was applied to survey data from China HINTS 2017 (n = 3090) to compare the impact of traditional mass media and social media exposure to cancer-related information on cancer information-seeking and information-avoidance behaviors. The study findings suggest that health-related information exposure through different media channels may generate distinctive information-seeking or information-avoidance behaviors based on various cancer beliefs. Additionally, the findings indicate that social media exposure to health-related and cancer curability beliefs does not lead to cancer information avoidance; both mass media and social media exposure encourage people to seek cancer-related information. Cancer fatalism is positively associated with cancer information-seeking and avoiding intentions, suggesting that negative cancer beliefs predict seemingly contradictory yet psychologically coherent information intentions and behaviors.

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