scholarly journals Perceived impact of cancer among adolescents and young adults: Relationship with health-related quality of life and distress

2016 ◽  
Vol 26 (9) ◽  
pp. 1307-1315 ◽  
Author(s):  
O. Husson ◽  
B.J. Zebrack
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Adolescents And Young Adults ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Perceived Impact

scholarly journals Empowerment in adolescents and young adults (AYA) with cancer and its association with health-related quality of life

2016 ◽  
Vol 27 ◽  
pp. vi470
Author(s):  
S. Kaal ◽  
O. Husson ◽  
S. van Duivenboden ◽  
R. Jansen ◽  
E. Manten-Horst ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Adolescents And Young Adults ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Diabetes symptoms predictors of health-related quality of life in adolescents and young adults with type 1 or type 2 diabetes

2018 ◽  
Vol 27 (9) ◽  
pp. 2295-2303 ◽  
Author(s):  
James W. Varni ◽  
◽  
Alan M. Delamater ◽  
Korey K. Hood ◽  
Jennifer K. Raymond ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 2 Diabetes ◽  
Young Adults ◽  
Adolescents And Young Adults ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals A Life Put on Pause: An Exploration of the Health-Related Quality of Life Issues Relevant to Adolescents and Young Adults with Cancer

2018 ◽  
Vol 7 (4) ◽  
pp. 453-464 ◽  
Author(s):  
Samantha C. Sodergren ◽  
Olga Husson ◽  
Gudrun E. Rohde ◽  
Iwona M. Tomaszewska ◽  
Bella Vivat ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Adolescents And Young Adults ◽  
Health Related Quality ◽  
Life Issues ◽  
Related Quality ◽  
Health Related

scholarly journals Adherence to hydroxyurea, health-related quality of life domains and attitudes towards a smartphone app among Irish adolescents and young adults with sickle cell disease

2021 ◽  
Author(s):  
Helen Fogarty ◽  
Alan Gaul ◽  
Saifullah Syed ◽  
Natalija Aleksejenko ◽  
Rosena Geoghegan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Medication Adherence ◽  
Adolescents And Young Adults ◽  
Smartphone App ◽  
Health Related Quality ◽  
Improve Medication Adherence ◽  
Related Quality ◽  
Health Related

Abstract Introduction SCD patients experience declines in health-related quality of life (HRQOL) domains compared with healthy controls. Despite evidence supporting the benefits of hydroxyurea, medication non-adherence remains problematic, especially in adolescents and young adults (AYA). Adherence barriers include forgetfulness and lack of knowledge. Recently, increased interest in technology-based strategies to improve medication adherence has emerged. No data currently exists on hydroxyurea adherence, HRQOL or perceptions of technology-based tools in the Irish SCD population. Methods In order to interrogate these domains among Irish AYA SCD patients we administered an anonymous survey at two tertiary referral centres in Dublin, Ireland, in July 2019. Results Sixty-three patients participated; 63% female and 37% male, with a median and mean age of 17 and 19 years, respectively. Average monthly adherence was 76% using a visual analogue scale. Recall barriers were present in 62% while 26% omit hydroxyurea for reasons other than forgetting. Reviewing HRQOL; only 36.5% felt always physically able to engage in recreational activities, while 51% experienced disruption to school/college/work due to pain. Eighty-one percent reported that anxiety about health interferes with their lives and non-adherence correlated with worse HRQOL outcomes. Interest in a smartphone app was expressed by the majority, with daily medication reminders being the most popular feature. Sharing adherence data with doctors and discussion forums were less appealing. Conclusions Representing over 10% of the Irish SCD population, our survey provides novel and valuable insights into medication adherence and HRQOL domains. Preferred app features may inform future technology-based interventions to improve medication adherence in SCD and other chronic health conditions.

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