Quality of life and late‐effects among childhood brain tumor survivors: a mixed method analysis

2015 ◽  
Vol 25 (6) ◽  
pp. 677-683 ◽  
Author(s):  
Mirja Erika Gunn ◽  
Susanna Mört ◽  
Mikko Arola ◽  
Mervi Taskinen ◽  
Pekka Riikonen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Mixed Method ◽  
Late Effects ◽  
Childhood Brain Tumor ◽  
Method Analysis

Childhood Brain Tumor Survivors at Risk for Impaired Health-related Quality of Life

2013 ◽  
Vol 35 (8) ◽  
pp. 603-609 ◽  
Author(s):  
Eline J. Aukema ◽  
A. Y. Netteke Schouten-van Meeteren ◽  
Bob F. Last ◽  
Heleen Maurice-Stam ◽  
Martha A. Grootenhuis
Keyword(s):  
Quality Of Life ◽  
At Risk ◽  
Brain Tumor ◽  
Health Related Quality ◽  
Childhood Brain Tumor ◽  
Related Quality ◽  
Health Related ◽  
Impaired Health

Developing a health-related quality of life instrument for childhood brain tumor survivors

2006 ◽  
Vol 23 (1) ◽  
pp. 47-57 ◽  
Author(s):  
Jin-Shei Lai ◽  
David Cella ◽  
Tadanori Tomita ◽  
Rita K. Bode ◽  
Monica Newmark ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Health Related Quality ◽  
Childhood Brain Tumor ◽  
Life Instrument ◽  
Related Quality ◽  
Health Related

scholarly journals QOL-41. FATIGUE AND QUALITY OF LIFE IN CHILDHOOD BRAIN TUMOR AFTER THE END OF TREATMENT

2018 ◽  
Vol 20 (suppl_2) ◽  
pp. i165-i166
Author(s):  
Sonia Di Profio ◽  
Marco Crocco ◽  
Antonio Verrico ◽  
Claudia Milanaccio ◽  
Natascia Di Iorgi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Childhood Brain Tumor ◽  
End Of Treatment

scholarly journals Health status, health-related quality of life, and socioeconomic outcome in childhood brain tumor survivors: a German cohort study

2019 ◽  
Vol 21 (8) ◽  
pp. 1069-1081 ◽  
Author(s):  
Cathy Scholtes ◽  
Katja Baust ◽  
Leonie Weinhold ◽  
Ursula Creutzig ◽  
Astrid Gnekow ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
General Population ◽  
Late Effects ◽  
Childhood Cancer Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract Background With rising numbers of childhood cancer survivors, somatic and socioeconomic outcome as well as health-related quality of life (QoL) gain increasing relevance. Based on the first nationwide German Survey on Life Situation, State of Health, and Quality of Life of Childhood Cancer Survivors, the VIVE survey, we report the outcome of survivors of childhood brain tumors localized in the posterior fossa. Methods Two hundred seventy participants with a median follow-up period of 21.9 years completed a questionnaire on socioeconomic and somatic late effects as well as a standardized QoL questionnaire (European Organisation for Research and Treatment of Cancer QLQ-C30). Comparisons were performed between World Health Organization (WHO) grades I–II, WHO grades III–IV brain tumor survivors (BTS), and the general population adjusting for potential confounders. Results The socioeconomic and QoL results of WHO grades I–II BTS were largely comparable to the general population, while grades III–IV BTS were at higher risk for significantly worse outcomes. Of WHO grades III–IV BTS, 36.8% were still living with their parents or in assisted living facilities compared with 16.1% of grades I–II BTS and 7.8% of the age-adjusted general population. Of grades III–IV BTS, 60.8% achieved at least an intermediate school degree in comparison to 80.5% of grades I–II BTS and 75.6% of the general population. Grades III–IV BTS developed up to 2 times more somatic late effects than survivors of grades I–II tumors. Conclusion Derived from a large and homogeneous cohort, these results stress the importance of an appropriate follow-up period focusing not only on physical aspects but encompassing the entire living situation to allow patient-tailored support.

ACCESSIBLE HOUSING AND HEALTH-RELATED QUALITY OF LIFE: MEASUREMENTS OF WELLBEING OUTCOMES FOLLOWING HOME MODIFICATIONS

2016 ◽  
Vol 10 (2) ◽  
pp. 38 ◽  
Author(s):  
Phillippa Carnemolla ◽  
Catherine Bridge
Keyword(s):  
Quality Of Life ◽  
Mixed Method ◽  
Exploratory Research ◽  
Health Related Quality ◽  
Care Giving ◽  
Home Modifications ◽  
Related Quality ◽  
Health Related ◽  
The Impact

The multi-dimensional relationship between housing and population health is now well recognised internationally, across both developing and developed nations. This paper examines a dimension within the housing and health relationship – accessibility – that to date has been considered difficult to measure. This paper reports on the mixed method results of larger mixed-method, exploratory study designed to measure the impact of home modifications on Health-Related Quality of Life, supported by qualitative data of recipients’ experiences of home modifications. Data was gathered from 157 Australian HACC clients, who had received home modifications. Measurements were taken for both before and after home modifications and reveal that home modifications were associated with an average 40% increase in Health-Related Quality of Life levels. The qualitative results revealed that participants positively associated home modifications across six effect themes: increased safety and confidence, improved mobility at home, increased independence, supported care-giving role, increased social participation, and ability to return home from hospital. This exploratory research gives an insight into the potential for accessible architecture to impact improvements in community health and wellbeing.

Validity and reliability of the French version of the Pediatric Quality of Life Inventory™ brain tumor module

2021 ◽  
Author(s):  
Maxime Caru ◽  
Sébastien Perreault ◽  
Ariane Levesque ◽  
Serge Sultan ◽  
Leandra Desjardins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Validity And Reliability ◽  
French Version ◽  
Quality Of Life Inventory ◽  
Life Inventory
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