scholarly journals ‘What is this active surveillance thing?’ Men's and partners' reactions to treatment decision making for prostate cancer when active surveillance is the recommended treatment option

2014 ◽  
Vol 23 (12) ◽  
pp. 1391-1398 ◽  
Author(s):  
Clare O'Callaghan ◽  
Tracey Dryden ◽  
Amelia Hyatt ◽  
Joanne Brooker ◽  
Sue Burney ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Decision Making ◽  
Active Surveillance ◽  
Treatment Option ◽  
Treatment Decision ◽  
Treatment Decision Making ◽  
Recommended Treatment

scholarly journals Resisting recommended treatment for prostate cancer: a qualitative analysis of the lived experience of possible overdiagnosis

BMJ Open ◽  
2019 ◽  
Vol 9 (5) ◽  
pp. e026960 ◽  
Author(s):  
Kirsten McCaffery ◽  
Brooke Nickel ◽  
Kristen Pickles ◽  
Ray Moynihan ◽  
Barnett Kramer ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Decision Making ◽  
Lived Experience ◽  
Treatment Decision ◽  
Well Being ◽  
Management Options ◽  
Treatment Decision Making ◽  
Recommended Treatment ◽  
Qualitative Interview Study ◽  
The Impact

ObjectiveTo describe the lived experience of a possible prostate cancer overdiagnosis in men who resisted recommended treatment.DesignQualitative interview studySettingAustraliaParticipants11 men (aged 59–78 years) who resisted recommended prostate cancer treatment because of concerns about overdiagnosis and overtreatment.OutcomesReported experience of screening, diagnosis and treatment decision making, and its impact on psychosocial well-being, life and personal circumstances.ResultsMen’s accounts revealed profound consequences of both prostate cancer diagnosis and resisting medical advice for treatment, with effects on their psychological well-being, family, employment circumstances, identity and life choices. Some of these men were tested for prostate-specific antigen without their knowledge or informed consent. The men felt uninformed about their management options and unsupported through treatment decision making. This often led them to develop a sense of disillusionment and distrust towards the medical profession and conventional medicine. The findings show how some men who were told they would soon die without treatment (a prognosis which ultimately did not eventuate) reconciled issues of overdiagnosis and potential overtreatment with their own diagnosis and situation over the ensuing 1 to 20+ years.ConclusionsMen who choose not to have recommended treatment for prostate cancer may avoid treatment-associated harms like incontinence and impotence, however our findings showed that the impact of the diagnosis itself is immense and far-reaching. A high priority for improving clinical practice is to ensure men are adequately informed of these potential consequences before screening is considered.

scholarly journals Factors underlying treatment decision-making for localized prostate cancer in the U.S. and Canada: A scoping review using principal component analysis

2018 ◽  
Vol 13 (7) ◽  
Author(s):  
Mustafa Andkhoie ◽  
Desneige Meyer ◽  
Michael Szafron
Keyword(s):  
Prostate Cancer ◽  
Decision Making ◽  
Principal Component Analysis ◽  
Scoping Review ◽  
Principal Component ◽  
Treatment Decision ◽  
Localized Prostate Cancer ◽  
Key Factors ◽  
Treatment Decision Making ◽  
Word Cloud

Introduction: The purpose of this research is to gather, collate, and identify key factors commonly studied in localized prostate cancer (LPC) treatment decision-making in Canada and the U.S.Methods: This scoping review uses five databases (Medline, EMBASE, CINAHL, AMED, and PsycInfo) to identify relevant articles using a list of inclusion and exclusion criteria applied by two reviewers. A list of topics describing the themes of the articles was extracted and key factors were identified using principal component analysis (PCA). A word cloud of titles and abstracts of the relevant articles was created to identify complementary results to the PCA.Results: This review identified 77 relevant articles describing 32 topics related to LPC treatment decision-making. The PCA grouped these 32 topics into five key factors commonly studied in LPC treatment decision-making: 1) treatment type; 2) socioeconomic/demographic characteristics; 3) personal reasons for treatment choice; 4) psychology of treatment decision experience; and 5) level of involvement in the decision-making process. The word cloud identified common phrases that were complementary to the factors identified through the PCA.Conclusions: This research identifies several possible factors impacting LPC treatment decision-making. Further research needs to be completed to determine the impact that these factors have in the LPC treatment decision-making experience.

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