Supporting parents impacted by cancer: Development of an informational booklet for parents with cancer who have adolescent and young adult children

2020 ◽  
Vol 29 (12) ◽  
pp. 2101-2104
Author(s):  
Stéphanie Konings ◽  
Fiona E. J. McDonald ◽  
Pandora Patterson
Keyword(s):  
Young Adult ◽  
Adult Children ◽  
Adolescent And Young Adult ◽  
Cancer Development

scholarly journals Supporting Cancer Patients Who Are Also Parents: Establishment of a Cross-Sector Service for Families With Adolescent and Young Adult Children

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 241s-241s
Author(s):  
P. Patterson ◽  
P. Orchard ◽  
J. Friedsam ◽  
E. Schiena ◽  
S. Ellis
Keyword(s):  
Social Work ◽  
Young Adult ◽  
Cancer Patients ◽  
Cancer Diagnosis ◽  
Adult Children ◽  
Community Support ◽  
Parent Support ◽  
Adolescent And Young Adult ◽  
Support Worker ◽  
Sector Service

Background and context: Traditionally adult hospitals focus on the patient and less on their family. Adolescent and young adult children of cancer patients (AYA offspring) have significant psychosocial burdens associated with their parent's cancer however they are often invisible within hospitals with no clear referral pathways to community-based support. AYA offspring are 3-6 times more likely than peers to have clinically elevated levels of distress which increases with age. Research shows that 1 of the greatest concerns for parents is how to communicate about cancer with their children, and 1 of the greatest needs for AYA offspring is information about their parent's cancer and talking with their parents about it. Aim: CanTeen, a national AYA cancer community support organization, sought to address these needs by embedding a Parent Support Worker within the social work teams of tertiary hospitals for patients who are parents of AYA children. This service aims to assist with specific parenting challenges that arise due to a cancer diagnosis and establish a referral pathway for AYA offspring to CanTeen for support. Strategy/Tactics: Cofunding with philanthropic organizations was sought and CanTeen executives engaged in advocacy work with senior hospital management, demonstrating the need for the service and a plan to embed it within the existing hospital social work team and services. Program/Policy process: A new Parent Support Worker role was established to provide social work care to parents of AYA children following a parent's cancer diagnosis. The service provides support with parenting issues that arise due to the diagnosis as well as staff education, secondary consultations, and referrals of AYA offspring to CanTeen. A service improvement approach has been established with the collection of monitoring data measuring volume of referrals/sessions, capacity building of other staff, information given to young people and referrals to CanTeen. A service evaluation seeking feedback from patients and relevant hospital staff is also underway. Outcomes: To date, philanthropic funding and hospital support was gained to establish a pilot program placing a Parent Support Worker in 3 hospitals. Early indications are that this novel service is integrating well into established hospital teams and processes, and adding considerable value with the provision of this focused family support. What was learned: This advocacy initiative is highlighting the benefits of a model of care in adult hospitals that centrally considers family and the strength of a well-planned cross-sector service initiative.

A summary of high quality online information resources for parents with cancer who have adolescent and young adult children: A scoping review

2019 ◽  
Vol 28 (12) ◽  
pp. 2323-2335
Author(s):  
Nicole Weeks ◽  
Fiona E.J. McDonald ◽  
Pandora Patterson ◽  
Stephanie Konings ◽  
Jane Coad
Keyword(s):  
Young Adult ◽  
Adult Children ◽  
Scoping Review ◽  
Information Resources ◽  
Adolescent And Young Adult ◽  
Online Information ◽  
High Quality

The Effect of Mid Life Divorce on Late Adolescent and Young Adult Children

1993 ◽  
Vol 19 (1-2) ◽  
pp. 209-218 ◽  
Author(s):  
Beth Swartzman-Schatman ◽  
Steven P Schinke
Keyword(s):  
Young Adult ◽  
Adult Children ◽  
Adolescent And Young Adult ◽  
Late Adolescent

Stress response symptoms in adolescent and young adult children of parents diagnosed with cancer

2005 ◽  
Vol 41 (2) ◽  
pp. 288-295 ◽  
Author(s):  
Gea A. Huizinga ◽  
Annemieke Visser ◽  
Winette T.A. van der Graaf ◽  
Harald J. Hoekstra ◽  
Ed C. Klip ◽  
...  
Keyword(s):  
Stress Response ◽  
Young Adult ◽  
Adult Children ◽  
Adolescent And Young Adult

Parent–Child Time Together: The Role of Interactive Technology With Adolescent and Young Adult Children

2019 ◽  
Vol 40 (15) ◽  
pp. 2179-2202 ◽  
Author(s):  
J. Mitchell Vaterlaus ◽  
Troy E. Beckert ◽  
Sarah Schmitt-Wilson
Keyword(s):  
Young Adult ◽  
Adult Children ◽  
Text Messaging ◽  
Computer Mediated Communication ◽  
Interactive Technology ◽  
Adolescent And Young Adult ◽  
Mediated Communication ◽  
Child Quality ◽  
Use Of Technology ◽  
Parent Child

Presently, there is a lack of consensus about whether interactive technology enhances or restricts the quality and quantity of shared time between parents and their children. The purposes of this exploratory study were to identify parent and adolescent/young adult perceptions of time spent together and to investigate ways in which the use of technology is related to that time. Using a purposive sample, 766 youth (high school and early college) and their parents ( n = 735) responded to questions about their interactive time spent together. Results indicated that parents and their adolescent/young adult children distinguished between parent–child quality and parent–child quantity time. Participant perceptions of both quality and quantity parent–child time were explored in relation to parent–child computer-mediated communication via text messaging, telephone calls, social networking, video chat, and e-mail. The type of interactive technology was related to participant perceptions of parent–child quality time more than the quantity of time.

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