What young people want from their diabetes team: developing a patient reported experience measure (PREM) for young people with type 1 diabetes

2015 ◽  
Vol 32 (4) ◽  
pp. 142-147a ◽  
Author(s):  
Isabella Girling ◽  
Emma Day ◽  
Kate Fazakerley ◽  
Tat Gray ◽  
Peter Hindmarsh ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young People ◽  
Patient Reported ◽  
Experience Measure

Diabetes control is worse in children and young people with type 1 diabetes requiring interpreter support

2018 ◽  
Author(s):  
Jan Idkowiak ◽  
Sabba Elhag ◽  
Vrinda Saraff ◽  
Renuka Dias ◽  
Timothy Barrett ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young People ◽  
Diabetes Control ◽  
Children And Young People

A retrospective regional analysis of outcomes during transition of young people with type 1 diabetes

2018 ◽  
Author(s):  
Melanie Kershaw ◽  
Marie Atkins ◽  
Suzanne Digwood ◽  
Hilary McCoubrey ◽  
Marie McGee ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young People ◽  
Regional Analysis

Parent Experiences Raising Young People with Type 1 Diabetes and Celiac Disease

2015 ◽  
Vol 30 (2) ◽  
pp. 353-363 ◽  
Author(s):  
Kerri Erickson ◽  
Donna Freeborn ◽  
Susanne Olsen Roper ◽  
Barbara Mandleco ◽  
Ashley Anderson ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Celiac Disease ◽  
Young People ◽  
Parent Experiences

Diabetes Technology Experiences Among Latinx and Non-Latinx Youth with Type 1 Diabetes

2021 ◽  
pp. 193229682110292
Author(s):  
David Tsai ◽  
Jaquelin Flores Garcia ◽  
Jennifer L. Fogel ◽  
Choo Phei Wee ◽  
Mark W. Reid ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young People ◽  
Technology Use ◽  
Private Insurance ◽  
Spanish Speaking ◽  
Positive Attitudes ◽  
Diabetes Technology ◽  
English Speaking ◽  
Continuous Glucose Monitors

Background: Diabetes technologies, such as insulin pumps and continuous glucose monitors (CGM), have been associated with improved glycemic control and increased quality of life for young people with type 1 diabetes (T1D); however, few young people use these devices, especially those from minority ethnic groups. Current literature predominantly focuses on white patients with private insurance and does not report experiences of diverse pediatric patients with limited resources. Methods: To explore potential differences between Latinx and non-Latinx patients, English- and Spanish-speaking young people with T1D ( n = 173, ages 11-25 years) were surveyed to assess attitudes about and barriers to diabetes technologies using the Technology Use Attitudes and Barriers to Device Use questionnaires. Results: Both English- and Spanish-speaking participants who identified as Latinx were more likely to have public insurance ( P = .0001). English-speaking Latinx participants reported higher Hemoglobin A1c values ( P = .003), less CGM use ( P = .002), and more negative attitudes about technology (generally, P = .003; and diabetes-specific, P < .001) than either non-Latinx or Spanish-speaking Latinx participants. Barriers were encountered with equivalent frequency across groups. Conclusions: Latinx English-speaking participants had less positive attitudes toward general and diabetes technology than Latinx Spanish-speaking and non-Latinx English-speaking peers, and differences in CGM use were associated with socioeconomic status. Additional work is needed to design and deliver diabetes interventions that are of interest to and supportive of patients from diverse ethnic and language backgrounds.

Prevention and early help for eating disorders in young people with type 1 diabetes

2021 ◽  
pp. 135910452199417
Author(s):  
Rosie Oldham-Cooper ◽  
Claire Semple
Keyword(s):  
Eating Disorders ◽  
Type 1 Diabetes ◽  
Early Intervention ◽  
Young People ◽  
Current Evidence ◽  
Future Directions ◽  
Team Collaboration ◽  
Children And Young People ◽  
Specialist Services

There is building evidence that early intervention is key to improving outcomes in eating disorders, whereas a ‘watch and wait’ approach that has been commonplace among GPs and other healthcare professionals is now strongly discouraged. Eating disorders occur at approximately twice the rate in individuals with type 1 diabetes compared to the general population. In this group, standard eating disorder treatments have poorer outcomes, and eating disorders result in a particularly high burden of morbidity. Therefore, our first priority must be prevention, with early intervention where disordered eating has already developed. Clinicians working in both eating disorders and diabetes specialist services have highlighted the need for multidisciplinary team collaboration and specific training, as well as improved treatments. We review the current evidence and future directions for prevention, identification and early intervention for eating disorders in children and young people with type 1 diabetes.

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