Clinician‐patient‐family decision‐making and health literacy in adolescents and young adults with cancer and their families: A systematic review of qualitative studies

2019 ◽  
Vol 28 (7) ◽  
pp. 1408-1419 ◽  
Author(s):  
Danielle Gessler ◽  
Ilona Juraskova ◽  
Ursula M. Sansom‐Daly ◽  
Heather L. Shepherd ◽  
Pandora Patterson ◽  
...  
Keyword(s):  
Systematic Review ◽  
Decision Making ◽  
Young Adults ◽  
Health Literacy ◽  
Qualitative Studies ◽  
Adolescents And Young Adults ◽  
Family Decision ◽  
Family Decision Making

Family decision making at end of life

2005 ◽  
Vol 3 (2) ◽  
pp. 131-142 ◽  
Author(s):  
MARY ANN MEEKER ◽  
MARY ANN JEZEWSKI
Keyword(s):  
Systematic Review ◽  
Decision Making ◽  
End Of Life ◽  
Family Members ◽  
Family Satisfaction ◽  
Care Group ◽  
Surrogate Decision Making ◽  
Family Decision ◽  
Family Decision Making ◽  
Surrogate Decision

Objective: To enhance understanding of the phenomenon of family surrogate decision-making at the end of life (EOL) by means of a systematic review and synthesis of published research reports that address this phenomenon.Methods: Garrard's (1999) methods for conducting a systematic review of the literature were followed. Fifty-one studies focusing on family decision-making experiences, needs, and processes when assisting a dying family member were selected following electronic database searches and ancestry searches.Results: In studies using hypothetical scenarios to compare patients' choices and surrogates' predictions of those choices, surrogates demonstrated low to moderate predictive accuracy. Increased accuracy occurred in more extreme scenarios, under conditions of forced choice, and when the surrogate was specifically directed to use substituted judgment. In qualitative explorations of their perspectives, family members voiced their desire to be involved and to accept the moral responsibility attendant to being a surrogate. Quality of communication available with providers significantly influenced family satisfaction with decision-making and EOL care. Group or consensual decision-making involving multiple family members was preferred over individual surrogate decision-making. Surrogates experienced long-term physical and psychological outcomes from being decision-makers.Significance of results: Functioning as a surrogate decision-maker typically places great moral, emotional, and cognitive demands on the family surrogate. Clinicians can provide improved care to both patients and families with better understanding of surrogates' needs and experiences.

scholarly journals FAMILY DECISION-MAKING ABOUT ORGAN DONATION: A SYSTEMATIC REVIEW

2015 ◽  
Vol 18 (1) ◽  
pp. 1-4 ◽  
Author(s):  
Makmor T ◽  
Abdillah N ◽  
NurulHuda MS ◽  
Raja Noriza RA ◽  
Roza Hazli Z
Keyword(s):  
Systematic Review ◽  
Decision Making ◽  
Organ Donation ◽  
Family Decision ◽  
Family Decision Making

scholarly journals Neuroimaging Findings in Adolescents and Young Adults with Anorexia Nervosa: A Systematic Review

Children ◽  
2021 ◽  
Vol 8 (2) ◽  
pp. 137
Author(s):  
Kalliopi Kappou ◽  
Myrto Ntougia ◽  
Aikaterini Kourtesi ◽  
Eleni Panagouli ◽  
Elpis Vlachopapadopoulou ◽  
...  
Keyword(s):  
Systematic Review ◽  
Young Adults ◽  
Anorexia Nervosa ◽  
Large Scale ◽  
Temporal Cortex ◽  
Adolescents And Young Adults ◽  
Pubmed Central ◽  
Executive Control Network ◽  
Young Females ◽  
Weight Restoration

Background: Anorexia nervosa (AN) is a serious, multifactorial mental disorder affecting predominantly young females. This systematic review examines neuroimaging findings in adolescents and young adults up to 24 years old, in order to explore alterations associated with disease pathophysiology. Methods: Eligible studies on structural and functional brain neuroimaging were sought systematically in PubMed, CENTRAL and EMBASE databases up to 5 October 2020. Results: Thirty-three studies were included, investigating a total of 587 patients with a current diagnosis of AN and 663 healthy controls (HC). Global and regional grey matter (GM) volume reduction as well as white matter (WM) microstructure alterations were detected. The mainly affected regions were the prefrontal, parietal and temporal cortex, hippocampus, amygdala, insula, thalamus and cerebellum as well as various WM tracts such as corona radiata and superior longitudinal fasciculus (SLF). Regarding functional imaging, alterations were pointed out in large-scale brain networks, such as default mode network (DMN), executive control network (ECN) and salience network (SN). Most findings appear to reverse after weight restoration. Specific limitations of neuroimaging studies in still developing individuals are also discussed. Conclusions: Structural and functional alterations are present in the early course of the disease, most of them being partially or totally reversible. Nonetheless, neuroimaging findings have been open to many biological interpretations. Thus, more studies are needed to clarify their clinical significance.

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