Feasibility and acceptance of the CaringGuidance web‐based, distress self‐management, psychoeducational program initiated within 12 weeks of breast cancer diagnosis

2019 ◽  
Vol 28 (4) ◽  
pp. 888-895 ◽  
Author(s):  
Robin M. Lally ◽  
Gina Bellavia ◽  
Steven Gallo ◽  
Kevin Kupzyk ◽  
Vicki Helgeson ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Diagnosis ◽  
Breast Cancer Diagnosis ◽  
Self Management ◽  
Web Based ◽  
Psychoeducational Program

scholarly journals Use of an Unguided, Web-Based Distress Self-Management Program After Breast Cancer Diagnosis: Sub-Analysis of CaringGuidance Pilot Study (Preprint)

2020 ◽  
Author(s):  
Robin M Lally ◽  
Kevin Kupzyk ◽  
Steve Gallo ◽  
Donna Berry
Keyword(s):  
Breast Cancer ◽  
Pilot Study ◽  
Usual Care ◽  
Cancer Diagnosis ◽  
Intervention Group ◽  
Breast Cancer Diagnosis ◽  
Management Program ◽  
Activity Level ◽  
Self Management ◽  
Web Based

BACKGROUND Unguided, web-based psychoeducational interventions are gaining interest as a way to reach patients while reducing pressure on clinical resources. However, there has been little research on how patients with cancer use these interventions. OBJECTIVE The objective of this analysis was to evaluate how women newly diagnosed with breast cancer used the unguided web-based, psychoeducational distress self-management program CaringGuidance After Breast Cancer Diagnosis while enrolled in a pilot feasibility study. METHODS Women with stage 0 to II breast cancer diagnosed within the prior three months were recruited from clinics primarily in the Northeastern United States for participation in a 12-week pilot study of CaringGuidance plus usual care versus usual care alone. Usage prompts included sets of emails sent weekly for 12 weeks; standardized congratulatory emails after every two hours of program use, and informative emails for each cognitive-behavioral exercise. Individual user activity on the site was automatically tracked by an analytics system and recorded directly in the CaringGuidance database. RESULTS Complete usage data were available for 54 subjects. Ninety-eight percent of the intervention group logged into CaringGuidance independently at least once. Thirty-eight (70%) logged in during all three months, 15 (28%) were intermittent users, and one (2%) was a non-user. Users (n=53) averaged 15.6 (SD 9.85) logins. Mean logins were greatest in month 1 (7.26, SD 4.02) and declined in months 2 (4.32, SD 3.66) and month 3 (4.02, SD 3.82). Eleven (21%) used CaringGuidance with both the frequency and activity level intended at study outset, 9 (17%) exceeded intended frequency and activity (high-high users), and 10 (19%) were below expected usage on both login frequency and activity (low-low users). Low-low users and high-high users differed significantly (<i>P</i>&lt;.001) in the total number of views and unique views of all program components. Change in depressive symptoms and the number of sessions (r=.351) and logins (r=.348) between study months 1 and 2 were significantly correlated (<i>P</i>=.018, .019). Higher baseline distress was associated with more unique views of program resources (r=.281, <i>P</i>=.043). Change in intrusive/avoidant thoughts from baseline to month 3, and the number of users’ unique exercise views were negatively correlated (r=–.319, <i>P</i>=.035) so that more unique exercise views, equated with greater decline in intrusive/avoidant thoughts from baseline to month 3. CONCLUSIONS These findings favor the hypothesis that the key ingredient is not the amount of program use, but each user’s self-selected activity within the program. More research is needed on the ideal ways to maintain use, and capture and define engagement and enactment of behaviors by people with cancer accessing unguided, self-management web-based programs.

scholarly journals Use of an Unguided, Web-Based Distress Self-Management Program After Breast Cancer Diagnosis: Sub-Analysis of CaringGuidance Pilot Study

10.2196/19734 ◽  
2020 ◽  
Vol 22 (7) ◽  
pp. e19734 ◽  
Author(s):  
Robin M Lally ◽  
Kevin Kupzyk ◽  
Steve Gallo ◽  
Donna Berry
Keyword(s):  
Breast Cancer ◽  
Pilot Study ◽  
Usual Care ◽  
Cancer Diagnosis ◽  
Intervention Group ◽  
Breast Cancer Diagnosis ◽  
Management Program ◽  
Activity Level ◽  
Self Management ◽  
Web Based

