scholarly journals Measuring health‐related quality of life in adolescent and young adult cancer survivors with the National Institutes of Health Patient‐Reported Outcomes Measurement Information System ® : Comparing adolescent, emerging adult, and young adult survivor perspectives

2020 ◽  
Author(s):  
Elizabeth J. Siembida ◽  
Bryce B. Reeve ◽  
Brad J. Zebrack ◽  
Mallory A. Snyder ◽  
John M. Salsman
Keyword(s):  
Young Adult ◽  
Adolescent And Young Adult ◽  
Measurement Information ◽  
Adult Survivor ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Cancer

scholarly journals Lasting effects of cancer and its treatment on employment and finances in adolescent and young adult cancer survivors

Cancer ◽  
2019 ◽  
Vol 125 (11) ◽  
pp. 1908-1917 ◽  
Author(s):  
Tyler G. Ketterl ◽  
Karen L. Syrjala ◽  
Jacqueline Casillas ◽  
Linda A. Jacobs ◽  
Steven C. Palmer ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Young Adult Cancer

scholarly journals Self-reported late effects and long-term follow-up care among 1889 long-term Norwegian Childhood, Adolescent, and Young Adult Cancer Survivors (the NOR-CAYACS study)

2020 ◽  
Author(s):  
A. V. Mellblom ◽  
C. E. Kiserud ◽  
C. S. Rueegg ◽  
E. Ruud ◽  
J. H. Loge ◽  
...  
Keyword(s):  
Young Adult ◽  
Late Effects ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
Follow Up Care ◽  
Long Term Follow Up ◽  
Young Adult Cancer

Abstract Purpose The majority of childhood, adolescent, and young adult cancer survivors (CAYACS) are at risk of late effects but may not receive long-term follow-up care for these. Here, we investigated (1) self-reported late effects, (2) long-term follow-up care, and (3) factors associated with receiving follow-up care in a population-based sample of Norwegian long-term CAYACS. Methods Survivors were identified by the Cancer Registry of Norway. All > 5-year survivors diagnosed between 1985 and 2009 with childhood cancer (CCS, 0–18 years old, excluding CNS), breast cancer (BC, stages I–III), colorectal cancer (CRC), leukemias (LEUK), non-Hodgkin lymphoma (NHL), or malignant melanoma (MM) at age 19–39 years were mailed a questionnaire (NOR-CAYACS study). Descriptive statistics and logistic regression models were used to analyze occurrence of late effects, long-term follow-up care for these, and associated factors. Results Of 2104 responding survivors, 1889 were eligible for analyses. Of these, 68% were females, with a mean age of 43 years at survey, on average 17 years since diagnosis, and diagnosed with CCS (31%), BC (26%), CRC (8%), NHL (12%), LEUK (7%), and MM (16%). Overall, 61.5% reported the experience of at least one late effect, the most common being concentration/memory problems (28.1%) and fatigue (25.2%). Sixty-nine percent reported not having received long-term follow-up care focusing on late effects. Lower age at survey (p = 0.001), higher education (p = 0.012), and increasing number of late effects (p = < 0.001) were associated with increased likelihood of follow-up care in the multivariate model. Conclusions The majority of survivors reported at least one late effect, but not receiving specific follow-up care for these. This indicates a need for structured models of long-term follow-up to ensure adequate access to care.

scholarly journals Accelerated aging among childhood, adolescent, and young adult cancer survivors is evidenced by increased expression of p16 INK4a and frailty

Cancer ◽  
2020 ◽  
Vol 126 (22) ◽  
pp. 4975-4983
Author(s):  
Andrew B. Smitherman ◽  
William A. Wood ◽  
Natalia Mitin ◽  
Vanessa L. Ayer Miller ◽  
Allison M. Deal ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Accelerated Aging ◽  
Adolescent And Young Adult ◽  
Young Adult Cancer Survivors ◽  
Adult Cancer Survivors ◽  
P16 Ink4a ◽  
Young Adult Cancer
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