scholarly journals Can social media data lead to earlier detection of drug‐related adverse events?

2016 ◽  
Vol 25 (12) ◽  
pp. 1425-1433 ◽  
Author(s):  
Mei Sheng Duh ◽  
Pierre Cremieux ◽  
Marc Van Audenrode ◽  
Francis Vekeman ◽  
Paul Karner ◽  
...  
Keyword(s):  
Social Media ◽  
Adverse Events ◽  
Social Media Data ◽  
Media Data

scholarly journals A Multi-platform Approach to Monitoring Negative Dominance for COVID-19 Vaccine-Related Information Online

2021 ◽  
pp. 1-24
Author(s):  
Paola Pascual-Ferrá ◽  
Neil Alperstein ◽  
Daniel J. Barnett
Keyword(s):  
Social Media ◽  
Adverse Events ◽  
News Media ◽  
Search Behavior ◽  
Social Media Data ◽  
Future Studies ◽  
Related Information ◽  
Youtube Videos ◽  
Negative Dominance ◽  
Media Data

Abstract Objective The aim of this study was to test the appearance of negative dominance in COVID-19 vaccine-related information and activity online. We hypothesized that if negative dominance appeared, it would be a reflection of peaks in adverse events related to the vaccine, that negative content would attract more engagement on social media than other vaccine-related posts, and posts referencing adverse events related to COVID-19 vaccination would have a higher average toxicity score. Methods We collected data using Google Trends for search behavior, CrowdTangle for social media data, and Media Cloud for media stories, and compared them against the dates of key adverse events related to COVID-19. We used Communalytic to analyze the toxicity of social media posts by platform and topic. Results While our first hypothesis was partially supported, with peaks in search behavior for image and YouTube videos driven by adverse events, we did not find negative dominance in other types of searches or patterns of attention by news media or on social media. Conclusion We did not find evidence in our data to prove the negative dominance of adverse events related to COVID-19 vaccination on social media. Future studies should corroborate these findings and, if consistent, focus on explaining why this may be the case.

scholarly journals Understanding Public Attitudes Toward Researchers Using Social Media for Detecting and Monitoring Adverse Events Data: Multi Methods Study

2019 ◽  
Vol 21 (8) ◽  
pp. e7081 ◽  
Author(s):  
Su Golder ◽  
Arabella Scantlebury ◽  
Helen Christmas
Keyword(s):  
Social Media ◽  
Informed Consent ◽  
Adverse Events ◽  
Potential Benefit ◽  
Influential Factor ◽  
Social Media Analytics ◽  
Social Media Data ◽  
Social Media Platform ◽  
Media Platform ◽  
Media Data

Background Adverse events are underreported in research studies, particularly randomized controlled trials and pharmacovigilance studies. A method that researchers could use to identify more complete safety profiles for medications is to use social media analytics. However, patient’s perspectives on the ethical issues associated with using patient reports of adverse drug events on social media are unclear. Objective The objective of this study was to explore the ethics of using social media for detecting and monitoring adverse events for research purposes using a multi methods approach. Methods A multi methods design comprising qualitative semistructured interviews (n=24), a focus group (n=3), and 3 Web-based discussions (n=20) with members of the public was adopted. Findings from a recent systematic review on the use of social media for monitoring adverse events provided a theoretical framework to interpret the study’s findings. Results Views were ascertained regarding the potential benefits and harms of the research, privacy expectations, informed consent, and social media platform. Although the majority of participants were supportive of social media content being used for research on adverse events, a small number of participants strongly opposed the idea. The potential benefit of the research was cited as the most influential factor to whether participants would give their consent to their data being used for research. There were also some caveats to people’s support for the use of their social media data for research purposes: the type of social media platform and consideration of the vulnerability of the social media user. Informed consent was regarded as difficult to obtain and this divided the opinion on whether it should be sought. Conclusions Social media users were generally positive about their social media data being used for research purposes; particularly for research on adverse events. However, approval was dependent on the potential benefit of the research and that individuals are protected from harm. Further study is required to establish when consent is required for an individual’s social media data to be used.

Smart De-Identification of Social Media Data

2014 ◽  
Author(s):  
Kathleen M. Carley ◽  
L. R. Carley ◽  
Jonathan Storrick
Keyword(s):  
Social Media ◽  
Social Media Data ◽  
Media Data

Mining Social Media Data to Study the Consequences of Dementia Diagnosis on Caregivers and Relatives (Preprint)

2018 ◽  
Author(s):  
Anika Oellrich ◽  
George Gkotsis ◽  
Richard James Butler Dobson ◽  
Tim JP Hubbard ◽  
Rina Dutta
Keyword(s):  
Social Media ◽  
Family Relationships ◽  
Text Processing ◽  
Automated Analysis ◽  
Health Concern ◽  
Dementia Diagnosis ◽  
Data Set ◽  
Social Media Data ◽  
Real Time Processing ◽  
Media Data

BACKGROUND Dementia is a growing public health concern with approximately 50 million people affected worldwide in 2017 and this number is expected to reach more than 131 million by 2050. The toll on caregivers and relatives cannot be underestimated as dementia changes family relationships, leaves people socially isolated, and affects the finances of all those involved. OBJECTIVE The aim of this study was to explore using automated analysis (i) the age and gender of people who post to the social media forum Reddit about dementia diagnoses, (ii) the affected person and their diagnosis, (iii) relevant subreddits authors are posting to, (iv) the types of messages posted and (v) the content of these posts. METHODS We analysed Reddit posts concerning dementia diagnoses. We used a previously developed text analysis pipeline to determine attributes of the posts as well as their authors to characterise online communications about dementia diagnoses. The posts were also examined by manual curation for the diagnosis provided and the person affected. Furthermore, we investigated the communities these people engage in and assessed the contents of the posts with an automated topic gathering technique. RESULTS Our results indicate that the majority of posters in our data set are women, and it is mostly close relatives such as parents and grandparents that are mentioned. Both the communities frequented and topics gathered reflect not only the sufferer's diagnosis but also potential outcomes, e.g. hardships experienced by the caregiver. The trends observed from this dataset are consistent with findings based on qualitative review, validating the robustness of social media automated text processing. CONCLUSIONS This work demonstrates the value of social media data sources as a resource for in-depth studies of those affected by a dementia diagnosis and the potential to develop novel support systems based on their real time processing in line with the increasing digitalisation of medical care.

Citizens, Elites, and Social Media Methodological Challenges and Opportunities in the Study of Persuasion and Mobilization

2019 ◽  
pp. 1036-1058
Author(s):  
Philip Habel ◽  
Yannis Theocharis
Keyword(s):  
Social Media ◽  
Big Data ◽  
Supply And Demand ◽  
Political Process ◽  
The Political ◽  
The Novel ◽  
Complete Understanding ◽  
Social Media Data ◽  
Challenges And Opportunities ◽  
Media Data

In the last decade, big data, and social media in particular, have seen increased popularity among citizens, organizations, politicians, and other elites—which in turn has created new and promising avenues for scholars studying long-standing questions of communication flows and influence. Studies of social media play a prominent role in our evolving understanding of the supply and demand sides of the political process, including the novel strategies adopted by elites to persuade and mobilize publics, as well as the ways in which citizens react, interact with elites and others, and utilize platforms to persuade audiences. While recognizing some challenges, this chapter speaks to the myriad of opportunities that social media data afford for evaluating questions of mobilization and persuasion, ultimately bringing us closer to a more complete understanding Lasswell’s (1948) famous maxim: “who, says what, in which channel, to whom, [and] with what effect.”

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