Background Unguided, web-based psychoeducational interventions are gaining interest as a way to reach patients while reducing pressure on clinical resources. However, there has been little research on how patients with cancer use these interventions. Objective The objective of this analysis was to evaluate how women newly diagnosed with breast cancer used the unguided web-based, psychoeducational distress self-management program CaringGuidance After Breast Cancer Diagnosis while enrolled in a pilot feasibility study. Methods Women with stage 0 to II breast cancer diagnosed within the prior three months were recruited from clinics primarily in the Northeastern United States for participation in a 12-week pilot study of CaringGuidance plus usual care versus usual care alone. Usage prompts included sets of emails sent weekly for 12 weeks; standardized congratulatory emails after every two hours of program use, and informative emails for each cognitive-behavioral exercise. Individual user activity on the site was automatically tracked by an analytics system and recorded directly in the CaringGuidance database. Results Complete usage data were available for 54 subjects. Ninety-eight percent of the intervention group logged into CaringGuidance independently at least once. Thirty-eight (70%) logged in during all three months, 15 (28%) were intermittent users, and one (2%) was a non-user. Users (n=53) averaged 15.6 (SD 9.85) logins. Mean logins were greatest in month 1 (7.26, SD 4.02) and declined in months 2 (4.32, SD 3.66) and month 3 (4.02, SD 3.82). Eleven (21%) used CaringGuidance with both the frequency and activity level intended at study outset, 9 (17%) exceeded intended frequency and activity (high-high users), and 10 (19%) were below expected usage on both login frequency and activity (low-low users). Low-low users and high-high users differed significantly (P<.001) in the total number of views and unique views of all program components. Change in depressive symptoms and the number of sessions (r=.351) and logins (r=.348) between study months 1 and 2 were significantly correlated (P=.018, .019). Higher baseline distress was associated with more unique views of program resources (r=.281, P=.043). Change in intrusive/avoidant thoughts from baseline to month 3, and the number of users’ unique exercise views were negatively correlated (r=–.319, P=.035) so that more unique exercise views, equated with greater decline in intrusive/avoidant thoughts from baseline to month 3. Conclusions These findings favor the hypothesis that the key ingredient is not the amount of program use, but each user’s self-selected activity within the program. More research is needed on the ideal ways to maintain use, and capture and define engagement and enactment of behaviors by people with cancer accessing unguided, self-management web-based programs.

Innovative web-based decision support system for combining mammographic, histological and cytological image data in breast cancer diagnosis

2014 ◽  
Vol 30 ◽  
pp. e40
Author(s):  
George Xenogiannopoulos ◽  
Spiros Kostopoulos ◽  
Dimitris Glotsos ◽  
Ioannis Kalatzis ◽  
Pantelis Asvestas ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Decision Support ◽  
Decision Support System ◽  
Cancer Diagnosis ◽  
Support System ◽  
Image Data ◽  
Breast Cancer Diagnosis ◽  
Web Based

e-Prolipsis: A web based risk estimation platform to support and register breast cancer diagnosis in Greece

2012 ◽  
Author(s):  
Alexandros C. Dimopoulos ◽  
John Lakoumentas ◽  
Argyro Antaraki ◽  
Antonios Frigas ◽  
Emmanouil K. Ikonomakis ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Diagnosis ◽  
Risk Estimation ◽  
Breast Cancer Diagnosis ◽  
Web Based

A case-oriented web-based training system for breast cancer diagnosis

2018 ◽  
Vol 156 ◽  
pp. 73-83 ◽  
Author(s):  
Qinghua Huang ◽  
Xianhai Huang ◽  
Longzhong Liu ◽  
Yidi Lin ◽  
Xingzhang Long ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Diagnosis ◽  
Breast Cancer Diagnosis ◽  
Training System ◽  
Web Based

Physical Activity and Survival Subsequent to Metastatic Breast Cancer Diagnosis

2010 ◽  
Author(s):  
Susan Sharp ◽  
Ashleigh Golden ◽  
Cheryl Koopman ◽  
Eric Neri ◽  
David Spiegel
Keyword(s):  
Breast Cancer ◽  
Physical Activity ◽  
Metastatic Breast Cancer ◽  
Cancer Diagnosis ◽  
Metastatic Breast ◽  
Breast Cancer Diagnosis
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